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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Howdy Chicklets...

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Howdy Chicklets... (Read 1161 times)

PNug

CH.com Newbie

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Who am I to blow against
the wind? - Paul Simon

Posts: 21
Nova Scotia
Gender: female

Howdy Chicklets...
Dec 7^th, 2009 at 5:13pm

Hi -

I've been a member since 2006, but I don't post much.

I just thought I'd reach out as I am in the middle of my first cluster episode in 2 years. Just when you think you're home-free - WHAM!

I was diagnosed with CH in the early 80's (my doc was apparently on the ball), but I've never been able to predict when my cycle is going to start... sometimes meds work, sometimes they don't. I started a Verap/Paxil course of treatment in 2000, and it worked to knock me out of a particularly vicious 3 month cycle, but has since ceased its efficacy.

Sometimes Os work, sometimes they don't. I haven't used them in a while, but I ordered a tank today, and hopefully it'll be the magic bullet this cycle.

I've been upfront with my employer, but what really worries me is that this has a real and profound impact on my life. My employer is great, I am fortunate to have awesome benefits (including O2 coverage, tons of sick time accumulated, plus long/short term disability) but the unpredictable nature of this beast is what truly drives me crazy.

I have an amazing spouse who wants nothing more than to help me and is spectacularly supportive.

The daily grind of pain is slowly wearing me down...

Just thought I'd reach out. Thanks for being here.

Smiley

This is a good smiley - too bad they don't have a smiley digging around with a screw driver!

PS this is my Labrador (Aida) who stares at me just like this when I'm layin on the floor, eye weeping and snot rolling down my face.

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Howdy Chicklets... Reply #1 - Dec 7^th, 2009 at 8:07pm Glad you reached out again. Sometimes it helps to post, sometimes just to read. Whatever you're comfortable with. Linda
Back to top	Hurt people.....hurt people. Think about it. IP Logged

Jasmyn CH.com Alumnus Offline Each day will be a new trick in life's journey Posts: 2805 Australia Gender:	Re: Howdy Chicklets... Reply #2 - Dec 8^th, 2009 at 5:49am There are really no rules. If you are one of us, you deserve to be here. I am sorry that you are in this situation again. All we can hope for is that when the beast leaves us it is for good but that is not always the case. Hang in there, the sun will shine again. Hugs Jazz
Back to top	Jazz &&&&Madness is proclaimed by society’s inability to accept its own infallibility IP Logged

Joni

CH.com Old Timer

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Knowledge is Power

Posts: 476
Gender: female

Re: Howdy Chicklets...
Reply #3 - Dec 8^th, 2009 at 12:50pm

I'm sorry the headaches found you again. They seem to be better detectives than we are! I LOVE your dog! I am currently looking at Lab and a Vizsla pups to replace a precious Golden Retriever and accompany my 12 year old Golden/Lab mix. I know exactly what you mean about them staring at you. I have been told that my dog does that when I sleep as well.

Good luck!
Joni

Experience: That most brutal of teachers. But you learn, my God do you learn. -C. S. Lewis

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PNug CH.com Newbie Offline Who am I to blow against the wind? - Paul Simon Posts: 21 Nova Scotia Gender:	Re: Howdy Chicklets... Reply #4 - Dec 8^th, 2009 at 1:02pm Hi Joni - I have an 11 year old golden/lab mix, too! He's my first dog (as an adult) and my best bud. He tends to lay beside me when I'm not well, but my Lab will stand over me, just watching. Without mah dawgs I'd be a mess.
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Joni CH.com Old Timer Offline Knowledge is Power Posts: 476 Gender:	Re: Howdy Chicklets... Reply #5 - Dec 8^th, 2009 at 1:32pm Me, too! Pure love!!!
Back to top	Experience: That most brutal of teachers. But you learn, my God do you learn. -C. S. Lewis IP Logged

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