New CH.com Forum

Jun 4^th, 2025 at 5:13am

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › hello

(Moderators: DJ, Mrs Deej)

‹ Previous Topic | Next Topic ›

Pages: 1

hello (Read 969 times)

mike84

CH.com Newbie

Offline

I Love CH.com!

Posts: 1

hello
May 21^st, 2009 at 2:10am

hey, my name is mike. I was recently diagnosed with chronic cluster headaches and migrains. I have been battling the beast for about five years now. I had seen dozens of doctors and diagnosed with everything from "just migrains" to pre-glaucoma. Many dollars and failed presciptions later, I found a doctor who listened. Although it is terrible that a website like this has to exist, i am relieved to know i am not alone. I look forward to exchanging info and stories. I hope all of you hang in there and we find a definite cure, soon!

IP Logged

Click Here to visit the CH.com Facebook page!

George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: hello Reply #1 - May 21^st, 2009 at 2:14am Welcome, Mike. If you're not averse to doing so, please tell us a little about what you've been prescribed, and what has and has not been helpful to you. Could be you might add to the collective wisdom here, or perhaps we can suggest some things you haven't tried. Welcome home. Best wishes, George
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: hello Reply #2 - May 21^st, 2009 at 3:36pm Hi Mike and welcome to the family. I'm so sorry to find that we are related. Anyway, tell us a bit about how you battle the beast. That's how this site works ... we all learn from each other. The biggest thing I got out of this site early on was learning that I wasn't alone. Awesome feeling isn't it? -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: hello
Reply #3 - May 22^nd, 2009 at 3:49am

Welcome to the board, but warning, we're a nosy bunch! Do give us a run down of your treatment regimen when you get a chance. The strength of this board is our combined knowledge. Here's my current routine just for comparison.

A cycle starts up again. I go on a 2 week prednisone taper while starting my lithium, working up to 1200 mg of lithium a day. At that dosing, after about 2 weeks, the lithium will block 70-80% of my attacks. the prednisone gives me complete relief which is why I use it while I'm waiting for the lithium to kick in.

When an attack breaks thru the lithium, I go to my oxygen. I can abort an attack in less then 10 minutes, often as fast as 6-8 minutes by huffing pure oxygen. Sure beats the 90 minute dance with the 10 hour headache hang over I used to have to endure. Wink

On the rare occasion the 02 doesn't work or I'm stupid enough to get caught without it, I resort to the imitrex injectables.

31 years of these things and that's what's currently working for me. You'll hear a thousand variations of that regimen, hoping one of them proves the magic bullet for you. Welcome home.

joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: hello Reply #4 - May 22^nd, 2009 at 7:40am Welcome Mike, All the best in your journey to find what helps you find PFD. You have come to the right place,welcome home Iddy
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

Lefty

CH.com Alumnus

Offline

Posts: 759
Gender: male

Re: hello
Reply #5 - May 22^nd, 2009 at 11:34am

mike84 wrote on May 21^st, 2009 at 2:10am:

I found a doctor who listened.

There's half your battle won already...!

Welcome aboard Mike. Please do tell us a little more about yourself i.e. what meds you are currently on. Have a good nosey around the medications,treatments and therapy's section and take all this new found knowledge to that excellent

listening doctor

of yours and hopefully we can get you started on the second half of your battle.

Lefty...!

"When money's tight and is hard to get
And your horse has also ran,
When all you have is a heap of debt
A PINT OF PLAIN IS YOUR ONLY MAN."
— Flann O'Brien

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!