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bran4on

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indomethacin
Sep 30^th, 2009 at 10:34pm

has anyone tried indomethacin or been on it for an extended period of time for cluster headaches. mine are chronic. i dont get the luxury of a remission period. its been like this all my life. i'm 22 and started having them when i was 7 or 8. this medicine works really really well. ive been on it for about 6 months i still get daily headaches but not as many. im kind of worried about the long term because this is a harsh medicine on your body. just let me know what you think about this medicine

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Potter

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Re: indomethacin
Reply #1 - Sep 30^th, 2009 at 10:39pm

bran4on wrote on Sep 30^th, 2009 at 10:34pm:

has anyone tried indomethacin or been on it for an extended period of time for cluster headaches. mine are chronic. i dont get the luxury of a remission period. its been like this all my life. i'm 22 and started having them when i was 7 or 8. this medicine works really really well. ive been on it for about 6 months i still get daily headaches but not as many. im kind of worried about the long term because this is a harsh medicine on your body. just let me know what you think about this medicine

It could kill ya. Oxygen won't.

Potter

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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: indomethacin Reply #2 - Sep 30^th, 2009 at 11:11pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Here is the info that you requested.
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Marc

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Re: indomethacin
Reply #3 - Oct 1^st, 2009 at 6:11am

I had some limited success with Indomethacin as an abortive when I took very high doses at the very first hint of an attack. Never gave me gastric problems, but it would make me feel kind of strange for a few minutes.

In those days, I was desperate for pain relief so I would take any little help I could get. It was before I learned that there are better ways for me to manage MY Cluster headaches.

Marc

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jlovins

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Re: indomethacin
Reply #4 - Jan 24^th, 2010 at 11:23pm

bran4on wrote on Sep 30^th, 2009 at 10:34pm:

has anyone tried indomethacin or been on it for an extended period of time for cluster headaches. mine are chronic. i dont get the luxury of a remission period. its been like this all my life. i'm 22 and started having them when i was 7 or 8. this medicine works really really well. ive been on it for about 6 months i still get daily headaches but not as many. im kind of worried about the long term because this is a harsh medicine on your body. just let me know what you think about this medicine

Are you still on Indomethacin? I've been on it since Dec, 75 mg once a day. Increased to twice a day in January, and the beast finally calmed down last week!
I, too, am worried about the long term effects. I have a lot of "ringing" in my ears and feel dizzy a lot. I'm also on Topamax... Going to discuss with my neuro on Thursday, this week...

-jason

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Karla CH.com Alumnus Offline One of Many and Never Alone - Join OUCH Posts: 3837 x1\|Madison WI USA Gender:	Re: indomethacin Reply #5 - Jan 25^th, 2010 at 9:23am I took indomethacin for 5 months and got an immediate response and was pain free for that 5 month time period. However, after 5 months the beast found my address and I have never been able to get the medicine to help me again.
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MattyAA CH.com Veteran Offline I Love CH.com! Posts: 242 Poland, EU Gender:	Re: indomethacin Reply #6 - Jan 26^th, 2010 at 11:31pm What kind of Indometacin you took? what was dose and slow release or some other type?
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ordiefam CH.com Newbie Offline I Love CH.com! Posts: 21	Re: indomethacin Reply #7 - Feb 3^rd, 2010 at 2:06pm I have taken it before I even knew about the cluster Headaches. It helped alot. I was taking 50mg three times a day. Then got off it, headaches came back, went on it again and they are still here. So i think my body built up a tolerance for it.. Torydol does not even work really well for me either.
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Not4Hire

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Re: indomethacin
Reply #8 - Feb 4^th, 2010 at 11:14am

I've taken indomethacin, both extended release(75mg/day) and regular(50mg/twice a day) for about 15 years. I was taking it before the CH showed up and it has had no effect on my flavor of the MOFO. It is prescribed to kill off paroxysmal hemicrania

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and is an anti-inflammatory used for arthritis and gout. I've never had any stomach problems with it, but some people do. My doctor regularly tests my kidneys and liver for any problems, but so far, so good. The indo definitely helps my arthritis and is cheaper and safer than opiates.

Good luck and here may be the answer to your affliction:

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(edit to fix link)

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« Last Edit: Feb 6^th, 2010 at 9:05am by Not4Hire »

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Mantra: This will NOT kill me...This will not KILL me...This will not kill ME..

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E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: indomethacin Reply #9 - Feb 4^th, 2010 at 11:51am I took it for idiopathic stabbing heading. When I was trying lithium for CH I had to come off. The hardest med I ever had to come off of. I had obscenely painful rebound headache
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misee CH.com Newbie Offline I Love CH.com! Posts: 9	Re: indomethacin Reply #10 - Feb 5^th, 2010 at 3:50pm I was just put on it 3 weeks ago and have not had a headache since...I was just diagnosed with paroxysmal Hermicrania and not cluster headaches...I thought for the past 6 months they were ch. I had tried O2 verapimil, sumatriptan, and the injectionss. This was the only thing that worked...Good luck
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