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MichelleP12

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Re: A 5 year old needs some help
Reply #50 - Nov 16^th, 2009 at 10:29am

It's on facebook? anybody can post the link? I only got onto facebook this past week so I don't know how to get around very much there.

I also made the phone call to the donor match when I read the story about those cute little kids, but was declined until I get my high blood pressure under control. when I do, will contact them again, as I put the number (and website) into my cellphone.
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Michelle in K.C., MO

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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: A 5 year old needs some help Reply #51 - Nov 16^th, 2009 at 1:07pm I don't know how I missed this! I have tears in my eyes after reading the latest update. Thank you God and Jacob is still in my thoughts and prayers as well!! Here's to nothing but happy milestones ahead! mel
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cash5542 CH.com Hall of Famer Offline I love YaBB 1G - SP1! Posts: 1243 x1\|Ocean Pines\|USA\|usa\|498\|141\|MD,Maryland Gender:	Re: A 5 year old needs some help Reply #52 - Nov 16^th, 2009 at 1:20pm I didn't miss this thread, just speechless. So unfair that a child should have to go through so much. Is there anything we can do, send cards, stuff to do in the hospital, books ANYTHING!!!! ????Poor litle guy, but he looks like a real trooper! My prayers and thoughts are with the family. Charlotte
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: A 5 year old needs some help Reply #53 - Nov 16^th, 2009 at 7:05pm Jacob, all we have still heading your way, keep the fight! love B&A
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Val_ CH.com Sponsor Offline There is nothing permanent except change. Posts: 252 Bay Area, CA Gender:	Re: A 5 year old needs some help Reply #54 - Nov 16^th, 2009 at 7:43pm Ooooohhhh yeah. Glad to keep hearing things are moving in the right direction. I keep gettin little reminders and think of you all often Jacob and fam - just got my little donor card in the mail the other day, and have gotten other things from them as I have kept reading your updates. Keeping you in my thoughts. Val
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Jrcox CH.com Veteran Offline I Love CH.com! Posts: 123 FARMINGTON, MN Gender:	Re: A 5 year old needs some help Reply #55 - Nov 16^th, 2009 at 10:50pm I wish there was more I could do. ((hug)) Jrcox
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Pinkfloyd

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Re: A 5 year old needs some help
Reply #56 - Nov 18^th, 2009 at 12:14am

Thanks you all for your continued support.

Jacob has been having a real tough time of things. I suppose its all to be expected but that doesn't make it any easier to witness.

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He's going through the host vs donor disease stage, which is expected and being handled but it's showing up as bad rashes.

When he is allowed to be discharged to the isolation home, where he'll be for about 3 months, I'll post an address so those of you that would like to send a card, can send it.

Thanks again,
Bob

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Pinkfloyd

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Re: A 5 year old needs some help
Reply #57 - May 5^th, 2010 at 5:31pm

I know a lot of you were following this story and I wanted to give you all the latest update from Jen. Thank you all from me for your continued support. It is incredible how much support like that can mean to people in an ordeal like this.
Helping to keep the family strong and able to focus helped keep Jacob strong, no doubt.
--

Thank you everyone for your prayers. Through Gods good will and your prayers Jacob is on his way to a great long recovery. He is going back to school today for the first time since October 9th. Transplant was October 21st and he is doing well. The Monosomy 7 blood disease and Leukemia is gone! We are just battle Graft vs. Host disease which could take anywhere from 1 - 5 years.

Thank you again for your continued prayers to get him to 100%.

God Bless you
Mike and Jen

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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: A 5 year old needs some help Reply #58 - May 5^th, 2010 at 5:38pm Wow that is such great news. I lost my own dad to Leukemia 39 years ago this Sunday and am so thankful that you have a successful story!
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: A 5 year old needs some help Reply #59 - May 5^th, 2010 at 5:59pm Got the update on FB today. SO SO happy for Jacob!!!!
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: A 5 year old needs some help Reply #60 - May 5^th, 2010 at 6:22pm The power of prayer and giving. . . Wonderful update!
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BigMatt

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Re: A 5 year old needs some help
Reply #61 - May 5^th, 2010 at 6:37pm

So glad to hear he is doing better and back to school.
Please post a newer photo of the little guy, the one above made my heart sink when I saw it.
The look on his face is just heartbreaking, it is so unfair for someone so young to have to deal with such pain, we are older and even though pain is still not easy to deal with we can at least understand it but someone so young just does not, that picture is going to haunt me for a while but at least I know he is doing better now, thanks for updating us on him and again so glad he is doing better.

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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: A 5 year old needs some help Reply #62 - May 5^th, 2010 at 6:47pm Whew. As I said before: This kid needed a break. I guess things are looking up a bit. That picture is something. Praying for more good stuff. Charlie
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: A 5 year old needs some help Reply #63 - May 5^th, 2010 at 7:05pm That's great news, the prayers will continue. What a little fighter. Joe
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: A 5 year old needs some help Reply #64 - May 5^th, 2010 at 7:59pm How good is that!!! Such a wonderful update....makes our day for sure!!!
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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: A 5 year old needs some help Reply #65 - May 5^th, 2010 at 8:13pm Thank you for that wonderful news...Jacob has never been far from my thoughts...Happy dance time! Best, Jon
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Pinkfloyd

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Re: A 5 year old needs some help
Reply #66 - Jun 16^th, 2010 at 7:36pm

Here's a brief update on Jacob.

He's doing as well as can be expected but is still battling Host vs. Donor disease as you can see. Trying to enjoy the summer.

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He has had lot's of support from many places and different people. Just like the support here, it sometimes is as helpful for the family as it is for Jacob.

Coach Quenneville of the WORLD CHAMPION BLACKHAWKS (Whoooo Hoooo) stopped in at Children's Memorial and Jacob and his brother Zack got to see and touch THE Cup. As you can see, the team isn't just bringing it to bars and talk shows.

Thanks for all your continued support,
Bob
Did I mention the Blackhawks are Stanley Cup Champions???

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"those who torment us for our own good will torment us without end, for they do so with the approval of their own conscience."
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: A 5 year old needs some help Reply #67 - Jun 16^th, 2010 at 7:58pm How cool is that! Little Jacob is a fighter for sure. Continued prayers and positive thoughts. Jackie Oh.....what was that trophy for?
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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: A 5 year old needs some help Reply #68 - Jun 17^th, 2010 at 6:31am That a boy Jacob... Thanks for the Pics Bob.. Lefty
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BigMatt CH.com Hall of Famer Offline Live to ride, ride to live. Posts: 1089 Mountain View, CA Gender:	Re: A 5 year old needs some help Reply #69 - Jun 17^th, 2010 at 10:44am Still praying for the little guy, glad he is able to have some fun and not many people can say they have seen let alone touched that cup, how cool is that?
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