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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Re: Episode averted? (have I stumbled upon something?)

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Re: Episode averted? (have I stumbled upon something?) (Read 2534 times)

Karla CH.com Alumnus Offline One of Many and Never Alone - Join OUCH Posts: 3837 x1\|Madison WI USA Gender:	Re: Episode averted? (have I stumbled upon something?) Jan 2^nd, 2010 at 9:36am Glad you found some acceptance, peace, and pain free times. This is great. I tried taking a chronic pain mangement class for lower back pain and it failed me. So I imagine it would fail for ch also.
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bejeeber

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Re: Episode averted? (have I stumbled upon something?)
Reply #1 - Jan 3^rd, 2010 at 2:15am

I certainly don't wanna cast any aspersions on meditation - I believe its a voonderbar thing - but personally the only time period I don't meditate is when in a cluster episode.

That's because its a sure fire CH trigger for me, just like other states that would otherwise be very restful/peaceful/relaxing, such as night time sleep or afternoon naps.

I'm afraid I'm also pretty skeptical about it's value for averting episodes. I've been meditating for 28 years or so, had clusters episodes for 30.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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seasonalboomer

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Re: Episode averted? (have I stumbled upon something?)
Reply #2 - Jan 6^th, 2010 at 4:25pm

Several years ago I came on to declare that I thought that I had found meditation was helping me avert my clusters. My experience is described very well by you here (very similar actually). And then my real cycle hit..... Undecided

I thought that it had helped and don't mean to sound skeptical but simply want to say, keep vigilant, don't let your guard down.

Scott

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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: Episode averted? (have I stumbled upon something?) Reply #3 - Jan 6^th, 2010 at 5:07pm Welcome Stymie (I love that name). Many here have tried acupuncture with no success. If you feel it is helping you then far be it from me to say anything against it.
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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Episode averted? (have I stumbled upon something?) Reply #4 - Jan 7^th, 2010 at 6:35am At the age of 40 my attacks went from every 8-9 months, as they had been for the previous 20 years, to every 2 years. No reason for the change other than age.
Back to top	Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!" IP Logged

saxman CH.com Junior Offline I Love CH.com! Posts: 80 portland or Gender:	Re: Episode averted? (have I stumbled upon something?) Reply #5 - Jan 12^th, 2010 at 5:19am Perhaps the key is tricking the brain hwever before the cycle starts/ sort of an anti-trigger? Next year I'm going to experiment early in Dec. (my cycles always start mid Dec) Maybe a pred taper?
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Stymie

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Re: Episode averted? (have I stumbled upon something?)
Reply #6 - Jan 13^th, 2010 at 3:50am

Thanks Saxman, yes I think that is a good way to put it. There was an interesting medical paper about premonitory symptoms and how identifying them early can help delay onset of episode etc. or "skip", I dont have the link but one could google it. I seem to recall they mentioned tapering pred (or was it starting verap, cant remember?) at first signs i.e. for those who may have weeks of premonitory before onset. Makes sense to me too that you could get ahead of the curve even further as you suggest by predicting your cycle. Good luck!

I'm not really bald....its from all the noggin rubbing.

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