Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
first post (Read 2684 times)
hippies mom
CH.com Newbie
*
Offline


I Love CH.com!


Posts: 1
first post
May 31st, 2010 at 11:53am
 
[/font][font=Times New Roman]
[size=12][/size]
My unmarried son has CH  Undecided-- the Dr. at the emergency room acts like I'm being an over protective mother and my son is being a whimp! It makes me furious Angry
Roll Eyes-OHH - poor baby has a little headache- Roll Eyes-that is the attitude we deal with! We live in a rural area so there isn't a lot of choice as far as doctors are concerned- so it's very irritating to be dismissed like this!
I couldn't believe it -- this ER doctor had to GOOGLE cluster headaches! Either he didn't know what they are - or he'd never treated them before! At this point- over Memorial Week-end---we have been to the emergency room 5 times in 2 days to get shots for pain-and I'm keeping my phone in my pocket so when he calls ,I'll drop everything I'm doing and rush him in again!
The nursing staff has been more help than the doctor, they at least have some compassion. Tomorrow - I'm taking him to our local clinic to see a different doctor, and hopefully get some relief for him- this is a tough man - he's worked with broken bones and through illnesses, but nothing has effected him like these monsters! I read where they have been termed 'suicide headaches' --I understand why!
Anyone have any suggestions?
Back to top
  
 
IP Logged
 
Mosaicwench
CH.com Sponsor
***
Offline


www.mosaicwench.com


Posts: 3507
Near Milwaukee WI, USA
Gender: female
Re: first post
Reply #1 - May 31st, 2010 at 12:05pm
 
Read everything you can on this site and print out the most important parts for the doctor tomorrow.

Get the doctor to prescribe oxygen at the rate listed on the links to the left.  It's the first line of defense for most everyone and is virtually side-effect free.

Good luck.
Back to top
  

“Be regular and orderly in your life, so that you may be violent and original in your work.”
~Flaubert
WWW http://www.facebook.com/home.php?id=1240423960&ref Mosaicwench  
IP Logged
 
bonkers
CH.com Old Timer
****
Offline


What is THIS?


Posts: 308
San Diego, California
Gender: male
Re: first post
Reply #2 - May 31st, 2010 at 4:15pm
 
Damn Mom! Tough break! and on Memorial Day weekend to boot. So sorry. Lots of info here. Read as much as you can in what time you have. ER docs (most docs for that matter) don't know much about CH. Very important to get an accurate diagnosis (you don't say whether you have or not). If he has been diagnosed, next ER trip ask for Imitrex injection and an oxygen tank delivering 15 liters per minute through a non-rebreather mask. I hope I'm not misinforming you. If I am, someone will correct me very quickly. Best of luck. Ron
Back to top
  

Excessive sorrow laughs. Excessive joy weeps.
  -Blake
 
IP Logged
 
black
CH.com Old Timer
****
Offline


I Love CH.com!


Posts: 347
Greece,Athens
Gender: male
Re: first post
Reply #3 - May 31st, 2010 at 6:01pm
 
well tell him to get here and second it has been scientifically proven that married sons get ch too... Tongue
Back to top
  

Oh come on!it's just water.It can't be that bad!
 
IP Logged
 
QnHeartMM
CH.com Sponsor
***
Offline


I AM a Phoenix!


Posts: 1783
San Diego, CA
Gender: female
Re: first post
Reply #4 - May 31st, 2010 at 9:10pm
 
If your son has been diagnosed with CH then please get him here to start learning his defenses. There are medications used to prevent, and then some to abort. Most folks here use oxygen to abort, combined with maybe redbull or something. Imitrex is also a good abortive but often sufferers are limited by their insurance companies.

Lots to learn here, welcome.
Back to top
  

Treat people with kind words.
 
IP Logged
 
chwife
CH.com Junior
**
Offline


I Love CH.com!


Posts: 27
Medina, OH
Gender: female
Re: first post
Reply #5 - Jun 3rd, 2010 at 10:37pm
 
You are not being an overprotective Mom!!! This is a very serious illness, and he needs all the support you can give.  I live in a suburban city with a fairly large hospital, and my husband and I have been treated as if we were searching for pain medication, even when I asked for oxygen & Imitrex.  We have since learned to find the things that work for him by trial and error, and to have those "tools" on hand ahead of time so we can avoid trips to the ER.  Help him as much as you can & ignore the comments of others; they just don't have the awareness of what you're dealing with. . .
Good Luck to you and your son!
Lynn
Back to top
  
 
IP Logged
 
Lettucehead
CH.com Old Timer
****
Offline


I am very blessed...


Posts: 293
Iowa
Gender: female
Re: first post
Reply #6 - Jun 22nd, 2010 at 8:08pm
 
Really, though, I'm glad that the ER doc had enough understanding of his own limitations of knowledge to admit that he had to look up Cluster Headache...

Better than just assuming that it was 'some sort of migraine'

Of course, one would hope after having learned about CH, he'd have a bit more understanding of how serious they are... and perhaps could have send you home with some tripans or o2 rather than emptyhanded and then act surprised when you come back still having problems....

Back to top
  

Listen, and understand. That terminator is out there. It can't be bargained with. It can't be reasoned with. It doesn't feel pity, or remorse, or fear... 'The Terminator' AKA CH
 
IP Logged
 
bcsanders
CH.com Junior
**
Offline


I Love CH.com!


Posts: 49
Re: first post
Reply #7 - Jun 24th, 2010 at 9:26pm
 
Hippies Mom,
I was disgnosed at 19 yrs old with bad sinus headaches...hmmm.  I wish I knew what they really were and that my mom was there in my corner.  (She would have been, but sinus headaches don't rate).  Beyond the diagnosis and the meds listed above, don't know whether your son is chronic or episodic, but tell him to log the headaches.  Especially if he's episodic with long periods between cycles.  This may help now or in the future once you get proper meds/treatments to know when a headache is coming on.  Most people experience headaches around the same time every day so a shadow or a twings could spell oncoming hell.  Alot of the meds work at the onset of the attack, not in the middle of it.

Hope all the advice helps.

keep up the fight for your son.

Brett C.
Back to top
  
 
IP Logged
 
jayhedges
CH.com Junior
**
Offline


I Love CH.com!


Posts: 55
Re: first post
Reply #8 - Jun 24th, 2010 at 11:32pm
 
Mom, your son needs to be here even when he is in cycle as I am now. It's first hand knowledge that we all share. Oxygen, Red Bull, maybe Imitrex at onset, These will help him get thru the fist cycle. I have been to my primary care three times, my neuro at Johns Hopkins once, the er once and learned more from this site than anywhere. Oh and I am 14 days into my first ch at the age of 56. Read, Read and then start researching mushrooms. That's where I am headed next thatnks to Bob the founder of this site and a man I am quickly learning to admire. Jay from Baltimore.
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!