I have been on Topamax for over 4 weeks for migraines. I just now upped the  Topamax to 100mg. At first I did a couple of silly things but getting rid of the pain was worth staying on the Topamax. Now I feel like I am losing my mind.

I am not a rocket scientist or anything but I wouldn’t usually consider myself stupid. Lately though I have been forgetting and messing up the simplest things. I work as a receptionist so my job all day is talking. On the phone, when people come in the door…I have to talk. When I have been answering the phone I mess up my words, say the wrong thing, etc. Also I can have a conversation with someone and then later forget it or not remember it correctly. This is not like me at all.  I get lost when I am driving to familiar places. I forget peoples’ names. The other day someone called and asked to speak with someone and I could not remember who that person was. I knew that I knew the name but it was like I could not place it. It took me awhile and I was trying to stall but the person on the other end was getting a little irritated. Rightly so. It was so weird. The person they were asking for I work with everyday!!! I know who she is. I really feel like I am losing my mind.

  Does this wear off? If I keep taking it is it going to get better? If not, can I just stop it today or do I need to wean off? I know I need to talk to my neurologist and I plan to. Before I spend the money on yet another visit and go in there though I would like some first hand experiences from people that have experience with it. I WANT this medication to work. More like I NEED this medication to work but I can’t go on like this for much longer. 

As far as I'm concerned, meds in this class are still experimental: data are not in re. effectiveness. Too many docs are willing to play with the latest "X" in the literature vs. starting with the older treatments which have a long track record. IF they don't work, then you consider shifting to the newer products.
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Here is a link to read and print and take to your doctor.  It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S.  (2002)
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Michigan Headache & Neurological Institute for another list of treatments and other articles:

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As someone who HATES perscription medicine and someone who took Topamax I can tell you that this was one of the really ones I really disliked. I took Topamex for a little over a month before I stopped. I would get pricklies in my feet (like they had fallen asleep) all the time! I had trouble concentrating as well. I was taking an online class at the time and would watch the lectures and not retain one peice of information. I began researching and found that these side effects were common. My doctor is now trying to get me to take Lamictal. When I researched this medicine I found that it is linked with Stevens Johnsons Syndrom; It is as common as 1/1000 people who take the medicine! Boy am I glad I researched it before taking it! So my advice would be to really look into perscriptions before taking them and if you aren't happy with the side effects so far, stop taking it. There are better options out there. Often if you call a doctors office they will call in alternative perscriptions for you that you can research before choosing to purchase.

Hope this helps!
-Holli

It did make me dopey.  I am not sure it ever returned to normal, not that i have ever been normal!

Joshua wrote on Nov 9^th, 2009 at 1:27pm:


I will respectfully say that if it worked for me, I would have lived with those side effects - easily!

Marc