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jobs (Read 2337 times)
davedmk
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Nov 26th, 2009 at 8:20pm
 
hello ,i was just wondering how everyone gets on with being employed as i cant keep a job and are we covered by the dissability discrimination act? Cheesy
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Brew
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Re: jobs
Reply #1 - Nov 26th, 2009 at 9:18pm
 
The burden of proving disability is on you, and it's an awfully high hurdle. With all the different medication options available today, it's pretty difficult to prove you can't work.
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seaworthy
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Re: jobs
Reply #2 - Nov 26th, 2009 at 10:34pm
 
I don't understand why you can't work in the first place. There are plenty of pain management options.
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davedmk
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Reply #3 - Nov 27th, 2009 at 3:43am
 
well to put a few people straigjt on a thing or two!!!      I have on average two 10+kips per day which has made it pretty difficult to stay at work after an attack,also if meds do not seem to help no matter what meds you have tried then its a case of ride it out the best i can ,having only been diagnosed four months ago but a sufferer for twelve years the old how bad can a headache be has popped up for me many times over the years and employers have terminated me under the impression that there is nothing wrong and i just want time off .IF ONLY THEY KNEW.I still am yet to find an employer who would be happy to give me a position knowingly understanding what can happen when i have an attack and also some companys will not let people have an oxygen cylinder in the workplace because of health and safety reasons.ps i think it very strange that i feel the need to explian myself on here ,i asked a simple question ,i thought we was on here to support each other?
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LeLimey
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Re: jobs
Reply #4 - Nov 27th, 2009 at 4:42am
 
Yes it IS covered by the disability act here in the UK. You are protected at work and there is a test case on it

Check with OUCH UK, they can give you ALL the info on it!

hope that helps
Helen
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davedmk
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Reply #5 - Nov 27th, 2009 at 4:55am
 
well thats good to know ,i lost my last job in april last year ,i did not have a diagnosis at that time ,i tried an appeal with the unions help but to no avail,now i just need to find a sympathetic employer ,,,,that should not be too hard then!!!! lol.
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LeLimey
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Re: jobs
Reply #6 - Nov 27th, 2009 at 5:00am
 
found the link

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Re: jobs
Reply #7 - Nov 27th, 2009 at 8:11am
 
davedmk wrote on Nov 27th, 2009 at 3:43am:
well to put a few people straigjt on a thing or two!!!      I have on average two 10+kips per day which has made it pretty difficult to stay at work after an attack,also if meds do not seem to help no matter what meds you have tried then its a case of ride it out the best i can ,having only been diagnosed four months ago but a sufferer for twelve years the old how bad can a headache be has popped up for me many times over the years and employers have terminated me under the impression that there is nothing wrong and i just want time off .IF ONLY THEY KNEW.I still am yet to find an employer who would be happy to give me a position knowingly understanding what can happen when i have an attack and also some companys will not let people have an oxygen cylinder in the workplace because of health and safety reasons.ps i think it very strange that i feel the need to explian myself on here ,i asked a simple question ,i thought we was on here to support each other?

Kind of defensive, eh? I was merely telling you that you will be the one who has to prove it - the state won't merely accept what you're saying as fact.

I'm not here to coddle, I'm here to support. And support in this case means telling you like it is. Good luck.
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deltadarlin
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Reply #8 - Nov 27th, 2009 at 9:30am
 
Also keep in mind, that the employment laws in the UK and the employment laws in the US are nowhere near similar.  Most US employess do NOT have anywhere near the protections offered to employees of the UK. 

Yes, this is a support board, but keep in mind that most of these people (even the chronics) work.  It's not a choice they have the luxury of making.
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Grinner62
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Re: jobs
Reply #9 - Nov 27th, 2009 at 9:49am
 
davedmk wrote on Nov 27th, 2009 at 4:55am:
i just need to find a sympathetic employer


Just remember, Sympathy comes between Shit and Syphilis in the dictionary.
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seaworthy
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Reply #10 - Nov 27th, 2009 at 9:56am
 
Quote:
well to put a few people straigjt on a thing or two!!!


Didn't know we were bent.

Quote:
I have on average two 10+kips per day which has made it pretty difficult to stay at work after an attack,also if meds do not seem to help no matter what meds you have tried then its a case of ride it out the best i can ,having only been diagnosed four months ago but a sufferer for twelve years the old how bad can a headache be has popped up for me many times over the years


Two a day? I wish I were to get two a day.
Diagnosed only 4 months ago? Then how many protocols could you possibly have tried. Read the site. Learn
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LeLimey
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Re: jobs
Reply #11 - Nov 27th, 2009 at 9:56am
 
Grinner62 wrote on Nov 27th, 2009 at 9:49am:
Just remember, Sympathy comes between Shit and Syphilis in the dictionary.



GRINNER!!!

Where the bloody hell have you been you brat?! You never call, you never write.. I'm going to slap you silly for disappearing for so long! LOL
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Charlie
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Reply #12 - Nov 27th, 2009 at 10:03am
 
Disability took me more than two years and mine was for epilepsy and being a geezer, not CH. I was lucky in that I had a couple of employers that kept me on but two were sorta friends of mine and I worked cheap.

By the way, not being allowed O2 at work sounds discriminatory to me. Your employer needs more information about this horror.

I sure hope you get a break soon in any event.

Charlie
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davedmk
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Reply #13 - Nov 27th, 2009 at 10:37am
 
ok firstly let me apolagise for being so abrupt earlier a bad time lately ,once again my apolagys.
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Jimi
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Reply #14 - Nov 27th, 2009 at 11:54am
 
Apology accepted.
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Callico
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Re: jobs
Reply #15 - Nov 27th, 2009 at 5:31pm
 
Dave, first of all understand that bill and Don were not jumping on you.  From the amount of info you gave in the beginning post there was nothing for them to advise.  I've been a clusterhead for over 30 yrs, with the last 7 chronic.  Until I found this site 5 or 6 yrs ago I had no medical help at all.  I went totally med free, yet I was able to keep a job.  it was not necessarily the type of job I wanted, but I kept food on the table and a roof over my head, and raised 5 kids.  (two are still at home)  You can do it.  It is a mindset that you have to develope that says, "I have a medical issue, so what!"  You just have to pick up the pieces you have and deal with them as they are, not as you wish. 

Yes, we support each other here.  Sometimes that comes in the form of a swift kick in the butt, (lovingly applied), and sometimes with sympathy and compassion.  Sometimes they go together.

At this point I would suggest you do some serious reading on here.  You will have to develop your own protocol for dealing with the beast. No two of us react the same way to it, and if you wait for your Dr to "cure" you, you will be waiting a long long time!

Please don't take offense at what you have been advised by any of us.  It is because we care.  If we did not we would not be here.

Jerry
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Karla
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Re: jobs
Reply #16 - Nov 28th, 2009 at 7:17am
 
I was getting 8 ch kip 10 a day each lasting 1 1/2 hrs long.  That is roughly 12 hours of intense pain a day not to include all the hours of shadow pain etc.  I was not responsive to any meds at all for close to 2 1/2 years.  I was chonic meaning I got them daily like that for the 2 1/2 years with no break.  I applied for disability based on ch and depression.  I was not approved for the ch but was for the depression.  Go figure.  It is very hard to get it in the usa. If you can be approved for it in the UK you are much ahead of us in that aspect. However, please be warned that once you go on disability it gets harder and harder for you to return to the field you once enjoyed as a profession without further additional schooling.  sucks but it can be a big hole of no getting out of once your in.  Be careful.
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« Last Edit: Nov 28th, 2009 at 7:42am by Karla »  

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BarbaraD
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Re: jobs
Reply #17 - Nov 28th, 2009 at 9:26am
 
Dave,

We ARE here for support and we DO understand where you're coming from.

I'm chronic (have been since '97) and know how hard it is to work while getting hit. I'm still doing it. Up until a few years ago I was also taking care of a disabled husband (a stroke victim) along with working, so it's not easy, but we're a tuff bunch around here.

My suggestion is to read what's available on this site and get on with living.... that's what most of us do.

GOod luck...

Hugs BD Kiss
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Re: jobs
Reply #18 - Nov 28th, 2009 at 2:19pm
 
At times it can be tough to get around at work while being attacked. I've taken disability once,(my work suggested it) otherwise, I would just do what I can. Luckily, my job let me bring my o2 tank to work. Otherwise, you got redbull, coffee and/or imitrex for abortive methods.  But it's not the attacks that bothered me. It was the lack of sleep.

Grinner  fantastic post by the way.

Good luck
PFDAN
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BigMatt
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Re: jobs
Reply #19 - Dec 1st, 2009 at 11:21am
 
I would suggest looking for employment in medical, I work for doctors and they all understand what I am going through and are very kind and understanding. I have SUNCT not CH but it is similar in many ways, my hits are not as painful as a CH hit but I have constant pain and it can get pretty bad and last for hours but I still work and try not to take any time off. My employer knows how hard I try to be at work and do a good job and are very supportive so much so that one of the head people has a coach in her office and tells me to use it to lay down whenever I need it. I have been here for four years now and am on my second cycle since being here, the first lasted two years this one started in January and is still going strong. I have no abortive for what I have and O2 does not help, all I can do is manage the pain with pain meds so I am a little doped up all day at work but still do everything I can to be sure I do a good job. Bottom line is there is nothing you can do to make it go away but you can except it and deal with it and whatever you do don’t let it win. I tell people I laugh about it because there is nothing else I can do. Attitude is everything be strong, be tough and show it you are not afraid and you will not let it win.
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