Hope you get some shut eye Perry... have you looked into melatonin for those night time hits, I know it offers some great relief for alot of people on the board.



Lefty

Quote:


Did you say somewhere what those new weapons are? Just curious.

paula banyard wrote on Jun 17^th, 2010 at 5:42am:
Paula, have you read about the Imitrex tip on the left column of this page?  You can get 3 shots out of one.  When I need Imitrex, I only use 2mg (out of a 6mg injection) at a time to abort.  Not only do you save, but you have less of a chance to get rebound headaches.

You're doing a couple of pretty smart things. Sharing here with us, get that stuff off your chest, cuz many of us will have had similar experiences, some will have had identical.

Reading like a mad man. It gets said a lot here...but still not enough....plopping your butt in front of a doc and saying "fix me" is a guaranteed recipe for years of pain. Educate yourself, then work with your doc. You've got a great supporter, me thinks you'll do just fine with this.

Joe

George wrote on Jun 17^th, 2010 at 9:39am:
George, that is one of the best analogies I have ever read

Crossing our collective fingers for ya! Please do let us know how it goes.

Joe

Paula, have you read about the Imitrex tip on the left column of this page?  You can get 3 shots out of one.  When I need Imitrex, I only use 2mg (out of a 6mg injection) at a time to abort.  Not only do you save, but you have less of a chance to get rebound headaches

Thanks for that Chad but not sure how I'd manage as I cant see whats in them. Fortunately for me, living in the UK I dont have the worry of having to have medical insurance etc like so many of you here. At least our government does something helpful lol. I do have to pay, but only a fraction of what the medication cost, so I take what I can get and some cycles I really get my moneies worth!!!!!!

Steph 45 - very glad to hear that encouraging report!

Especially considering where you were coming from with the K10s up to 3 hrs. 

sorry I havent posted the last couple days, got home late so didnt get a chance.  That and I own an auto salvage yard so I got to play catch up today for missing the last few days. 

Well, with no insurance, the visits to the neurologist will have to be on an as needed basis.  But I did walk out of there with a bunch of new stuff.  My orders are as they read.


1-Discontinue Cafergot useage

2-Wean off Caffeine...   Im addicted to Mt Dew.  2-4 liters a day easy.  She told me to back off the stuff cause apparently Caffeine will mess with some of the meds we use.  she said most especially the Imitrex.  It even messes with Melatonin generation from what I seen at Drugs.com.

3-wean off the cigs...   yeah well I knew that one was comein.  And I know it messes with our type of headache, ive tested that and found out myself.  Didnt mention Alcohol, I dont drink anyways...   anymore...

4-water.   which I dont drink NEARLY enough of..  why?  see order number 2

5-verapaml CR 240mg per day

6-high flow O2...   she prescribed 12 lpm but it still means I end up with the high flow reg and that will go more if I need to.  And as far as not doin the O2 right, well that was because I dont have the right equipment yet.  I was useing my torch tank O2 and I just dissasembled the wand, was regulating the flow by hand.  Air tight wasnt a prob, I think my breathing needs working on.  I have a horrible tendancy to hold my breath during my attacks.  Pain does weird things.

-Prednisone taper...  Started with 3 days at 80mg
she gave me 3 more days at 80, 3@60, 3@40, 3@20, and 3@10, then quit.

-Imitrex SQ...   now theres a problem with this system that i noticed...  they are Needless injections.  Think Star Trek Hypospray.  Its the whole 6mg and I dont think you could do 2 even if you wanted to..   one use only injector.  But she game me 8 injections right off the bat for free..   what a nice lady   


I think the needless injection thing was my fault.  if ida kept my big mouth shut I might have gotten the others...   but it came up just how much I loath needles so now I got these.  As a little little kid, my mother would always take me to a certain doctor and the first thing he would want to do is, TAKE BLOOD, TAKE BLOOD, TAKE BLOOD...  It didnt matter if you had a frickin sniffle, the bubonic plague, sprained ankle, a fart in your brain, it was always the same thing...   TAKE BLOOD!!!  Now when your 5 or 6, and its almost 30-years in the past...   imagine how big that needle is that this specific "man" is ALWAYS coming at you with, is...  use some re-bar, might be smaller!!!   The phobia or whatever it is, has gotten better over the years as it never is quite the way you remember... 

Either way, I got all these goodies now and no CH's for the last 5 days to try them on, almost sounds like im itchin for a fight...  believe me, im NOT.  My cycle started on May 15, ive never had a cycle end this short before...   EVER.  Mine always push 3 months, give or take a week.  The first three days I had a constant shadow all day, it would wax and wane from a 1 to a 3.  It even quit for about 5 or 10 minutes a couple times, Pulsing before it left, but always came back.

yesterday, not much.  Most of the days have been totaly free, cept today..  a handfull of times i felt a tingle in my neck and eye, the eye always feels a lil icy when it does that.  I know its not really cold, but it feels that way slightly, thats how i know.  Its almost like the beast is tappin on the inside of your eye with an icy finger once in a while just to say, " HEY!..   -=sadistic grin=-  You didnt forget about me, didja?"  -=goes away with a lil chuckle=-

Steph, I know what you mean about the K10s in the middle of the night, in my cycles for the first few handful of years. more oft than not half-way into my 3 month set I hit peak and rode that way to the abrupt end, day or two of light hits, shadows then...  nothing.  after peak i doubt i ever had anythin less than a 5 or 6, but mostly on the higher end of the scale and at night.  9s and 10s were common for me in those days..  If my mother were still with us all today she could tell you about nights I would lay at her feet and BEG her to make it stop.  My family has always been religious, and so am I...  I honestly felt, at least on those nights that the devil himself was tryin to kill me.   My cycles have changed since those days, thankfully I dont hit 10s on that scale anymore.  I had one or two this cycle, but mostly smaller, not sure whats changed really, have many theories..  to many to go into here.  I am sooo glad you are NOT there anymore, anywhere but there..   Im hopein more for you.

George, I think im gonna have to agree with Chad on that one...  i think im gonna put that one on my profile quoted by you, if thats cool. 

Guiseppi, my gut reaction is to immediatly say, you have no idea how liberating it feels to vent this scary sh*t off my chest...  but then again just about everyone here knows, wether its from the inside, or from the outside..  so I wont.  And yeah, ive "seen" some of those peoples experiences, and felt my heart drop cause it was like dejavu or something.  As long as people dont mind me ventin once in a while...  i"ll try to keep it short...     give me a keybord and a 55000 character cap and I could really say a few things...  lol

oh yeah...  as far as sleeping has been.   In the last three days, I have slept uneventfull, like a ROCK.  The first night I didnt wake up untill 11am, i was really tired.  she literally had to help me into bed, I could hardly keep my eyes open from forcin myself to stay awake.  But I already had a few meds in me by that time so, the next two nights were normal sleepfull nights.   I still dread goin to bed thou...