Hello Everybody!
It's been a while but I thought I'd drop a line.  I have been PF for three years now, though that's not unusual (through my lifetime I've noticed I get the beast on average every four years). I've been on Batch's vitamin D regimen since my last cycle. The main thing I want to say is this: During the summer months I cycle a lot and I cut back on vit D since I'm in the sunlight for anywhere between 1-1/2 to 4 hours most days. During the past two years in the late fall when I am spending more time indoors I've noticed that I've been hit with shadows (increased muscular tension, a bang or zap up the side of my head that feels like one starting but then immediately stops) - like a new cycle is building all over again.  Since, as I've said, I get the beast on average every four years this is a bit disturbing. In each instance I've ramped up the vitamin D to 10-20,000 IU a day (along with the other vitamins Batch recommends).  Interestingly, and thankfully, after a couple days the shadows go away. During this Fall transition time I sometimes forget to take it for several days and I notice the shadows return; when I get back on the program they subside.
During the past three years I've checked in on the forum from time to time to catch up and have been please to see that many have been helped by the vitamin D etc. and I thought it about time to share my experience.
FWIW
-Glassman

I also thought I would share that a very strong cup of dark coffee actually seems to help reduce the duration of my hits better than chugging down a can of Red Bull. I then apply a cold pack over the right side of my forehead and over my eye. It also seems to work if I apply the cold pack to the right side of my neck.

TheAndyT wrote on Jan 23^rd, 2014 at 11:43pm:


Make sure you ask for a prescription for oxygen up to 15 LPM.

Hey TheAndyT, its good to hear you have started on the accelerated D3 regimen.
When I went to see my neuro after having started the regimen, i printed some posts from Batch about the regimen and took them with me to show him, he was a bit sceptical at first but he has since told me that he has since visited this site and has learned a lot from it. I told him that he could give my contact details to his other CH patients if he thought the regimen could help them, amazingly he has done that and 2 of his CH patients have contacted me and are now on the regimen and responding well. He has also prescribed me some home oxygen and he has also prescribed it to his other patients. This site and Batch's knowledge and eagerness to share are far reaching with neuros expanding their own knowledge and more importantly learning that drugs don't have to be used for all ailments 
All the best

Hello Batch!  Just recap for you:
Started: mid Sept
Sept 25 - 86 nmol/L
Oct 11 - 170 "
Nov 8 - 373 "
Dec 18 -155nmol/L
PTH 3.1
Incorrect Ionized Cal 1.22
Correct Ionized Cal 1.21

Jan 17 -178nmol/L
I'm still Cluster free Batch I'm so very overwhelmed and thrilled, I can't thank you enough 


I agree that our environment does play some kind of roll, somethings perhaps we can't control.  But what we can control is our diet, I do believe all of the processed foods out there, may aggravate our chemistry.  I try to follow the GROMBS and keep away from the processed stuff as much as possible. 
Just wanted to let you know, all is good and next Neuro appt is April 1st (hopefully less snow by then). Dr Stewart Reid already has a copy of your regemin, I'm looking forward to seeing him CH FREE!
Thanks Batch, your the greatest!

Slacker: wishing you well! pfw's to you my friend

Hi Batch or others!  Just a quick word, can someone tell me were to locate the survey for CHer's trying the Vit D regimen, I don't think I've completed it as yet. 
Thank you!
Sue
pfw's

Thanks Hoppy! 

yes im one of those that haven't done the survey yet.
well, ive had a shocker of a week,  been on regime for 6 months, been 4 1/2 months of relative pain free.
was getting groups of shadows, nothing over kip 2 and aborted with red bull, only 1 imigran in that time, out of fear as it was 4 shadows in one night.  have played with the fish oil and magnesium levels over that time to see if that fixed the shadows, as well as baking soda and the nuts and berries and mushrooms.
1 week ago, I got a kip 4-5, aborted with red bull and cold pack, then a couple a day since then all kip 5 ish
luckily 3 days ago I went for my blood test which I get the results in 2 days with my doctor.
ive consistently taken 180 mg verapamil and was looking at weaning off only last week, but reluctant while shadows are around and now the ones abit more than shadows. this is my danger time of the year, I know this because this time last year was HELL
the funny thing is, ive been taking 10,000-15,000 vit d3 all this time, but over the last week, when I titrate up to 20,000 dose of d3, the next day I don't get the kip 5 hits.
because I haven't had a test for nearly 4 months ( ive been slack ) I haven't just continued with the 20,000 vit d3 dose because I was worried where my levels were.
I was originally 41 nmol and after the accelerated regime course I got up to 193 nmol, but that was 4 odd months ago.   im hoping that when I get the results they will show that my levels had dropped under the green zone and this will be a good indication for others or for me that the regime was definitely working, and a good test will be to increase my intake and I should get to a p/f state again.
you cant believe how nervous I am waiting till Thursday and hoping for a low d3 count,  if its not a low count, then I guess i'll have to see whats changed or what else I can do.
kip5 is still a hell of a lot better than what I had, but, it still damn uncomfortable !
i'll post up my result ( as another shadow makes an appearance as I type !!!!!!)
cheers
colin

thanks for your reply batch,
           it will be interesting to see what my levels are when I see the doc on Thursday, It was great timing to take the test, just as the beast started to rear its head, i'll let you know what the result are.
I understand what you mean about winter months depleting vit d levels,  funny thing is though that here in Melbourne Australia, we are right in the middle of summer and I work outside and am fair skinned and getting a lot of sun at the moment.  but on the other hand, pryor to me starting the regime, I tested 40 nmol, so I guess I cant guarantee I can actually absorb it, or enough of it just relying on the sun alone.  a few weeks back I did have a separate issue, which I had to take a week of anti biotics, maybe that effected things, so hopefully questions will be answered at the doc's Thursday........
cheers
colin

Hi, i just realised i haven't completed the survey. I'll be doing it today or tomorrow. Thanks for reminder Batch.