Click this link to read a post I like on the clusterheadaches.com message board...

bejeeber

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Neuro appt. tomorrow - med suggestions?
Sep 9^th, 2009 at 12:51pm

I'll be hoping to get time to re-scan the site here for the latest, most promising medical treatment info before my appointment tomorrow, but would also welcome suggestions regarding what to be asking about/for, especially ones based on what seems to be working for lots of the folks here.

So far I'm taking Neurontin/preventative (not sure yet whether it will kick in), plus O2 and imitrex for abortive. I think I've had about enough prednisone for this lifetime, and hope to avoid it for this episode.

I'm going to look into that Lithium/Verapamil conbo I've read about here - those drugs haven't worked for me singularly, but hey I'll try a snappy cocktail. Cheesy

The Zyprexa has my attention also, and I may ask about a testosterone level test...

------------------------

About the new neurologist tomorrow: I don't have huge hopes. Here I am right in a city full of very reputable major medical centers, including Vanderbilt, so close by, but there is no headache specialist in this town who will see a new patient. Period. Well OK, there is one that will schedule an appointment for November. Thanks so much, that's a tremendous help for the episodic cluster sufferers.

I found one neurological group within actual walking distance, and got assigned to a Dr. when I told the receptionist this was for cluster headaches, but I know that Dr. is not a headache specialist

The whole neurologist thing has been a bit of a joke around here IMO, but I have lost plenty of respect for the medical profession in general, and tend to see them as jokers anyway.

There's a real chance that I'll be more informed about clusters than the Dr. will be - I'm not exactly going to be just nodding my head and going along with whatever she says, but I'll humor her some Tongue

, and will keep the jumbo chip on my shoulder hidden and out of sight. Tongue

I could drive 45 min. out of town to see a headache lady who says on her website that she's all expert and junk, but the way she also goes off on her botox injections for migraine, I'm not sure if that's getting a little huckster-ish there. Plus her office hasn't returned my call.

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« Last Edit: Sep 9^th, 2009 at 6:07pm by bejeeber »

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Batch CH.com Alumnus Offline Control The Beast With O2 & D3 You Must Posts: 3706 Bremerton, WA Gender:	Re: Neuro appt. tomorrow - med suggestions? Reply #1 - Sep 9^th, 2009 at 2:49pm Check your PMs.
Back to top	You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there IP Logged

Bob Johnson

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Re: Neuro appt. tomorrow - med suggestions?
Reply #2 - Sep 9^th, 2009 at 2:50pm

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
================
Michigan Headache & Neurological Institute for another list of treatments and other articles:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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Bob Johnson

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bejeeber

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Re: Neuro appt. tomorrow - med suggestions?
Reply #3 - Sep 9^th, 2009 at 4:08pm

Oh yeah, I might wanna inquire about the occipital block thingy too (The injection - I'll check to see if I have the name right though Cheesy

), so feel free to opine on that.

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Neuro appt. tomorrow - med suggestions? Reply #4 - Sep 9^th, 2009 at 4:28pm That would the Occipital Nerve Block (the injection thingy). The one with the implants and wires is called the Occipital Nerve Stimulator.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

bejeeber

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Re: Neuro appt. tomorrow - med suggestions?
Reply #5 - Sep 9^th, 2009 at 5:02pm

OK, Occipital Nerve Block. Must write that down. Thanks.

Also will be trying to look into any risks involved with that one.

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Neuro appt. tomorrow - med suggestions? Reply #6 - Sep 9^th, 2009 at 5:11pm The only risk I can think of is a needle in the back of my head! (I don't do needles very well. I know - it's irrational)
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Lawrence CH.com Veteran Offline There WILL be a cure Posts: 163 Merrillville, Indiana Gender:	Re: Neuro appt. tomorrow - med suggestions? Reply #7 - Sep 9^th, 2009 at 6:03pm Good luck Jeeb...
Back to top	Weapons Check: O2 grenades--Verapamil hollow points-- Prednisone Sniper Rifle--Rivea corymbosa Nerve Gas IP Logged

JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Neuro appt. tomorrow - med suggestions? Reply #8 - Sep 9^th, 2009 at 6:24pm Brew wrote on Sep 9^th, 2009 at 5:11pm: The only risk I can think of is a needle in the back of my head! (I don't do needles very well. I know - it's irrational) Look at it this way Brew... At least you won't see it coming Good Luck Bejeeber!
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or An eye for eye only ends up making the whole world blind. M.K. Gandhi If you are going through hell...Just keep going IP Logged

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