We've been having them for years now.  Get togethers, that is.  There was just one in January in St. Louis, one in Texas last month, and Brew, Pat, Guiseppi and Christy are coming to Kentucky next week to visit with Jimi and Ruth and I for a week...maybe a month if I can convince them to stay.   

Right here on this board is where to post if you're interested in getting together in your state.

found the article published in the OUCH NEWS LETTER
December 2003 No.5...

"We Had a Meeting... Posted at      http://
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

On October 29th 2003, 12:43pm
It was so good to meet five other Cluster Sufferers last night at our first “Cluster Sufferer” Las Vegas meeting. We all introduced our- selves, discussed preventative and abortive meds, local doctors, discussion of hypothalamus gland and trigeminal nerve, triggers, potentially forming a local chapter of OUCH, exchanged phone numbers, a demo of the “Imitrex Tip”, etc. Met for two and one half hours.

All six of us were male, four out of six are smokers, we are all over-thinkers, we all are left sided sufferers, ages ranged from 32 to 56, five of us are episodic, one was chronic, we all have health insurance or VA medical assis- tance, two of the six are Vietnam Veterans, three of us are self employed, one service-related disabled and two are full time employees, two reported deviated septum’s on the left (Cluster) side- one of these two men had it fixed but did not cure CH’s, one had a brain tumor removed-but did not cure CH’s, one with history of two closed head injuries. Of the six of us, one has been PF for 4 days, one is chronic with an average of 1 or 2 daily, the other four haven’t experienced a CH in 2, 3 and 4 years, respectively.

Reported initial onset of CH’s began at age 11, 16, 24, 30 and mid-20’s, mid- 30’s. Very productive first meet- ing with all of us understanding that we now have local contacts and are not alone...

Las Vegas"