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Angry Dad ! (Read 4926 times)
Headache Boy uk
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Matthew ch 11 v 28


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Angry Dad !
Aug 21st, 2010 at 8:10pm
 
Well that is my kids perception of me since I started getting CH . My wife tels me that ever since it started I've lost my easy going attitude and I'm now grumpy most of the time , and I don't have time for the kids.

I was devastated , I had no idea, I don't want my kids childhood memories of me to be "Angry dad " let alone be Mr grumpy to my wife.

Don't get me wrong here she fully understands and I'm glad she told me about how it's effecting them ...........she's wonderful (although she would never admit it) and I need to be aware and do some thing about it .

I know this is going to be a chicken and egg thing but she raised a good question ,  Is it the fact that I'm in pain all the time( although I'm out of cycle I still get shadows all the time , mostly minimal pain but some are still ordinary headache bad ) or has having CH alterd my brain chemistry so to speak ?

Any thoughts

Nigel
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Re: Angry Dad !
Reply #1 - Aug 21st, 2010 at 8:19pm
 
Altered your brain chemistry? I highly doubt it. made you on edge and grumpy because you hurt all the time? Yeah......pretty good chance.

But just to play the devil's advocate a little.......kids aren't beyond messing with you a little. A friend of ours called almost in tears because her 6 year old daughter told her, "all you ever do is say no!" We told her...that's kind of a parents job....it makes us highly unpopular at times.

Dont beat yourself up too much, parenting is hard. I suspect there will be no huge counseling bills in 20 years to worry about. Wink Just take it as one of those gentle reminders we get now and then.

Joe
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Matthew ch 11 v 28


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Re: Angry Dad !
Reply #2 - Aug 21st, 2010 at 8:42pm
 
Thanks Joe , it's just tough to hear when all I want to do is give my kids a good and happy up bringing.

It's been particularly hard on my son because he has aspergers sorry he has anxiety problems and he is hypersensitive ( long story cut short NHS wont diagnose any ASD unless it really bad cos it costs them too much money ) but now I've been made aware ,hopefully I can do something about it .

may be it's a little of that horrible self pity stuff creeping in ( got to knock that on the head )

God bless

Nigel
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Re: Angry Dad !
Reply #3 - Aug 21st, 2010 at 8:46pm
 
Kids' attention spans are about as long as your pinky nail. Hug 'em, kiss 'em, tell 'em you love 'em. And maybe make a little more effort not to let your personal hell affect them. Sometimes we need to compensate a little.

Once they get a little older, they'll reach the age of reason where true empathy starts to develop. Then they'll understand a little better why dad is a little on edge. As long as you reiterate to them that they're not the cause of it.
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Re: Angry Dad !
Reply #4 - Aug 21st, 2010 at 8:56pm
 
My kids came out all right throughout all of this. Now they're adults and don't even remember "angry dad".  They also understand a little better of what they witnessed in their younger years Wink
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Matthew ch 11 v 28


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Re: Angry Dad !
Reply #5 - Aug 21st, 2010 at 8:56pm
 
Good point ,thanks Brew

Thanks Art
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« Last Edit: Aug 21st, 2010 at 8:58pm by Headache Boy uk »  

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Re: Angry Dad !
Reply #6 - Aug 21st, 2010 at 8:59pm
 
My son has known no time when dad didn't have these terrible headaches. Dare I say it has helped make him one of the most caring, compassionate human beings on earth (right after his mother)?

There are silver linings to this black cloud that hangs over us.
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Re: Angry Dad !
Reply #7 - Aug 21st, 2010 at 9:09pm
 
I'll second what Brew said (cuz his son is my son, too!).

Being an only child, JrBrew (or Micro-brew  Wink) can be pretty self centered. 

Being the son of a clusterhead has taught him that the self-centered business doesn't cut it.  There are a lot of clusterheads here who have met him and know him to be compassionate and empathetic to their plight.  He even plays Chuck's horrific getting-hit video for his friends and tells them about CH so if they ever see his dad in that state, not to worry, we have it covered. 

There were plenty of times when we had to leave a movie, or a game, or an event due to dad getting hit and there were indeed outbursts from young son about "unfairness."  What kid doesn't think it's unfair that his needs don't come first?  It's just part of life's lessons, and watching a parent (or any loved one) struggle with chronic pain is a valuable, valuable lesson.

Maybe the cosmos afflicted Brew with this evil beast for a greater purpose than to watch him writhe in pain . . . . .just a thought. 
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Matthew ch 11 v 28


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Re: Angry Dad !
Reply #8 - Aug 21st, 2010 at 9:13pm
 
I think at the moment I am may be a little apprehensive too because it's coming up on the time this all kicked off last year so I'm kinda bracing my self for the 2010 tore of the beast... of course I have no idea how this thing is going to pan out for me ,it may not come back this year ( please please please) but I kinda think it will.

any how I have 12 Imitrex shots in the cupboard and a good GP so I'm kinda ready.

Thank You all for your responses and your reassurance

God bless you all

Nigel

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Re: Angry Dad !
Reply #9 - Aug 21st, 2010 at 10:13pm
 
Brew wrote on Aug 21st, 2010 at 8:46pm:
Kids' attention spans are about as long as your pinky nail. Hug 'em, kiss 'em, tell 'em you love 'em. And maybe make a little more effort not to let your personal hell affect them. Sometimes we need to compensate a little.


lol!  Great advice!
And I love the title/name "micro-brew" Excellent!

And, really Nigel, your kids are clothed, fed, hugged, supported, etc.  I know lots of kids who have had a lot less and have done just fine...  Hug them, kiss them, give them a bit extra positive attention when you are having a good day.  We're parents - it's in the job description to worry - but, they're going to be OK...
Smiley
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Listen, and understand. That terminator is out there. It can't be bargained with. It can't be reasoned with. It doesn't feel pity, or remorse, or fear... 'The Terminator' AKA CH
 
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Re: Angry Dad !
Reply #10 - Aug 21st, 2010 at 10:14pm
 
Quote:
Kids' attention spans are about as long as your pinky nail. Hug 'em, kiss 'em, tell 'em you love 'em. And maybe make a little more effort not to let your personal hell affect them. Sometimes we need to compensate a little.

Once they get a little older, they'll reach the age of reason where true empathy starts to develop. Then they'll understand a little better why dad is a little on edge. As long as you reiterate to them that they're not the cause of it.


To quote Jack Nicholson in the movie "The shinning..."words of wisdom Lloyd.  Words of wisdom"
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Matthew ch 11 v 28


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Re: Angry Dad !
Reply #11 - Aug 21st, 2010 at 11:12pm
 
Ok Linda  . Now there was an angry dad  Smiley
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Re: Angry Dad !
Reply #12 - Aug 21st, 2010 at 11:20pm
 
Dealing with CH is a little like dealing with a death in the family.  You go through stages, denial (not a river), Anger (yes the "Shining" does come to mind), and despair/depression (can be as deep and wide as the ocean).

The importance of talking to your family and having them talk back can't be stressed enough.

Nigel using the death analogy may help your family understand a bit better what you are going through and just how devastating dealing with CH can be.

Don't let the beast kick you or your families ass, fight back.  We have your back here!

PF Wishes!
Ging...
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Matthew ch 11 v 28


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Re: Angry Dad !
Reply #13 - Aug 21st, 2010 at 11:25pm
 
Thank dude

God bless

Nigel
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Re: Angry Dad !
Reply #14 - Aug 21st, 2010 at 11:26pm
 
Headache Boy uk wrote on Aug 21st, 2010 at 11:25pm:
Thank dude

God bless

Nigel

Huh Dude?     Grin Grin Grin
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Matthew ch 11 v 28


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Re: Angry Dad !
Reply #15 - Aug 21st, 2010 at 11:29pm
 
sorry I tend to use it just as a turn of frase , how about dudess?  Cool
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Re: Angry Dad !
Reply #16 - Aug 21st, 2010 at 11:31pm
 
Grin  Much better  Grin

You are quite welcome btw  Wink
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Re: Angry Dad !
Reply #17 - Aug 22nd, 2010 at 9:55am
 
In our family, the correct, gender based form of dude in relating to the fairer sex is "dudette!" Grin

Joe
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Re: Angry Dad !
Reply #18 - Aug 22nd, 2010 at 9:56am
 
Guiseppi wrote on Aug 22nd, 2010 at 9:55am:
In our family, the correct, gender based form of dude in relating to the fairer sex is "dudette!" Grin

Joe

Mine too, but didn't want to split to many hairs  Grin
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Re: Angry Dad !
Reply #19 - Aug 22nd, 2010 at 10:03am
 
I remember my girls getting upset when Joe was in cycle and commenting what an "AH" is can be etc. What the girls and I repeat to each other now is, "it's the headache talking". I think we got that off of a Grey's Anatomy episosde. At any rate, there is no denying that when Guiseppi is sleep deprived and under the influence of his CH treatment meds that he can be a little "edgy" if not down right "cranky". But I also know how much he loves us and I can see how hard he tries not to be a "AH" even though he's suffering.

Once the girls were old enough to really understand his condition and treatment they actually joined in on "can I get you some ice Dad?" or to now bringing him the red bull when we see "Olivia" the O2 tank come out of her hiding place.

Hang in there Nigel. Maybe you can so something special for the kids while you tell them you love them, and thank them for their support when you hurt.

Hugs.

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Re: Angry Dad !
Reply #20 - Aug 22nd, 2010 at 10:16am
 
Nigel, wake up you're ruining your kids lives...Just kidding. Mine are now 25, 23, and 21, and are my best friends. (I'm divorced recently so Mom's not anymore). But if I had a nickel for every time my kids laid a guilt trip on me about too much time at work, or at my desk when at home or when I was out for a day with Migraines back then, I'd be a wealthy man. Do try to find some time when you are feeling the best you can and laugh with them, but in the meantime, they are resilient and will love you for who you are, when you had the CH pain, and AFTER YOU BEAT THE BEAST, as well. Don't forget that's the goal. Good luck and just for caring, you're a great Dad.
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Re: Angry Dad !
Reply #21 - Aug 22nd, 2010 at 2:10pm
 
Nigel,
Everyone has spoken the truth here.  My daughter is 26 and there was a time (when she was about 3 or so) that I was working split shifts and she was at home with daddy.  He remembers her taking care of him, she has absolutely no memory of that time.  She also doesn't remember the *bad* times (except in a few instances where I had to take Jimbo to the emergency room and she got to stay with the neighbors).

Kids are resilient.  If they weren't, they'd come with better instruction booklets.

Carolyn
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Re: Angry Dad !
Reply #22 - Aug 22nd, 2010 at 3:13pm
 
If they weren't, they'd come with better instruction booklets.

The lack of said instructions has always annoyed the hell outta me!!!!! Grin Grin

Joe

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Re: Angry Dad !
Reply #23 - Aug 23rd, 2010 at 3:40pm
 
Instructions ???? as a carpenter I now know that the first thing you do is put the instructions to one side and get on with it and just use them as a reference ,you know the old adage " if you can't get over it get out of it "  not really possible with kids tho , but many have tried to write instruction books for kids and failed miserably  Grin

any how like you have all said , I should talk to them and let them know that I'm not turning into a monster and that it's not their fault.

Guss this is what comes of trying to keep a lid on things and pretending I'm OK . s'pose that was never going to work was it .

Some times trying not to expose your kids to bad and painful stuff can really have an adverse effect on them, I guess I should have known that .

God bless you all

Nigel
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Re: Angry Dad !
Reply #24 - Aug 23rd, 2010 at 7:09pm
 
Headache Boy uk wrote on Aug 23rd, 2010 at 3:40pm:
Guss this is what comes of trying to keep a lid on things and pretending I'm OK . s'pose that was never going to work was it .

Some times trying not to expose your kids to bad and painful stuff can really have an adverse effect on them, I guess I should have known that .

God bless you all

Nigel


That is the absolute gospel truth.  Think about it this way, kids' minds are fertile things and we encourage them to use their imaginations.......well, they know/sense something is wrong, and without them knowing for sure, their little minds tend to run amok and they can come up with some wonderful/not so wonderful things.  Fear of the *unknown* is the very worse thing you can experience.
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