Click this link to read a post I like on the clusterheadaches.com message board...

May 2^nd, 2024 at 11:47pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Supporter's Corner › Supporter's Corner › Some Decisions

(Moderators: DJ, Mrs Deej, Margi)

‹ Previous Topic | Next Topic ›

Pages: 1

Some Decisions (Read 2851 times)

rascleo

CH.com Junior

Offline

I Love CH.com!

Posts: 26
Sa Diego, Ca.
Gender: male

Some Decisions
Apr 3^rd, 2011 at 12:58am

First I'd like to thank everyone who replied to my posts, that meant a lot to me!
I've made some pivotal decisions re: my Medical situation. I've decided to stop seeing all of the Doctors on my medical team, as there is nothing they can do to help me, and their time would be better served seeing patients they can actually help. In addition, I've decided to discontinue any and all medications I've been prescribed for Chronic Cluster headache, as they have no affect and do not work, so why spend the money? To me it's like throwing out good money after bad. My partner and I disagree on these points, but at the end of the day it's my body, therefore my decision. Finally, I've decided to not post on this site any longer, as all I do is complain and complain. All of you know what Chronic Cluster Headaches are and how devastating they they can be, so why listen to me complain over and over again?
Thank you all for you kind,supportive and caring words. I wish you all pain free days, weeks, months and years!
All my best to you!
Sincerely,
Richard

« Last Edit: Apr 3^rd, 2011 at 1:00am by rascleo »

Richard in San Diego

IP Logged

Click Here to visit the CH.com Facebook page!

QnHeartMM

CH.com Sponsor

Offline

I AM a Phoenix!

Posts: 1783
San Diego, CA
Gender: female

Re: Some Decisions
Reply #1 - Apr 3^rd, 2011 at 11:22am

Richard, I hope that you don't stop posting here. If anything, this is a group that fully understands your pain.

I agree with you - it might be time to fire your medical team. But not to go it alone. Please call the neurologist my husband see's here (Dr. Yu Dennis Cheng MD). He's a neuro in La Mesa behind Sharp hospital and told us he treats several CH patients. He's been very helpful to us.

If you are a Kaiser patient, then please try to get an appointment with Dr. Robert William Hogan II in La Mesa. He's a primary care doctor, but "gets" CH and will get you through the process to neurology.

You're right - your meds may be bad money after good, because maybe the dosages are wrong, or the meds themselves are not right. But let's get the oxygen working right for you (regular tanks, not the concentrator) and at the right flow, with the right mask.

DON'T GIVE UP on yourself, because we won't give up on you.

And by the way, send your partner here too, we support supporters (I am one myself) in addition to sufferers.

- Christy

Treat people with kind words.

IP Logged

Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Some Decisions Reply #2 - Apr 3^rd, 2011 at 12:00pm Richard... Listen to Christy. She's tell you 100% right.
Back to top	IP Logged

flipperlips CH.com Alumnus Offline Live, Laugh, Love Posts: 935 Mcallen, TX Gender:	Re: Some Decisions Reply #3 - Apr 3^rd, 2011 at 12:34pm I agree...listen to Christy. Don't give up on the meds...it takes time to find the right dosages and combinations. No to CH'ers are the same.
Back to top	Only one life.....only one chance to make the moment count for something - Racer1_NC IP Logged

Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Some Decisions Reply #4 - Apr 3^rd, 2011 at 1:00pm Richard - you've been given some great advise by some of our best supporters. Hang in there - but please don't go away - there is help here for you. Carol
Back to top	IP Logged

37-41withrestrictions CH.com Veteran Offline NOT SO PF AT THE MOMENT Posts: 124 Chester UK Gender:	Re: Some Decisions Reply #5 - Apr 4^th, 2011 at 8:23am Hi Richard I'm hoping I have read the wrong intention in this post... Please dont give up and definately dont do anything to end this pain. I am a sufferer so I'm speaking from experience.you must be in a pretty dark place at this moment. check your PM Sue
Back to top	If you see something you want.. reach out and grab it with both hands.....just watch out you dont get a smack in the chops for grabbing the wrong thing!!! IP Logged

QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: Some Decisions Reply #6 - Apr 5^th, 2011 at 9:50am Happy Birthday Richard. I hope it's a pain-free day for you.
Back to top	Treat people with kind words. IP Logged

rascleo CH.com Junior Offline I Love CH.com! Posts: 26 Sa Diego, Ca. Gender:	Re: Some Decisions Reply #7 - Apr 7^th, 2011 at 3:12am Thank you so much! Nice birthday, but the Cluster Headaches were uninvited guests. I used a Sumavel so they didn't ruin the party! Richard
Back to top	Richard in San Diego IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!