of my headaches. My headaches are around my right temple area. Since I started having CH headaches I have tingling around my right temple and it runs down my face and by the edge of my right eye. After I have one of these bad CH the tingling and numbness is worse and it effects my right eye. I have had a couple of nerve block shots and the headaches and numbness got better for a couple of days. Now my headaches are back and so is the tingling sensation around my temple and eye.  I am taking verapimil, idomicin, and lyrica. Has anyone this happen with numbness.

Thanks for your reply Batch.
My neurolgoist did get me on oxygen and imitrix injections. These cluster headaches really got bad in early September. Before that for two years I was getting nasty headaches on the right side of my head. I started taking all over the counter headache medicines and nothing worked until started taking excedrine migrine and excedrine tension. These two medicine together worked for awhile. Besides the headaches I just felt terrible most days. I would wake up in the morning and just have to drag myself out of bed and I would feel dizzy,drunk, and hungover.  This was very much unlike me as I use to get up at 2 or 2:30am and go to the gym and work out. Even on weekends I would wake up early and get up early feeling good. I don't what happened to me but I started feeling bad in the mornings. Later in the day I would get these headaches along with achy feeling through my body.  I went to the doctor and he said I had sinus infection. This went on for ahwhile with my doctor giving me shots and meds for sinus infection. I kept feeling this way and my doctor sent me to a ENT and he said I needed sinus surgery to clear out my sinuses. After I recovered from the surgery I felt good for about two months and the headaches returned. Over the next several months the headaches got worse. I would take a pocket full of excedrine to work to get me through the day.  I would get home from work and would just crash in the bed after taking excedrine. I would sleep the headaches off. In July and early August I started getting worse headaches. It would be days where it hurt so bad I would have to leave and go home.  I am a machine operator and I run three machines that needs my total attention. When my head started hurting so bad I couldn't concentrate on my work and it was kind of dangerous. After a few weeks of having to go home from work because of these nasty headaches and one bad one that I had to go to the ER my wife and I decided we needed to see another doctor.  I went to the ER two times and both times they gave me pain shots to knock me out. The second time at the ER the doctor said I may be having cluster headaches. I went to my doctor the next day and ask him to suggest a doctor for headaches.  He told me that I needed to see a neurologist. He found me a neurologist that majors in headaches. I first told me to take a leave from work and put me on veramcil and predasone. He also told me as soon as I felt a headache starting to get on the oxygen. If that doesn't work and the headache gets worse then one imitrix injection. I think I had two injection before the next visit. My next visit I told him about the numbness in my temple and face area. He gave me two nerve block shots in the back of my head. I immedialy felt better and the numbness and tingling was gone. He also took me off the predisone and increased the dosage of vermcil and put me on lyrica and indomethacin. The nerve block worked great for about a week but now the tingling and numbness is back and almost every afternoon I start getting a headache. I have been getting on the oxygen everytime I feel a headache coming on. So far it is working but I am scared I will have a bad one and I will have to get a imitrix shot. I go back to see the neurologist Monday Nov. 22. I hope I can make it the next few days. I was hoping to go back to work next week but now I am doubtful.
Sorry this was so long but I just wanted to tell everyone what has happened to me and maybe someone can shed some light on my conditon.  I forgot to say the neurolgist said I was having cluster headaches and inflammtion of the occiptal nerve.  Thanks for any replies or helpful information.
Darryl

Crank the regulator up to 15, I think you'll be pleasantly suprised at how much faster you can make the pain go away. If the bag is not refilling completely, you're still sucking in too much "outside" air which really slows the abort time.

There are different size oxygen tanks, i find it easiest to use E-Tanks. APRIA delieves them to me in this cute little steel 8-pack tray, keeps the tanks from possibly tipping over, (bad), and they're small enough to easily handle, take with you when you go out, carry up the stairs to the bedroom!

Some have big tank they keep bolted down in a room in their house, and keep several E-Tanks on hand for the portable runs in the car. The oxygen machines, called concentrators, generally don't work well for us. They take a while to warm up and start producing oxygen, and even at their peak i don't think they're at 100% oxygen, very important for us CH'ers!

joe

I went through an Indocin trial, concomitant with Verapamil at 600mg. Every week, they raised the Indocin dosage until I was at, if I recall correctly, 1000mg. It did not help me but eventually did make me sick to my stomach. One thing to watch out for because this is particularly harsh on the stomach, even more than other nsaids. The reason for that trial was to rule out hemicrania continua, a type of headache that just plants itself on one side of the head and doesn't stop. Apparently it responds to Indocin. My trial lasted 5 weeks.-Chris

You'll love having a home oxygen set-up! By having it at home, and starting it as soon as the tension and pressure starts, I can be pain free in as little as 6-8 minutes. Beats the heck outta the old 90 minute rides I used to take!!

Joe

Can't wait to get the tank at home!!!  It was amazing and I'd be thrilled to be able to attack the monster as soon as it starts its horror show.

You're so right, Joe: It beats the hell out of riding it out for an hour +.  Ugh.

I'm so thankful I was able to address this attack immediately instead of waiting 6 weeks due to not knowing what the heck was happening.  hallelujah.

Jeez, every time I see this topic "Tingling and numbness around the area", I think to myself "that sounds kinda personal". -Chris