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what do you think is your trigger? (Read 11519 times)
Mosaicwench
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Re: what do you think is your trigger?
Reply #25 - Jul 29th, 2010 at 6:03pm
 
Guiseppi wrote on Jul 28th, 2010 at 9:11am:
Letting myself get really really hungry
Joe


Oh dear God, you've spent too much time with Ruthie!!    Grin Grin Grin
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Re: what do you think is your trigger?
Reply #26 - Jul 29th, 2010 at 6:31pm
 
My last random hit came when I was grilling steaks.  As soon as I opened the grille and the smoke hit my face I was in instant ch hell.

Hiking in the heat is also a trigger.

The only alcohol I think is a trigger for me is red wine (always) and beer (sometimes).
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Re: what do you think is your trigger?
Reply #27 - Jul 29th, 2010 at 7:53pm
 
Mosaicwench wrote on Jul 29th, 2010 at 6:03pm:
Guiseppi wrote on Jul 28th, 2010 at 9:11am:
Letting myself get really really hungry
Joe


Oh dear God, you've spent too much time with Ruthie!!    Grin Grin Grin



LOL Pat! Grin Grin

I love my Ruthie, but she don't love me!
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Linda_Howell
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Re: what do you think is your trigger?
Reply #28 - Jul 29th, 2010 at 8:18pm
 
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except Ruthie isn't a clusterhead.

This is too funny.   Grin
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Re: what do you think is your trigger?
Reply #29 - Jul 29th, 2010 at 8:42pm
 
midwestbeth wrote on Jul 29th, 2010 at 6:31pm:
The only alcohol I think is a trigger for me is red wine (always) and beer (sometimes).

Which is why I know you stick with the good stuff. Wink
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Re: what do you think is your trigger?
Reply #30 - Jul 29th, 2010 at 9:26pm
 
Being chronic, I have no triggers.   Most of us do not. 

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Re: what do you think is your trigger?
Reply #31 - Jul 30th, 2010 at 6:26am
 
You can be chronic and have triggers, case in point  Smiley

Having triggers doesn't mean all your CH hits are caused by said triggers.  You can avoid all your triggers and still get walloped by the beast.  Noticing a trigger is not always easy either, you do have to be a bit neurotic about watching what you eat, do, and breath to notice them.  Even then you can get it wrong thinking something is a trigger when in fact you already had a CH hit on the way.   Wink
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Re: what do you think is your trigger?
Reply #32 - Jul 30th, 2010 at 2:44pm
 
Brew wrote on Jul 29th, 2010 at 8:42pm:
midwestbeth wrote on Jul 29th, 2010 at 6:31pm:
The only alcohol I think is a trigger for me is red wine (always) and beer (sometimes).

Which is why I know you stick with the good stuff. Wink

Cheers!
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Re: what do you think is your trigger?
Reply #33 - Jul 30th, 2010 at 4:20pm
 
Quote:
Being chronic, I have no triggers.   Most of us do not. 


this doesn't make sense.at all.

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Re: what do you think is your trigger?
Reply #34 - Jul 30th, 2010 at 8:11pm
 
Anything with nitrates (hot dogs, bacon)
Cheap perfume (especially ones with patchouli!)
Concentrated tomato products (like tomato sauce)
Stress
Alcohol (only sometimes, and I can tell by the way my body's chemistry "feels" at a particular time)
WD-40
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jon019
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Re: what do you think is your trigger?
Reply #35 - Jul 30th, 2010 at 8:31pm
 
black wrote on Jul 30th, 2010 at 4:20pm:
Quote:
Being chronic, I have no triggers.   Most of us do not. 


this doesn't make sense.at all.




ummmm...black...are you saying "I don't believe it"?
...in which case you should know that episodics and chronics (I've been both) frequently experience completely different "faces" of the beast.

or...are you saying that this ch shite is totally mind boggling in its inconsistency?

Best,

Jon
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Re: what do you think is your trigger?
Reply #36 - Jul 30th, 2010 at 9:05pm
 
jon019 wrote on Jul 30th, 2010 at 8:31pm:
black wrote on Jul 30th, 2010 at 4:20pm:
Quote:
Being chronic, I have no triggers.   Most of us do not. 


this doesn't make sense.at all.




ummmm...black...are you saying "I don't believe it"?
...in which case you should know that episodics and chronics (I've been both) frequently experience completely different "faces" of the beast.

or...are you saying that this ch shite is totally mind boggling in its inconsistency?

Best,

Jon

Excellently Put Jon!  Cool
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Re: what do you think is your trigger?
Reply #37 - Jul 30th, 2010 at 9:15pm
 
Quote:
episodics and chronics (I've been both) frequently experience completely different "faces" of the beast.


in what ways?
i mean your personal experience
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« Last Edit: Jul 30th, 2010 at 9:16pm by black »  

Oh come on!it's just water.It can't be that bad!
 
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Re: what do you think is your trigger?
Reply #38 - Jul 30th, 2010 at 9:55pm
 
Quote:
this ch shite is totally mind boggling in its inconsistency


no pls don't say things i never said.ch shite?it took me a while to translate this.
pls dont project your thoughts as if it were mine.
My suprise is clear enough.i always thought that what applies for chronics it's the same for episodics and vise versa.And i mean that there are triggers for both despite if we are wrong on what and which they really are.
for istance for myself alcohol has a very high probability and maybe weather without knowing exactly how.
Now it has crossed my mind that in a longer extent of time maybe as chronic ch in my case has low and high cycles within the extent time of a year(worser in winter time and cold and better in the summer,especially when the weather is stable for a while).Of course i have a big question of all these but since i can't do anything with the weather and the only trigger i ve recognised is alcohol i quit it years ago.But still getting hit and as an automatic response i am looking for the trigger.
But it's the fisrt time i read here that chronics don't have any triggers and in a generalization without the contribution of the personal experience.

and so my question which came up is simple.
should i start drinking a beer from time to time as i used to as a social drinker?
will it make my hits worser in intensity and frequency within the times of drinking or doesn't matter as there is no trigger for the chronics as it is suggested?
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Guiseppi
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Re: what do you think is your trigger?
Reply #39 - Jul 30th, 2010 at 9:58pm
 
No problem Black I understood your question. For those who do not know Black, there is a language difference and the subtle nuances can be lost in translation! Smiley

Joe
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Re: what do you think is your trigger?
Reply #40 - Jul 30th, 2010 at 10:16pm
 
black wrote on Jul 30th, 2010 at 9:15pm:
Quote:
episodics and chronics (I've been both) frequently experience completely different "faces" of the beast.


in what ways?
i mean your personal experience


ok...I'm real tired and foggy brained, but I'll give it a shot....

was episodic for 24 years...many of the "typical" triggers...alcohol, msg, aspartame, tomatoes, barometric pressure changes, solvents, perfumes, welding fumes, missed meals, changes in routine, changes in sleep habits, travel, coming down from stress, et al....

with the exception of msg/aspartame (which I am convinced not only triggered hits but sometimes a cycle too)...none were a problem OUT of cycle....

now.... as a chronic (4 1/2 yrs)...I find that most are not a problem (I do avoid msg/aspartame ALWAYS)...I only really have to worry about alcohol when in a high cycle within the "always" cycle. That is, while usually getting hit every day, it's not because of alcohol (in a low cycle). Sorry if this doesn't make sense...but then neither does ch.

I can expalin further if this is confusing...

BTW...I am still interested in hearing the answer to my original question...

Best,

Jon




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Re: what do you think is your trigger?
Reply #41 - Jul 30th, 2010 at 10:19pm
 
Episodic vs Chronic; This may be of help keep in mind this definition is regardless of triggers or no triggers.

Quote:
Episodic or chronic

In episodic cluster headache, these attacks occur once or more daily, often at the same times each day, for a period of several weeks, followed by a headache-free period lasting weeks, months, or years. Approximately 10–15% of cluster headache sufferers are chronic; they can experience multiple headaches every day for years.

Cluster headaches occurring in two or more cluster periods lasting from 7 to 365 days with a pain-free remission of one month or longer between the clusters are considered episodic. If the attacks occur for more than a year without a pain-free remission of at least one month, the condition is considered chronic.[9] Chronic clusters run continuously without any "remission" periods between cycles. The condition may change from chronic to episodic and from episodic to chronic. Remission periods lasting for decades before the resumption of clusters have been known to occur.

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And on Triggers we have this:
Quote:
Triggers

Nitroglycerin (glyceryl trinitrate) can sometimes induce cluster headaches in sufferers in a manner similar to spontaneous attacks. Ingestion of alcohol or chocolate or banana are recognized as a common trigger of cluster headaches when a person is in cycle or susceptible. Exposure to hydrocarbons (petroleum solvents, perfume) is also recognized as a trigger for cluster headaches. Lahore or 'chinese salt' (monosodium glutamate) is nearly always a triger of migraines in patients. Sexual frustration, sex or orgasms may trigger cluster headaches in some patients. Some patients have a decreased tolerance to heat, and becoming overheated may act as a trigger which may explain the occurrence after aerobic exercise. Napping causes a headache for some sufferers, while for others lack of sleep triggers them. The role of diet and specific foods in triggering cluster headaches is controversial and not well understood.
[edit] Smoking

Nicotine may trigger cluster headaches, and the affliction is often found in people with a heavy addiction to cigarette smoking. In some cases second hand smoke may trigger cluster headaches. However it is not clear if there is a causal relationship between smoking and cluster headaches. Some researchers think that people who suffer from cluster headaches may be predisposed to certain traits, including smoking or other lifestyle habits.[17]


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Re: what do you think is your trigger?
Reply #42 - Jul 30th, 2010 at 10:31pm
 
Hello, great post

1) Setting the clocks back 1 hour in the fall
2) short naps
3 anything vanilla
4 Bleach or any mildew cleaner
5 penicillin
6 Energy saver light bulbs (in cycle)
7 Nite driving in the rain (in cycle)
8 orange juice   (in cycle)
9 when a storm moves in. ( cold front )
10 extreme crying.. (grieving)
And last but not least... THE MOTHER IN LAW!!!!

  Thanks, Coach Bill
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« Last Edit: Jul 30th, 2010 at 10:37pm by coach_bill »  

boy i cant wait till it's my turn to give him a headache. paybacks a bitch
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Re: what do you think is your trigger?
Reply #43 - Jul 30th, 2010 at 10:43pm
 
THE MOTHER IN LAW!!!!

Hmmm.....universal trigger????????????? Grin
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Re: what do you think is your trigger?
Reply #44 - Jul 30th, 2010 at 10:49pm
 
Quote:
I only really have to worry about alcohol when in a high cycle within the "always" cycle. That is, while usually getting hit every day, it's not because of alcohol (in a low cycle)


Huh

Quote:
Episodic vs Chronic; This may be of help keep in mind this definition is regardless of triggers or no triggers.


the whole way to read it is to read the
triggers too and the words patients and sufferers.just.which means all?

as for the original question i say i dont understand it and as for this we are having this conversation.
i wasn't ever episodic so i can't just apply a generalization non based.it just came out of the blue in my opinion and wasn't even aware of it even if i spend a lot of reading here.I never came up with this coclusion
though i am interested in others opinion on this too if this they think apply for themselves too.



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Re: what do you think is your trigger?
Reply #45 - Jul 30th, 2010 at 10:51pm
 
black wrote on Jul 30th, 2010 at 9:55pm:
Quote:
this ch shite is totally mind boggling in its inconsistency


no pls don't say things i never said.ch shite?it took me a while to translate this.

oh dear...the inadequacy of an email is evermore apparent in its lack of tone. C'mon brother...I DIDN'T say YOU said it...I said it! And thousands more could say the same thing.....

re "shite"...it was an attempt to say "shit" with a little less crassness...my Grandma used to say it...my English friends say it that way...I'm really trying to be less vulgar...but shit...even that doesn't work Tongue


pls dont project your thoughts as if it were mine.

see above...I asked a simple question...just trying to discern your thinking to progress the discussion. I can barely project my own thoughts...let alone someone else's.


My suprise is clear enough.i always thought that what applies for chronics it's the same for episodics and vise versa.And i mean that there are triggers for both despite if we are wrong on what and which they really are.

and I answered...it aint the same....


for istance for myself alcohol has a very high probability and maybe weather without knowing exactly how.
Now it has crossed my mind that in a longer extent of time maybe as chronic ch in my case has low and high cycles within the extent time of a year(worser in winter time and cold and better in the summer,especially when the weather is stable for a while).Of course i have a big question of all these but since i can't do anything with the weather and the only trigger i ve recognised is alcohol i quit it years ago.But still getting hit and as an automatic response i am looking for the trigger.
But it's the fisrt time i read here that chronics don't have any triggers and in a generalization without the contribution of the personal experience.

again...my experience related...we are all the same...yet different....


and so my question which came up is simple.
should i start drinking a beer from time to time as i used to as a social drinker?
will it make my hits worser in intensity and frequency within the times of drinking or doesn't matter as there is no trigger for the chronics as it is suggested?

there is no answer for that....only you will know...and the finding out is a bitch.....


Best...and I mean that man...

Jon





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Re: what do you think is your trigger?
Reply #46 - Jul 30th, 2010 at 11:04pm
 
sorry jon

pf wishes
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Re: what do you think is your trigger?
Reply #47 - Jul 30th, 2010 at 11:18pm
 
black wrote on Jul 30th, 2010 at 11:04pm:
sorry jon

pf wishes


no apologies necessary...we are all in this together.

Best,

Jon
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Re: what do you think is your trigger?
Reply #48 - Jul 31st, 2010 at 2:22am
 
After about 25 years, I have to say NOTHING triggers a cycle for me that I can be certain of...however, when I am in cycle, I have many triggers!  Puppies, cold, hot, mold, dust, tea, blood pressure changes, dark chocolate, contacts, oh...I could go on and on.

The one exception to NOTHING is a medication change, but I assumed that goes without saying. 

Over the years, I have had serious stressors,  litters of puppies, occasional wine, work overload, kids, deaths, sleepless nights, allergies, etc...but there has never been a time any of these consistently caused a cycle.  It may have happened a few times coincidentally, but then not at other times.  I can see where it would be easy to blame certain incidents, but it would have to be more consistent.

I have had them twice a year, once a year, and skipped years...all while living the same way and doing the same things...good times and bad.  I have kept meticulous calendars of them and have found no correlation... they come when they come.  Once I start a cycle, then they are very predictable...always 8 weeks and certain times of the day lasting no less than 60 minutes and no longer than 90 minutes with the usual constant fog, soreness, and stiff neck in between.

I do wish I thought there was a trigger...then I could avoid it!
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Re: what do you think is your trigger?
Reply #49 - Jul 31st, 2010 at 2:39am
 
Nickleback is my trigger. But seriously it is alcohol.  Started this cycle a few days ago but was mild until today when I drank a beer.
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