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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Article on CH in my Local Paper Nov 24^th, 2010 at 9:44pm Article on CH in my Local Paper Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or I also created a PDF of it if anyone wants to save it, I've attached it as well.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Article on CH in my Local Paper Reply #1 - Nov 24^th, 2010 at 11:29pm WOW!!! Several recent posters should print that out and take it back to their neuros, great article. Joe
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E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: Article on CH in my Local Paper Reply #2 - Nov 25^th, 2010 at 8:12am VERY GOOD article......except for the wearing the oxygen overnight being especially effective. That has to be a misquote as that's not something that Dr. Rozen recommends
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Article on CH in my Local Paper Reply #3 - Nov 25^th, 2010 at 9:01am Ya, that wasn't a quote from Rozen and from the way it looks it could be information the writer found or that one of the other persons mentioned had given such as Lefkowitz or Gallagher given the placement in the article.
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Mike NZ

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Oxygen rocks! D3 too!

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Re: Article on CH in my Local Paper
Reply #4 - Nov 25^th, 2010 at 2:46pm

E-Double wrote on Nov 25^th, 2010 at 8:12am:

VERY GOOD article......except for the wearing the oxygen overnight being especially effective.

Wearing a non-rebreather mask overnight could be lethally effective in "curing" CHs as your oxygen cylinder will run out at some point and with the valves on the non-rebreather mask you'll suffocate.

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Pinkfloyd

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Re: Article on CH in my Local Paper
Reply #5 - Nov 26^th, 2010 at 4:53pm

Personally I think the article is terrible.

Not only is the oxygen info bad, but to quote a CMT (certified massage therapist) on what are good therapies, is NUTS.
Craniosacral and acupuncture are NOT good therapies and reads as an advertisement for chiropractor.
Then it quotes Rosen as stating cluster sufferers should see a neurosurgeon? Since he earlier mentioned surgery as a last option, I'll bet he said neurologist and not neurosurgeon. At least I would hope so.

I'm glad the author didn't interview a dentist and opthamologist.

Bob Angry

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JustNotRight

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Re: Article on CH in my Local Paper
Reply #6 - Nov 26^th, 2010 at 10:32pm

Granted the article wasn't very well written or researched (but then what can one expect from a relatively small town news paper.) but on the upside information on CH went out to the public at large which is a good thing, even if some of that information was misguided by the writer and some of the interviewees.

Signed
A Glass Half Full kind of girl Wink

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E-Double

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Re: Article on CH in my Local Paper
Reply #7 - Nov 27^th, 2010 at 7:30am

While I agree with you (Bob) that the following is poor,

"Oxygen dispensed through a face mask is also effective, especially when worn overnight. Although limited success has been recorded, alternative therapies may slightly alleviate symptoms.

Joanne M. Gallagher, CMT from Life Expression Wellness Center in Sugarloaf, said these types of therapies are “very important for the nervous system” and they are designed to “bring the body back into balance.”

“Craniosacral therapy and acupuncture can be a benefit to the process of healing,” Gallagher said."

I think the rest makes up a good article.

then again if it is someone brand new or not well educated in general, it may be written in a way that one would focus on those areas = Treatment. With that I see that I do see your point

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BC_Battler CH.com Junior Offline Stay strong Posts: 62 x0\|West Coast\|Canada\|\|0\|0\|BC,British_Columbia	Re: Article on CH in my Local Paper Reply #8 - Nov 27^th, 2010 at 5:05pm Thanks for sharing this, Ginger! I agree with the thoughts that others have made re: oxygen and some of the research missing from the article, but overall I enjoyed it. Some good general info and the opportunity to bring CH info to the world at large is a good thing. Thanks for posting! Cheers -
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Article on CH in my Local Paper Reply #9 - Nov 27^th, 2010 at 10:40pm I thought the description of CH was fairly well done. The treatment side left a lot to be desired. However, overall I think the article was positive simply because of the exposure factor. Jerry
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thebbz Ex Member	Re: Article on CH in my Local Paper Reply #10 - Nov 30^th, 2010 at 2:00pm Some good, some bad. Quote: Although limited success has been recorded, alternative therapies may slightly alleviate symptoms. This is total hogwash. Edit: And I like Rozen the bb
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deltadarlin

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Re: Article on CH in my Local Paper
Reply #11 - Dec 1^st, 2010 at 8:27am

I have a question for you clusterheads out there. Is this statement 100% accurate "They are termed “cluster headache” when essentially three main conditions exist. (A) The headache is always on the same side of the face or temporal area; (B) the duration of pain severity; and (C) the number of occurrences each day."?

I do have several issues with the article, however, we don't really know what Dr. Rozen said. The reporter could have paraphrased what he said or altered it somewhat (and that is the main reason I will NOT do interviews for a newspaper or any other written media). I've given interviews before and what I said was not exactly what was written and it threw the intent of the article off.

Carolyn

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E-Double

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Re: Article on CH in my Local Paper
Reply #12 - Dec 1^st, 2010 at 10:18am

deltadarlin wrote on Dec 1^st, 2010 at 8:27am:

I have a question for you clusterheads out there. Is this statement 100% accurate "They are termed “cluster headache” when essentially three main conditions exist. (A) The headache is always on the same side of the face or temporal area; (B) the duration of pain severity; and (C) the number of occurrences each day."?

I do have several issues with the article, however, we don't really know what Dr. Rozen said. The reporter could have paraphrased what he said or altered it somewhat (and that is the main reason I will NOT do interviews for a newspaper or any other written media). I've given interviews before and what I said was not exactly what was written and it threw the intent of the article off.

Carolyn

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deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: Article on CH in my Local Paper Reply #13 - Dec 1^st, 2010 at 7:39pm I think the only part that I took issue with is "always on the same side of the face". Especially since there are those who have had it change sides.
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