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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Cluster Headache Pain Increase when cmng off PRDN

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Cluster Headache Pain Increase when cmng off PRDN (Read 9759 times)

boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Cluster Headache Pain Increase when cmng off PRDN Reply #50 - Jul 24^th, 2010 at 3:57am How did you avoid it last time? Not taking the pred? Or did your other meds kick in before? Only 2 a day now. Not too bad.
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Putter CH.com Junior Offline Glad I am not alone with CH Posts: 30 Ontario Canada Gender:	Re: Cluster Headache Pain Increase when cmng off PRDN Reply #51 - Jul 24^th, 2010 at 4:04pm I am tapering off Prednisone now. This is the first time I have tried this route and I am really worried the clusters in the coming days will be so intense. Yesterdays was aweful.
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boski

CH.com Alumnus

Offline

CH'S Suck for all that
Suffer / The Pain The
Pain

Posts: 208
NYC
Gender: male

Re: Cluster Headache Pain Increase when cmng off PRDN
Reply #52 - Jul 24^th, 2010 at 4:34pm

Putter:

Oh, I know it's like it charged it up for when it can get you.
I know what you mean. I felt like a junkie going to the Doc
and asking for one more tapper. She said nope!
I used Imitrex shot and screamed till it worked then tried
O2 seem to help during day when I caught it as early as I
could. Even the Imitrex works better the earlier you use it
but you don't want to use it on a little tinge, short shadow
or something tolerable <- they don't happen often but once
in a blueish moon. It's like a catch 22!

Hope your solution is around the corner.

Peace,

« Last Edit: Jul 24^th, 2010 at 4:40pm by boski »

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Putter CH.com Junior Offline Glad I am not alone with CH Posts: 30 Ontario Canada Gender:	Re: Cluster Headache Pain Increase when cmng off PRDN Reply #53 - Jul 25^th, 2010 at 9:24pm I found Batch's comment interesting: Jose Cuervo Margarita mix... non alcoholic of course. I wonder if they have that stuff in Canada? I will try it.
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Batch

CH.com Alumnus

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Control The Beast With
O2 & D3 You Must

Posts: 3706
Bremerton, WA
Gender: male

Re: Cluster Headache Pain Increase when cmng off PRDN
Reply #54 - Jul 26^th, 2010 at 6:23am

Putter,

Try some Baja Bob's sugar free powdered margarita mix. You can order it anywhere in the world over the Internet at: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

I just ordered some.

It's sweetened with Splenda and low on sodium so should help avoid the weight gain problem I've experienced at 250 calories or more a glass... Getting chased down the street by Sumo recruiters gets embarrassing after the novelty wears off... Shocked

One $5 packet makes a half gallon of mix so it costs less and I'm sure it tastes a heck of a lot better than Red Bull. It's also higher in citric acid that lemonade so should work more effectively as a buffer to elevate stomach pH. This in turn will elevate arterial pH and that should help reduce the vasodilation in and around the trigeminal nerve to reduce the frequency and intensity of your cluster headaches. That's my story and I'm sticking to it so far.

I've been on this regimen for nearly a month and am still PF. This is still anecdotal until we get a lot more folks to try it with similar results, but so far... this is the longest I've gone PF since I was episodic over 6 years ago... If this keeps up I could lose my chronic status... What a hoot!

Take care,

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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