Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
How to break out of chronical (Read 1980 times)
pedropedro
CH.com Newbie
*
Offline


I love YaBB 1G - SP1!


Posts: 11
x0|schiedam|Netherlands||0|0|
Gender: male
How to break out of chronical
Sep 13th, 2009 at 5:15am
 
Until now I used to have the typical 8 weeks cycles which would come back after 20 months (had them for 15yrs). Now I am in it for 5 months already which is getting me worried. The lasts months I was reasonably in control with 360mg verapamil, O2 and immigran when necessary. But now it seems like I am getting more attacks and they are more and more severe. The O2 doesn't seem to help anymore with a severe attack and only brings it down to "almost gone" and if I rest again it kicks in heavily. Only immigran does seem to do the work but is a last resort for me.
The last days I have often pain in my head if I press on the right side of my skull and I have almost constant shadowing and I it almost like i can feel it moving around in my head.
Does anybody have an idea on how much biorythm related this is or in other words if I was to travel to different time zones in the globe might I be helping to break the cycle?
After 5 months I am sick and tired of it and I try to keep up the good spirit for family and work but it is not easy.
Has anybody ever been successfull breaking out of chronical by themselves and ofcourse I would like to know how?
Thanks for the great board, site and members!
Back to top
  
 
IP Logged
 
MattyAA
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 242
Poland, EU
Gender: male
Re: How to break out of chronical
Reply #1 - Sep 13th, 2009 at 5:33am
 
Hmm I think Cluster Busting or Prednisone has potentials to bust cycle.
Back to top
  
 
IP Logged
 
pedropedro
CH.com Newbie
*
Offline


I love YaBB 1G - SP1!


Posts: 11
x0|schiedam|Netherlands||0|0|
Gender: male
Re: How to break out of chronical
Reply #2 - Sep 13th, 2009 at 5:42am
 
Thanks Matty, but what is cluster busting....?
Back to top
  
 
IP Logged
 
MattyAA
CH.com Veteran
***
Offline


I Love CH.com!


Posts: 242
Poland, EU
Gender: male
Re: How to break out of chronical
Reply #3 - Sep 13th, 2009 at 6:30am
 
Its use of hallucinogens like psylocybin or RC seeds in sub-hallucinogenic dose, many people with Cluster Headaches reported cessation of headaches long-term or decrease in severity and frequency of them.
Back to top
  
 
IP Logged
 
Joni
CH.com Old Timer
****
Offline


Knowledge is Power


Posts: 476
Gender: female
Re: How to break out of chronical
Reply #4 - Sep 13th, 2009 at 7:03am
 
pedropedro wrote on Sep 13th, 2009 at 5:15am:
Until now I used to have the typical 8 weeks cycles which would come back after 20 months (had them for 15yrs). Now I am in it for 5 months already which is getting me worried. The lasts months I was reasonably in control with 360mg verapamil, O2 and immigran when necessary. But now it seems like I am getting more attacks and they are more and more severe. The O2 doesn't seem to help anymore with a severe attack and only brings it down to "almost gone" and if I rest again it kicks in heavily. Only immigran does seem to do the work but is a last resort for me.
The last days I have often pain in my head if I press on the right side of my skull and I have almost constant shadowing and I it almost like i can feel it moving around in my head.
Does anybody have an idea on how much biorythm related this is or in other words if I was to travel to different time zones in the globe might I be helping to break the cycle?
After 5 months I am sick and tired of it and I try to keep up the good spirit for family and work but it is not easy.
Has anybody ever been successfull breaking out of chronical by themselves and ofcourse I would like to know how?
Thanks for the great board, site and members!


Apparently, cycles can change like that according the the folks on this site.  My cycles have also been for 8 weeks about once a year so far, like yours.  However, I have had cycles with more intense headaches that increased unusually and twice I have had 2 cycles back to back with only a month apart.  One of the times my blood pressure was high and my doctor said it was keeping me from recovering and he was correct because as soon as we got that down, they stopped.  This time, I have had a sinus/ear infection and it has seemed to have intensified my clusters and the number of hits I have had until I got an antibiotic.  The two times I had cycles back to back were when I took Prednisone and stopped it too soon (or didn't taper it slowly enough).  I would suggest trying to figure out if anything is different this time about your health or what you are doing.  Have you tried Zyprexa?  It worked for me this time and it can be taken with 02 and Verapamil.  Good luck to you!!!

Joni   Smiley
Back to top
  

Experience:  That most brutal of teachers.  But you learn, my God do you learn.  -C. S. Lewis
 
IP Logged
 
JustNotRight
CH.com Sponsor
***
Offline


CH version 15.0.8 member
since 2005 aka GingerS224


Posts: 1300
Wilkes-Barre, Pa (USA)
Gender: female
Re: How to break out of chronical
Reply #5 - Sep 13th, 2009 at 5:17pm
 
Been chronic for years, no permanent way out that I know of, but hey if you find one, PLEASE LET US ALL KNOW.
Back to top
  

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
An eye for eye only ends up making the whole world blind.
M.K. Gandhi

If you are going through hell...Just keep going
WWW JustNotRight gngr.stewart GingerS224  
IP Logged
 
Joni
CH.com Old Timer
****
Offline


Knowledge is Power


Posts: 476
Gender: female
Re: How to break out of chronical
Reply #6 - Sep 13th, 2009 at 6:13pm
 
JustNotRight wrote on Sep 13th, 2009 at 5:17pm:
Been chronic for years, no permanent way out that I know of, but hey if you find one, PLEASE LET US ALL KNOW.


Ginger-

I cannot imagine being a chronic sufferer!!!  Bless your heart (and head)!  I am so sorry!!!

-Joni
Back to top
  

Experience:  That most brutal of teachers.  But you learn, my God do you learn.  -C. S. Lewis
 
IP Logged
 
JustNotRight
CH.com Sponsor
***
Offline


CH version 15.0.8 member
since 2005 aka GingerS224


Posts: 1300
Wilkes-Barre, Pa (USA)
Gender: female
Re: How to break out of chronical
Reply #7 - Sep 16th, 2009 at 8:16pm
 
Joni wrote on Sep 13th, 2009 at 6:13pm:
JustNotRight wrote on Sep 13th, 2009 at 5:17pm:
Been chronic for years, no permanent way out that I know of, but hey if you find one, PLEASE LET US ALL KNOW.


Ginger-

I cannot imagine being a chronic sufferer!!!  Bless your heart (and head)!  I am so sorry!!!

-Joni

So it Was you who gave me the CH Beast ??!!   Angry
Grin
Just kidding and not your fault sweetie but thanks for the heart felt words, they are appreciated.
Back to top
  

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
An eye for eye only ends up making the whole world blind.
M.K. Gandhi

If you are going through hell...Just keep going
WWW JustNotRight gngr.stewart GingerS224  
IP Logged
 
Lawrence
CH.com Veteran
***
Offline


There WILL be a cure


Posts: 163
Merrillville, Indiana
Gender: male
Re: How to break out of chronical
Reply #8 - Sep 17th, 2009 at 9:16am
 
MattyAA wrote on Sep 13th, 2009 at 6:30am:
Its use of hallucinogens like psylocybin or RC seeds in sub-hallucinogenic dose, many people with Cluster Headaches reported cessation of headaches long-term or decrease in severity and frequency of them.


i cant wait to try these seeds Cool
Back to top
  

Weapons Check:
O2 grenades--Verapamil hollow points--
Prednisone Sniper Rifle--Rivea corymbosa Nerve Gas
 
IP Logged
 
FramCire
CH.com Alumnus
***
Offline


Life like a froward child
must be humored a little


Posts: 1710
Bolivar, MO USA
Gender: male
Re: How to break out of chronical
Reply #9 - Sep 17th, 2009 at 12:10pm
 
1.  Prednisone used to give me a few days full relief but never broke my cycle.  I do suggest trying though.

2.  I use Zyprexa as an abortive but it can be tough to get a doc to give you a script for it.  Have you tried energy drinks with caffeine AND Taurine?

3.  What flow rate of O2?  Have you tried higher?

4.  Don't let the length make you defeated.  I had a super long cycle last time and have been most PF for a long time since.  I should be starting my fall cycle soon, but so far, so good.

5.  5 months is not chronic.  I know it doesn't really effect your question. but just wanted to clarify that.  If being chronic scares you, don't worry, you may not be.
Back to top
  

You've overstayed your welcome since the day we met but it doesn't seem to matter to you.  No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
 
IP Logged
 
daver2
CH.com Newbie
*
Offline


I love YaBB 1G - SP1!


Posts: 5
x0|toronto|Canada||0|0|ON,Ontario
Re: How to break out of chronical
Reply #10 - Oct 2nd, 2009 at 3:48pm
 
I was chronic for 10+ years...and while this is never a popular answer...quitting smoking changed me to episodic. It took 6-8 months to happen but I went from chronic to twice a year (Spring and Fall). That was about 8 years ago...and while my quitting hasn't lasted that long (3 years) i remain episodic to this day. I started RC seeds a few years ago and this year I skipped the spring dance with the beast altogether. Unfortunately my fall appointment has arrived, seeds can't seem to shake this one, maybe they're getting too old.

So if you are chronic and you smoke...you might want to consider it...I can't even imagine what chronic is like anymore, at least i was young and 'invincible' back then.

good luck to you all.

D
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: How to break out of chronical
Reply #11 - Oct 2nd, 2009 at 4:56pm
 
Correlation does not equal causation.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Chad
CH.com Hall of Famer
*****
Offline




Posts: 738
Emmaus, PA
Gender: male
Re: How to break out of chronical
Reply #12 - Oct 2nd, 2009 at 5:40pm
 
daver2 wrote on Oct 2nd, 2009 at 3:48pm:
I was chronic for 10+ years...and while this is never a popular answer...quitting smoking changed me to episodic. It took 6-8 months to happen but I went from chronic to twice a year (Spring and Fall). That was about 8 years ago...and while my quitting hasn't lasted that long (3 years) i remain episodic to this day. I started RC seeds a few years ago and this year I skipped the spring dance with the beast altogether. Unfortunately my fall appointment has arrived, seeds can't seem to shake this one, maybe they're getting too old.

So if you are chronic and you smoke...you might want to consider it...I can't even imagine what chronic is like anymore, at least i was young and 'invincible' back then.

good luck to you all.

D
I can agree with a lot of this post.  I quit smoking 5 years ago this coming Feb.  My cluster cycles have not exceeded 3 weeks since I quit.  I use to get 2 cycles a year for 4-7 weeks.  By stander smoke almost immediately triggers me anyway.
What i'm saying is if there is a slight chance to reduce CH activity, wouldn't be beneficial to those who smoke to either cut down or quit.  It's not worth the headache.  I can't tell anybody what to do because heck, I still love my occasional cigar and I miss cigs.
I also can't say that smoking is a trigger for everyone.
It just is for me, just like beer/alcohol, petroleum fumes, perfume/cologne, nitrates, chocolate etc....

Now, onto seeds.  This past cycle was down to 13 days and I'm quite sure i'm in remission.  I had 1 hit this week which was yesterday.  I crushed, soaked and strained 40 seeds last night.  Haven't had a CH since.
I dosed 2 weeks ago right at the start of cycle.  I did 60 then from a new order so I assume they're fresh, but you'll never know.  I feel great right now.  I have been taking 25 seeds/month for the past year and skipped my spring cycle this year all together.  LSA is just flat out amazing.  I suggest many to try clusterbusting because the success rate is high.

Sorry for the rant.

PF wishes to all!

Chad
Back to top
  

When the PAIN starts, I FIGHT back!

Rivea Corymbosa seeds were my KO punch, now D3 is the front runner!
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!