The burden of proving disability is on you, and it's an awfully high hurdle. With all the different medication options available today, it's pretty difficult to prove you can't work.

well to put a few people straigjt on a thing or two!!!      I have on average two 10+kips per day which has made it pretty difficult to stay at work after an attack,also if meds do not seem to help no matter what meds you have tried then its a case of ride it out the best i can ,having only been diagnosed four months ago but a sufferer for twelve years the old how bad can a headache be has popped up for me many times over the years and employers have terminated me under the impression that there is nothing wrong and i just want time off .IF ONLY THEY KNEW.I still am yet to find an employer who would be happy to give me a position knowingly understanding what can happen when i have an attack and also some companys will not let people have an oxygen cylinder in the workplace because of health and safety reasons.ps i think it very strange that i feel the need to explian myself on here ,i asked a simple question ,i thought we was on here to support each other?

well thats good to know ,i lost my last job in april last year ,i did not have a diagnosis at that time ,i tried an appeal with the unions help but to no avail,now i just need to find a sympathetic employer ,,,,that should not be too hard then!!!! lol.

davedmk wrote on Nov 27^th, 2009 at 3:43am:

Kind of defensive, eh? I was merely telling you that you will be the one who has to prove it - the state won't merely accept what you're saying as fact.

I'm not here to coddle, I'm here to support. And support in this case means telling you like it is. Good luck.

davedmk wrote on Nov 27^th, 2009 at 4:55am:


Just remember, Sympathy comes between Shit and Syphilis in the dictionary.

Grinner62 wrote on Nov 27^th, 2009 at 9:49am:



GRINNER!!!

Where the bloody hell have you been you brat?! You never call, you never write.. I'm going to slap you silly for disappearing for so long! LOL

ok firstly let me apolagise for being so abrupt earlier a bad time lately ,once again my apolagys.

Dave, first of all understand that bill and Don were not jumping on you.  From the amount of info you gave in the beginning post there was nothing for them to advise.  I've been a clusterhead for over 30 yrs, with the last 7 chronic.  Until I found this site 5 or 6 yrs ago I had no medical help at all.  I went totally med free, yet I was able to keep a job.  it was not necessarily the type of job I wanted, but I kept food on the table and a roof over my head, and raised 5 kids.  (two are still at home)  You can do it.  It is a mindset that you have to develope that says, "I have a medical issue, so what!"  You just have to pick up the pieces you have and deal with them as they are, not as you wish. 

Yes, we support each other here.  Sometimes that comes in the form of a swift kick in the butt, (lovingly applied), and sometimes with sympathy and compassion.  Sometimes they go together.

At this point I would suggest you do some serious reading on here.  You will have to develop your own protocol for dealing with the beast. No two of us react the same way to it, and if you wait for your Dr to "cure" you, you will be waiting a long long time!

Please don't take offense at what you have been advised by any of us.  It is because we care.  If we did not we would not be here.

Jerry

Dave,

We ARE here for support and we DO understand where you're coming from.

I'm chronic (have been since '97) and know how hard it is to work while getting hit. I'm still doing it. Up until a few years ago I was also taking care of a disabled husband (a stroke victim) along with working, so it's not easy, but we're a tuff bunch around here.

My suggestion is to read what's available on this site and get on with living.... that's what most of us do.

GOod luck...

Hugs BD

I would suggest looking for employment in medical, I work for doctors and they all understand what I am going through and are very kind and understanding. I have SUNCT not CH but it is similar in many ways, my hits are not as painful as a CH hit but I have constant pain and it can get pretty bad and last for hours but I still work and try not to take any time off. My employer knows how hard I try to be at work and do a good job and are very supportive so much so that one of the head people has a coach in her office and tells me to use it to lay down whenever I need it. I have been here for four years now and am on my second cycle since being here, the first lasted two years this one started in January and is still going strong. I have no abortive for what I have and O2 does not help, all I can do is manage the pain with pain meds so I am a little doped up all day at work but still do everything I can to be sure I do a good job. Bottom line is there is nothing you can do to make it go away but you can except it and deal with it and whatever you do don’t let it win. I tell people I laugh about it because there is nothing else I can do. Attitude is everything be strong, be tough and show it you are not afraid and you will not let it win.