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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › Propranolol?

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Propranolol? (Read 2077 times)

CrankieFrankie

CH.com Junior

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Clusterhead

Posts: 29
New Jersey
Gender: female

Propranolol?
Dec 12^th, 2011 at 5:15pm

Hi Everyone,

I had a visit with my Neurologist this morning about my cluster headaches. (Short back story: I was diagnosed 8-9 years ago and they recently came back a couple weeks ago).

She gave me a prescription for Propranolol. I tried to do as much research on this site for that medication but I couldn't really find what I was looking for. So far I know it is an outdated medication for cluster headaches. But has anyone had any success? I also suffer from anxiety so if this medication works, it may help with a couple problems.

Any help is much appreciated!

Thanks!
Frankie

"I close my eyes, I tell myself to breathe and be calm. I know you feel like you are breaking down. I know that it gets so hard sometimes. Be calm."

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jon019

CH.com Alumnus

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"Ya gotta believe!"

Posts: 1656
USA
Gender: male

Re: Propranolol?
Reply #1 - Dec 12^th, 2011 at 7:45pm

Welcome Frankie...you are home!

....keep reading, you won't find info and support like this this place provides available ANYWHERE else....

Now then...this sounds like a regular neuro...you need a headache specialist. Propranolol is an ANCIENT med for ch...the first I was ever prescribed almost 27 yrs ago. Your Doc is reading an OLD textbook. Didn't do squat for me...have never heard of it helping others (some indications it is may be effective for migraine)

Click on member "Guiseppi"...and request his last 20 msgs...in one of those you will find an excellent summary of effective meds available .... done way better than I ever could....

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Propranolol? Reply #2 - Dec 13^th, 2011 at 9:52am See the PDF file, below, for options.
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CrankieFrankie

CH.com Junior

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Clusterhead

Posts: 29
New Jersey
Gender: female

Re: Propranolol?
Reply #3 - Dec 13^th, 2011 at 11:00am

Thanks guys. I appreciate the information about other types of medications.

But since I was just prescribed the Propranolol yesterday, I was looking for anyone who had experience with it. I want to give it a shot. At this point, I'm willing to try what the doctor gave me because I'm really reaching my limit with these headaches. That, on top of anxiety and depression, is really pushing me to the edge. If it doesn't seem to be working, I will definitely be trying one of the treatments you have suggested.

"I close my eyes, I tell myself to breathe and be calm. I know you feel like you are breaking down. I know that it gets so hard sometimes. Be calm."

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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: Propranolol? Reply #4 - Dec 13^th, 2011 at 11:59am Prop. was the first med Rx to me 40-years ago. Zero benefit.
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dazza CH.com Newbie Offline I Love CH.com! Posts: 13	Re: Propranolol? Reply #5 - Dec 13^th, 2011 at 10:32pm Was on propranolol about three years ago for 12 months, cant remember what dosage but it was quite high. It didn't give me any relief. Now on 480mg of verapamil and have mist my last two winter cycles, still got hit last summer.
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PlayDoh

CH.com Veteran

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I Love CH.com!

Posts: 116

Re: Propranolol?
Reply #6 - Dec 14^th, 2011 at 1:20am

Tried oxygen? I hope so.

You may want to give Batch's vitamin regime a go. It worked for me and quite a few others.

A multi-vitamin, covers the Magnesium & zinc, and I haven't even added Vitamin K yet, although I will soon. I also plan on making a "shopping list" for most major stores, containing what to buy so you don't need to get a Ph.D in vitamins just to 'give it a go'.

Although I do recommend you educate yourself, and as a disclaimer you should discuss this or any therapy with a doctor before trying it. Yet IMO a Pharmacist should be suffice, since its only Vitamins and not exceeding recommend dosages. (re-insert disclaimer) Wink

Omega 3 Fish Oil - 2000 to 2400 mg/day                (EPA 360 mg/day, DHA 240 mg/day)
Vitamin D3 *    - 10,000 IU/day
Calcium **       - 500 mg/day (calcium citrate preferred)
Magnesium       - 400 mg/day (magnesium citrate or magnesium gluconate)
Vitamin K ***    - 120 mcg/day
zinc                   - 10 mg/day
Boron                -    1 mg/day

This regimen can be taken any time of the day, but it's best taken in the morning with an 8-oz glass of lemonade, limeade, or any fruit juice high in citric acid sweetened with with a little honey. Honey is a natural source of Boron, which is listed as one of the "cofactors" along with magnesium, vitamin K and zinc.
It appears the average response time to a significant reduction in CH frequency and severity or going pain free is near the end of the second week with some going pain free in as little as two days after starting this regimen and others taking upwards of a month for a significant response. by Batch

Link to Batch's Post regarding the regime.
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

As strong and tough as CH's are, I AM STRONGER!

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IndianaJohn CH.com Hall of Famer Offline Into the jaws of the Beast Posts: 686 Decatur,Indiana,USA Gender:	Re: Propranolol? Reply #7 - Dec 27^th, 2011 at 2:47pm Propranolol never worked for me
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