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Mike Bernardo

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How's this for pain
Dec 2^nd, 2010 at 6:44pm

I got a bad nosebleed at work, which led to a trip to the ER after not stopping for 45 minutes. They cortarized, went back to work, sneezed, bled another 45 minutes, back to ER, they couldn't stop it, and now I have a balloon in my nose, on the right side, of course, during the worst CH of my life, on the side of my CH, the week after my CH peaked. Oh, yeah, and I'm 800 miles from home on an assignment for work and my insurance stinks. Isn't life grand!!

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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: How's this for pain Reply #1 - Dec 2^nd, 2010 at 6:50pm Only another CHead could understand. Feel for ya, mate.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: How's this for pain Reply #2 - Dec 2^nd, 2010 at 6:50pm Man when it rains, it really pours. Joe
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Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: How's this for pain Reply #3 - Dec 2^nd, 2010 at 6:54pm Hope you get some relief real soon!!!
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: How's this for pain Reply #4 - Dec 2^nd, 2010 at 6:55pm Sorry to hear about your hard time of late. Things like this Make you appreciate the good days. I would have said when life hands you lemons make lemonade but I think after all that blood loss an Orange juice or two would be better. Sending PF vibes!
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Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: How's this for pain Reply #5 - Dec 3^rd, 2010 at 11:02am When I reach points like that, the only thing I can recommend is throwing your hands up and laughing your butt off, because if you don't you just might end up crying........ Feelin' for ya.
Back to top	Triptans cause increased number of hits and increased intensity. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.&& IP Logged

Mike Bernardo CH.com Veteran Offline I Love CH.com! Posts: 231 Chesterfield, NJ Gender:	Re: How's this for pain Reply #6 - Dec 3^rd, 2010 at 1:30pm Thanks, all. I'll cry when I get home and am hugging my wife and kids. I'm afraid to cry now for fear that my nose may start bleeding again. I'll settle for some extra drugs and hopefully some sleep when this thing is ripped out of my nose Saturday morning.
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Kilroy 2.0 CH.com Sponsor Offline Kilroy 2. is Here! Kilroy 2. is Everywhere! Posts: 1637 Madison,WI Gender:	Re: How's this for pain Reply #7 - Dec 3^rd, 2010 at 2:08pm Sorry to hear all that. I will keep you in my thoughts. Here are some internet Hugs until you get home.
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bejeeber

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Re: How's this for pain
Reply #8 - Dec 3^rd, 2010 at 5:21pm

When it rains it pours and when it pains it ROARS. Angry

That sux.

I'm sure you are REALLY looking forward to getting home and the end of the crisis at this point.

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Linda_Howell

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Re: How's this for pain
Reply #9 - Dec 3^rd, 2010 at 6:58pm

NO one but all of US..can deeply feel what you are going through Mike. It may not help to know that...or then again it might. Wink

Don't blow your nose. Or sneeze. Or laugh too hard. or...well you get the picture. Sometimes we do need to laugh at the unfairness of all of this though. We're all with you. One of has an ice pack. Another has some cotton. Someone else has a shot of whiskey for you. And I have some tea and empathy.

Linda

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Hurt people.....hurt people. Think about it.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: How's this for pain Reply #10 - Dec 3^rd, 2010 at 9:35pm Whiskey.....someone offering whiskey???? Joe
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: How's this for pain Reply #11 - Dec 4^th, 2010 at 12:00am Guiseppi wrote on Dec 3^rd, 2010 at 9:35pm: Whiskey.....someone offering whiskey???? I'll share a wee dram or two of a single malt whisky with anyone here. Although for anyone in cycle it might be best if I drink it for you.
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jonmach CH.com Newbie Offline I love YaBB 1G - SP1! Posts: 24 ocan city md Gender:	Re: How's this for pain Reply #12 - Dec 4^th, 2010 at 10:46pm It felt like my eye bled for 45 min the other day if that makes you feel any better. (deep sigh)
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jonmach

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Re: How's this for pain
Reply #13 - Dec 4^th, 2010 at 10:53pm

i just thought of something i have never tried. all this whiskey talk. how bout a shot in the middle of one of these bastards. i mean just cuz a sip will trigger one doesn't mean a shot wont make it any worse RIGHT! so F$^ k it. next ch im getting shitfaced. if it kills me i'll post you from the other side and suggest others don't try such a foolish en devour.

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Mike Bernardo

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Chesterfield, NJ
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Re: How's this for pain
Reply #14 - Dec 4^th, 2010 at 11:09pm

Last night the pain from the balloon was so bad, I deflated it and pulled it out. I flushed the nostril with a saline bottle, and put antibiotic ointment up there. I forgot to mention that my MRI from my cluster checkup last year showed I had polyps on my sinuses, which could be causing this issue (bleeding, not the headaches). either way, still full cycle, but no more bleeding for now. and up to 100mg of topiramate, so off to loopy-loopy land. 12/22 is doc visit, and I'll ask him whether I can work up to 200mg to see if we can knock the beast out sooner rather than later. I can't even describe the treatment I got in the hospital last week. they were more concerned with my CH than my bloody nose, and got pissed that I took off the cheap 5 cent O2 mask they gave me. REALLY?!?! You want me to wear this? I said. I had to tell them to put it up to 15liters and that the mask was letting in regular air. my bp was rising minute by minute as I was getting more and more agitated and the pain was settlling from my entire head to the usual spot in the right/center. but I digress, I'm home with my family and the horror has passed. Pain I can deal with. which leads to another quickie about how the docs thought it was funny that I didn't blink either time when they burned the inside of my nose with the chemical for cortarizing or when they jammed the balloon into my sinus. I asked them if they have clusters. when they said no, I said, if you ever do, you'll understand how nothing else in the world (except maybe childbirth for you ladies) will ever hurt as much ever again, and like that guy said in that infamous Sopranos episode "you think this is cold? I wash my B*lls in ice water".

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Mike NZ

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Re: How's this for pain
Reply #15 - Dec 5^th, 2010 at 1:09am

jonmach wrote on Dec 4^th, 2010 at 10:53pm:

i just thought of something i have never tried. all this whiskey talk. how bout a shot in the middle of one of these bastards. i mean just cuz a sip will trigger one doesn't mean a shot wont make it any worse RIGHT! so F$^ k it. next ch im getting shitfaced. if it kills me i'll post you from the other side and suggest others don't try such a foolish en devour.

Jonmach - I just love the attitude you're showing in this post. You're showing that you're still in charge and the beast isn't.

I'm just lucky in that a whisky won't trigger a CH for me, although that suggests I may be chronic (although I've not had them for a year yet) and I only have a wee dram (a bottle lasts me about 6 months).

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wimsey1

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Re: How's this for pain
Reply #16 - Dec 6^th, 2010 at 8:05am

Quote:

I can't even describe the treatment I got in the hospital last week. they were more concerned with my CH than my bloody nose, and got pissed that I took off the cheap 5 cent O2 mask they gave me. REALLY?!?! You want me to wear this? I said. I had to tell them to put it up to 15liters and that the mask was letting in regular air. my bp was rising minute by minute as I was getting more and more agitated and the pain was settlling from my entire head to the usual spot in the right/center. but I digress

Oh boy...do we have some ER horror stories or what? I think we ought to have a campfire who can tell the biggest scariest CH horror story ever event. I'd put this one at in top 10...CH...nose bleed...balloon up my nose...more blood...cauterize...KIP 8...cheap mask...OMG. Undecided

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: How's this for pain Reply #17 - Dec 6^th, 2010 at 8:45am It does point out that education wise, we still have a ways to go with the medical community at large. If they didn't hurt so damend much these stories would be freaking hysterical!! Joe
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