Hi Kushka and Welcome, I wish it were under better circumstances that we meet.

Please see the following link and print it out, stuff it under your hubby's nose and tell him if necessary that you will not speak to him until he reads it.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

It is hard enough to deal with CH, let alone having to deal with others in our own families that do not or will not understand.  My heart goes out to you.

I'm sure your hubby is a good guy as you say, but right now you both need to talk about this and he needs to understand that your condition is very real. Have him read the letter linked above and come here to learn more about CH and how he can be a better supporter for you.

Hang in there!
PF Wishes to you!

P.S. Remember CH affects everyone in our family not just us.  I hope things get better soon for you, if you need a shoulder please pm me anytime.

Thank you for the responses.

I am currently on prednisone. I was on a 2-week taper to minimize headaches but we did not feel we needed Verapamil because it is not the usual time of year for me to get hit and I was not having CH at the time - just nasty migraines. The day after I went down to 1 tablet a day, the cycle started - suddenly and fiercly at 2am. Been to the ER twice for O2 this week. Neuro just happens to be on vacation and we live in a very rural area where medical support of any kind is difficult to come by. His partner was willing to put me back on prednisone but will not prescribe me Verapamil or any abortive as he is not familiar with my case and is worried about meds interfering with pregnancy. ER docs don't want to conflict with Neuro, so it for now, it is either the dance or the ER for O2 (which involves a long drive and even longer wait). I have been profoundly grateful for the O2, let me tell you! The other day I was on the verge of begging them to admit me until the Neuro returns so I could have O2 access when I need it.

Been back on prednisone for a few days - it is taking me from Kip 10 to 8-9 during attacks and they are hitting less frequently and are not lasting as long. But they are still going. i am so tired. Getting cranky and losing my strength when they hit - there are moments when the beast gets the upper hand. I pray to God my Neuro is back in on Monday.

As for my husband, I downloaded some information and will ask him to read it tonight. We have an 8 year old and my husband has always done a great job of taking over the parenting duties when I am uable to do so. I know he will continue to be a great dad when I am in cycle, I just need him to also be a great support for me. I know he wants to be - just doesn't know how and he gets scared and freaked out. I can tell he is trying to do things differently since we talked about it, he just doesn't know what to do or how to act. His own needs become more important - because he can control those. I just am not in the space to be as compassionate about it all as I usally would be - I'm sure you can understand!

Congratulations on your pregancy - I am glad to find someone in the same boat as me - I feel pretty alone in this most of the time.

Thanks for the support. I will be grateful for other suggestions or recommendations for meds that will not put the baby at risk.

Carlyn

Finally got O2 at home and am on Verapamil again -I am feeling much better the past few days - fewer attacks, less extreme and shorter in duration. 

The only downside is that my insurance refused to cover the O2, so I have to pay for it myself. They would rather me run up huge ER bills than be able to take care of myself at home. Irritating to pay monthly premiums and not get coverage for the things you need!

Lettuce makes a great point. Too often the default mode for insurance is deny. Your doc fills out a quickie "necessity" form and they pay. Sure worth a shot. So glad you got the home 02, a life changer for me for sure.

Joe