If he's breathing, leave him alone. You do realize how many of us CRAVE sleep when getting pounded by attack after attack, right?

That's GREAT news! As they've mentioned, when in high cycle, something like 4-6 hours of uninterrupted sleep is pure paradise. Hoping and praying the 02 proves the magic wand for him that it's been for me. Thanks again for being a "hovering supporter." You rock!

Joe

Not a ch'er here, but I've used sumatriptan injections for migraines and I eventually had to quite taking them, because they would make me sleepy.

I describe it as the snake dance. I inject in the bum, I can track the meds path up my back, neck and into my head! It's a tightening "snakes under my skin" feeling. But oh when it hits the noggin, almost instant relief! I've never had the tired thing after, more a euphoria.

Joe

Thank you and all the supporters of Cluster Sufferers, my wife is much like you and the attention that you give is priceless and means more than all the drugs in the world (even if we need the drugs too ).

I just wanted to make you aware of the Sumavel DosePro. Others have already mentioned LET HIM SLEEP so I'll leave that part be. I was prescribed the needle injections (an off brand) and was only given 4 ($10). I took them back as I was to get this new kind that does not have a needle. I got 8 ($15). They are 6mg each and inject the medication through air instead of a needle. It is not painless but if you have an ice pack just ice the area if you are worried the first time. I don't know many people that during an attack are much worried about any small "rubber-band-like" smack on their thigh or side. I hope this information helps. I had to ask specifically for what I needed. There are coupons that take the copay to $15. You get a little card and it has 6 uses on it. Pretty good deal for me as it is a brand name medication and cut my price in half. My doctor told me to "stock up" due to how hard it is to get when you're in the middle of an attack. I am in the middle of an episode and was struggling to get what I needed. When this episode (I'm episodic, not chronic) is over I'll finish out the refills to have on hand...

Hope this all helps.

dault

aw thanks Dault you guys are worth it, and I am so glad to hear you have someone by your side through this!

we will definately look into that Sumavil Dose Pro, & stock up inbetween episodes. I think his cycle is winding down - PTL - o2 set up last night, so we are trying to detox and hoping to find prescription free ways to manage this.

but, we will always keep the cupboards full, we know now to never under estimate the power and unpredictability of these HAs

Cupper, if you get a chance try and get the shots precribed. Pricier then the pills but SOOOO much faster.

That being said, if you haven't already done so, read this link

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

It has almost eliminated my trex useage altogether. If you go the clusterbuster approach, you will need 02 as an abortive as you need to detox off of everything else for the busting to be effective.

Joe