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wimsey1

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Coming off verapamil
Jan 28^th, 2011 at 7:37am

I saw my neuro this past week, and he wants to start titrating me off verpamil. I'm currently at 400mg/day, and his thinking was: either I'm out of cycle (for me, since I'm still getting about 1 hit/week) or the verpamil is effective at its current levels and is controlling the cycle. He thinks by coming off slowly (down 40mgs every two weeks) I'll know. Yeah, I'll know all right. I agreed since I also want to discover if I am losing my chronic status, but...I really, really don't want to go back to where I was last April, and for the past 23 years. Crossing my fingers and praying. I'd like your prayers, too. God bless! lance

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BigCoffinHunter CH.com Veteran Offline The man in black fled across the desert Posts: 204 x0\|Schenectady\|USA\|\|0\|0\|NY,New_York	Re: Coming off verapamil Reply #1 - Jan 28^th, 2011 at 8:35am I don't consider my cycle 'over' until I've gone a few weeks without a hit. I'm not sure how a chronic would measure that though.
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Kevin_M

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Re: Coming off verapamil
Reply #2 - Jan 28^th, 2011 at 8:40am

Reducing that slowly may be ok, there will be signs if you need to stop decreasing or increase again without taking you back to the hard times. You may find 400mg/day is not needed and getting by at this time can be done with 240mg or so, more or less. Completely off verap in time would be nice, but see where this leads.

When chronic, I've found there have been times of higher and lower activity.

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« Last Edit: Jan 28^th, 2011 at 8:42am by Kevin_M »

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Coming off verapamil Reply #3 - Jan 28^th, 2011 at 10:11am Prayers your way Lance, deserving of a break you are! (to quote my good friend yoda!) Joe
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Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: Coming off verapamil Reply #4 - Jan 28^th, 2011 at 10:32am Good luck, I wish you success. You deserve it.
Back to top	Triptans cause increased number of hits and increased intensity. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.&& IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Coming off verapamil Reply #5 - Jan 28^th, 2011 at 12:24pm Good luck Lance. I hope you lose that status too. -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

his wife CH.com Old Timer Offline The sweetest sound is my children's laughter Posts: 271	Re: Coming off verapamil Reply #6 - Jan 28^th, 2011 at 12:33pm Prayers and good thoughts coming your way for a good outcome Lance. Keep the faith!
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Coming off verapamil Reply #7 - Jan 28^th, 2011 at 2:15pm I'm with Kevin on this. Here's hoping you can get off and STAY off! Praying to that end. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Coming off verapamil Reply #8 - Jan 28^th, 2011 at 2:16pm Thoughts heading your way that you'll be able to manage this transition well. I can imagine that going from your current comfort zone where your medication is effective to one where it may or may not won't be easy.
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wimsey1

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Re: Coming off verapamil
Reply #9 - Jan 29^th, 2011 at 7:57am

Thank you, everyone. Prayers we may all be pain free, today, tomorrow and always. I'll let all ya'll know how this goes. I might not be the only one who is venturing into the land of what if I stopped taking meds? We hear what isn't working, but not so much on what happens when meds are working, and it's time to back down. Blessings. lance

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