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New CH.com Forum › Supporter's Corner › Supporter's Corner › We found a great doctor!

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We found a great doctor! (Read 1822 times)

Cece

CH.com Junior

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Clusters are the devil!

Posts: 37
Tucson, AZ
Gender: female

We found a great doctor!
Apr 5^th, 2010 at 8:06pm

Hello to all. So last friday we met with a doctor, finally! We just put my husband on my insurance. It went very well. Since it is a pre existing condition however, we have to wait almost a year to see a neurologist. But the doctor is so awesome, we said we would just go to urgent care every 3 months to fill he Rx but he said to just keep seeing him until the year has passed for the pre existing condition requirement. Bless his heart, he knows about cluster headaches and actually gives a damn.
So the CH are coming on even stronger so we got the prednosone taper, the verapamil, painkillers(they help my husband sometimes), the 02. So we pray all this keeps working.
We have the rebulls as well, soemtimes they work and others not at all. We got a big case at Costco so we are covered for a while!

Wanted to share the news. Wishing the best and no pain to everyone. Love

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: We found a great doctor! Reply #1 - Apr 5^th, 2010 at 8:44pm Thats good news. Hoping the oxygen works as well for him as it has for me. Lovingly remind him the faster you got on the 02 the faster the beast is driven off. Thanks again for all the foot work you do for him . Joe
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Cece CH.com Junior Offline Clusters are the devil! Posts: 37 Tucson, AZ Gender:	Re: We found a great doctor! Reply #2 - Apr 5^th, 2010 at 9:21pm Thanks! He has taken 02 many times and he is really happy to have it again. We feel so blessed to have this doctor.
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: We found a great doctor! Reply #3 - Apr 6^th, 2010 at 8:02am Great! Having a good doctor is huge. Like Joe said....hit the 02 at the first twinge. Make sure he has the right mask and uses a high flow rate. I know...I'm a nag... Oh..and watch the pain killers. They can do more harm than good. Good job, Sweetie.... Love ya, Jackie
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on my knees Ex Member	Re: We found a great doctor! Reply #4 - Apr 6^th, 2010 at 8:36pm the right mask makes all the difference, i am a true believer and its the op2 mask is the only one for me. glad you foound a good doc, they can be hard to find
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Cece CH.com Junior Offline Clusters are the devil! Posts: 37 Tucson, AZ Gender:	Re: We found a great doctor! Reply #5 - Apr 7^th, 2010 at 1:53pm Yes he has kept his mask from when he did have the 02. He can't have the tube or anything like in the nose. We are so grateful and feel so blessed to have found this doctor. Thank you all for the replies. I wish everyone a pain free week, or actually a pain free forever, wouldn't that be nice?! Love and prayers to all
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LasVegas

CH.com Sponsor

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Episodic CH since 11 yrs
old, now 50.

Posts: 2020
north of the 60th parallel
Gender: male

Re: We found a great doctor!
Reply #6 - Apr 11^th, 2010 at 1:11am

Cece, congratulations to you BOTH for finding a great doctor, a very difficult task for many of us.

Please take a look at this list of recommended doctors from the link below, if your doctor is NOT on there, please add him/her to recommend to others in need who may live close to you.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

« Last Edit: Apr 11^th, 2010 at 1:11am by LasVegas »

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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