Click this link to read a post I like on the clusterheadaches.com message board...

Jeannie

CH.com Sponsor

Offline

Live, Laugh, Love....

Posts: 2333
St Louis, Missouri
Gender: female

Re: ER Nightmare
Reply #25 - Nov 30^th, 2009 at 2:51pm

Quote:

Kimmie have you ever tried any of the longer acting triptans like zomig or frovatriptan?
Have you tried O2?
What about coffee and red bull? We might be able to help with those shadows!

Helen

I also have a very hard time with shadows. I am constantly plagued by a droopy, red eye and a sort of raw feeling. After dosing last night I am feeling today as if I will get hit any minute. ( It hasn't developed yet, Thank goodness!) I don't have 02. Would it help with shadows?

Thanks!

Jeannie

Back to top

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney

IP Logged

LeLimey

Ex Member

Re: ER Nightmare
Reply #26 - Nov 30^th, 2009 at 3:14pm

It can for some Jeannie, not everyone and some only get relief while actually using the O2 but it is absolutely worth a try, especially for those that have it anyway.

For what it's worth - OTC pain meds such as tylenol and motrin CAN actually be effective on shadows. As we all know, they're like throwing skittles at a shark if you try and use them for CH but on shadows they can be a really effective measure.

Hope it helps! I don't want you hurting!
Helen

Back to top

IP Logged

Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: ER Nightmare Reply #27 - Nov 30^th, 2009 at 4:03pm Thanks Helen! Sometimes I use the generic Excedrine for Migraine for my shadows. It helps some. The 4Way nasal spray helps with the pressure too. ( Thanks Racer!) Maybe it will help you too, Kimmie. Jeannie
Back to top	"It's all a grand illusion when you think you're in control." ~ Kenny Chesney IP Logged

angela.lambert

CH.com Veteran

Offline

Support Alaska Commercial
Fisherman

Posts: 182
petersburg,alaska
Gender: female

Re: ER Nightmare
Reply #28 - Nov 30^th, 2009 at 7:47pm

On Thanksgiving, I had a shadow linger all day. I kept busy and it was only when I slowed down that I could feel it creep back into place. After dinner I was done with it! I went into my room and hit with O2 for 2 minutes. I could feel it leave me almost immediately. I am always afraid to over use my O2 for the shadows, I don't want to build up a tolerance for it (if that even happens). But, it did work for the shadow. And, I did you use the O2 the other morning when I was plagued with another shadow that strong coffee wasn't aborting.

Angela

Back to top

The Beast, the Beast, the Beast is on Fire!

IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: ER Nightmare Reply #29 - Nov 30^th, 2009 at 8:19pm I don't believe you can build up a tolerance to O2.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

FramCire CH.com Alumnus Offline Life like a froward child must be humored a little Posts: 1710 Bolivar, MO USA Gender:	Re: ER Nightmare Reply #30 - Nov 30^th, 2009 at 8:30pm Brew wrote on Nov 30^th, 2009 at 8:19pm: I don't believe you can build up a tolerance to O2. I agree with you (sadly again) but there have been times I have decided not to use O2 because of the irrational fear that it will no longer work for me if I use it too much. CH makes for some great decision making for me sometimes!
Back to top	You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: ER Nightmare Reply #31 - Nov 30^th, 2009 at 8:57pm I think Mr. Spock would say that sometimes it makes us illogical.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Joni CH.com Old Timer Offline Knowledge is Power Posts: 476 Gender:	Re: ER Nightmare Reply #32 - Nov 30^th, 2009 at 11:32pm Is it just me or is anyone wondering where Millan went?
Back to top	Experience: That most brutal of teachers. But you learn, my God do you learn. -C. S. Lewis IP Logged

Click Here to visit the CH.com Facebook page!

Kimmie CH.com Veteran Offline OW!! Posts: 187 US Gender:	Re: ER Nightmare Reply #33 - Dec 1^st, 2009 at 10:14am Richard, I hate to be nosey.....but i cant figure why you would stop coming to this site. For 99.99999999% of us this is our lifeline. There is so much research here and connections with folks who are going through the same as you. Please stick around this time. We learn from each other's experiences and treatments. -Kimmie
Back to top	To accept the challenge is the destiny of leadership. IP Logged

LeLimey Ex Member	Re: ER Nightmare Reply #34 - Dec 1^st, 2009 at 11:01am Well we're glad you found your way back - there isn't anywhere better for us to be than together! I hope you stick around too, it's good for all of us. Welcome back
Back to top	IP Logged

ellenjoanne

CH.com Junior

Offline

Posts: 77
Greenfield, WI
Gender: female

Re: ER Nightmare
Reply #35 - Dec 1^st, 2009 at 12:49pm

Joni wrote on Nov 30^th, 2009 at 11:32pm:

Is it just me or is anyone wondering where Millan went?

I don't know. That's a good question. If this were some of the other online groups I belong to, I'd say it was a troll, but CH is such a different thing, it could very easily be a case of a noob, having the jitters, and not wanting to post after all of the comments that were made. It's also possible that the long headaches that Millan is having, are both CH and migraines during the same time period (I've never experienced that, but I've read of it happening to some CH sufferers [they have CH, and then have a migraine after the CH is over with, and the neuralagia from the CH, makes regular migraine meds useless]).

Ellen,
Having the weirdest CH cycle she's ever had in her 10 years of having CH

Back to top

« Last Edit: Dec 1^st, 2009 at 12:50pm by ellenjoanne »

IP Logged

LeLimey Ex Member	Re: ER Nightmare Reply #36 - Dec 1^st, 2009 at 12:57pm I know of one long time and well respected member of this forum who has had simultaneous migraine and CH. Whilst it's not common it can happen. I suffer from CH on a regular basis but have maybe 6-7 migraines a year. The funny thing is, absolutely no meds work for them. Go figure. With CH we truly can say, we are all unique.
Back to top	IP Logged

MattyAA CH.com Veteran Offline I Love CH.com! Posts: 242 Poland, EU Gender:	Re: ER Nightmare Reply #37 - Dec 1^st, 2009 at 4:51pm Quote: The funny thing is, absolutely no meds work for them. Go figure. With CH we truly can say, we are all unique. It is more sad than funny thing, what have you used so far? As in everything? From meds? Cluster Buster method too?
Back to top	IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: ER Nightmare Reply #38 - Dec 1^st, 2009 at 5:05pm MattyAA wrote on Dec 1^st, 2009 at 4:51pm: Quote: The funny thing is, absolutely no meds work for them. Go figure. With CH we truly can say, we are all unique. It is more sad than funny thing, It's a colloquialism, Matty.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

LeLimey

Ex Member

Re: ER Nightmare
Reply #39 - Dec 1^st, 2009 at 5:27pm

Did you mean for my migraines Matty? If so I've used every "CH" abortive I have (which lets face it - are all migraine meds anyhow) and I have also used OTC migraine meds such as migraleve. I don't have so many of them that I want to mess with my CH set up if that makes sense.

When I said it was funny I didn't mean in a humourous way, more irony or dark humour than anything. That's something we do here, poke fun at ourselves! It's a coping technique, it isn't meant to offend.

Helen

Back to top

IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!