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Head Surgery and CH? (Read 582 times)
KCDizzy
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Head Surgery and CH?
Aug 25th, 2010 at 10:35pm
 
I never thought about it before, but I took the survey and it asked about head trauma before getting Clusters.  My Clusters started at age 8, about a year after I had my first surgery in my life.  I had my adenoids removed.  Considering the proximity, I wonder if that had anything to do with it.  Has anyone else had this experience?
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« Last Edit: Aug 25th, 2010 at 10:35pm by KCDizzy »  
 
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Guiseppi
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Re: Head Surgery and CH?
Reply #1 - Aug 25th, 2010 at 11:13pm
 
It's a tough one to figure out. The majority of people who take the survey remember suffering head trauma of some sort as a child. On the other hand, the vast majority of people, with or without CH, can recall some fairly significant head trauma as they grew up!

Most of the suspicion points to a screwed up hypothalamus. The doctor at the last convention convinced me it's something you're born with. In sets of identical twins with CH...not only do both of the identical twins develop it, they both would start the initial onset at roughly the same time. The odds of both twins having somehow suffered identical head trauma are pretty slim.

Now if they can just figure out how to un screw up our hypothalamous... Wink

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Jewelz
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Re: Head Surgery and CH?
Reply #2 - Aug 26th, 2010 at 1:27am
 
Twins that both get them at the same time?  I knew about the hypothalamus theory and that you're probably born with it, but that little tidbit might be the perfect answer for the MIL. Lips Sealed Worth a try, anyway.  Thanks Joe!

KCDizzy, I'm really sorry to hear that you've had them since you were 8.  If it brings a grown man to his knees, I can't imagine what it does to a child. Cry For what it's worth, my BF's started at age 19 and it's been 19 years, but no head trauma, no surgeries.

Wish you all PFDAN.
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