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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › tapering off pretnisone

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tapering off pretnisone (Read 1379 times)

anthony g

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tapering off pretnisone
Jan 4^th, 2010 at 5:16pm

I have been tapering off of prednisone started 80 mg for 4 days 60 for3 days will take 40mg for 2 days then 20 for 3 days! today was a bad day was hit with a 6-7 around 2 hrs ago now just lingering effects! didnt catch in time to abort with imitrex so rode it through! waitnig on clearance for 02 cant wait!! my question... this lingering headache is this common for anyone else?
thanks in advance
anthony

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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: tapering off pretnisone Reply #1 - Jan 4^th, 2010 at 5:50pm Has your doc started you on a preventive med AT THE SAME TIME you are using the pred? If not, he is missing the boat! The preventive of choice, Verapamil, takes a few days to couple of weeks to become effective and, sometimes, dose adjustsments are needed. Ergo, it should have been stated the same day you started the pred.
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anthony g

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Re: tapering off pretnisone
Reply #2 - Jan 4^th, 2010 at 5:58pm

thanks! yes my doc started me on verap the same time ! i started both last sunday 12/27! the verap was at 240 mg a day and increased to 480 per day a couple of days ago! 240 im the mornin and 240 in the eve! so only been a week and a day i have been on verap and only few days at higher dose! so maybe need to give time for the verap to kick in?
thanks for input!

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Re: tapering off pretnisone
Reply #3 - Jan 4^th, 2010 at 6:00pm

The "lingering" headche you describe is what a lot of people call the shadows. It's different from a regular tension type headche, it feels like a CH attack that just never catches ahold. I use energy drinks to help kick them down a few notches.

If a headache gets past the 02 and I have to ride it out, I'll have what I call a CH hangover headache for 2-3 days afterwards, feels like someone wapped me with a 2X4!

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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anthony g CH.com Old Timer Offline I Love CH.com! Posts: 318 manhattan nyc Gender:	Re: tapering off pretnisone Reply #4 - Jan 4^th, 2010 at 6:23pm thanks so much! thats exactly what i feel like J! just any annoying sensation like i have another attack coming but just isnt coming on! beats the big one! but still annoying just the same! thanks alot again its sooo helpful knowing im not alone!
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saxman CH.com Junior Offline I Love CH.com! Posts: 80 portland or Gender:	Re: tapering off pretnisone Reply #5 - Jan 4^th, 2010 at 6:28pm off the prednisone now, took too much, didn't taper because hits kept coming.. Now I'm suffering some side effects... boils, blister on foot won't heal etc... Caffergot seems to be working?
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