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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Beast is back... joy

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Beast is back... joy (Read 1925 times)

Gundude

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Beast is back... joy
Dec 15^th, 2011 at 7:15am

So, I guess I'm like half of the episodics I read here... back again after a long absence.

I'm exactly 3 years since my first real cycle. Almost to the day. I didn't find this place until Jan 1st 2009. But reading the early posts is odd.

I'm curious how common 3 year cycles are. I had one fairly light cycle in the spring of 2010. But this one is almost an exact duplicate of my first.

Oh well, I'm certain you guys know why I'm here... I just took the beast for a kip 8 bangging and felt the need to check in on the old CH forum to see if we had any new info and to offer a data point to those paying attention to us. Seems like the thing to do when in "afterglow" of a skull-fucking, no?

« Last Edit: Dec 15^th, 2011 at 7:16am by Gundude »

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Guiseppi

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Re: Beast is back... joy
Reply #1 - Dec 15^th, 2011 at 4:48pm

Doctor Goadsby says the beast never goes away forever. He keeps telling my buddy Jimi, PF for over 10 years, you're not cured, just on a long remission! Wink

New stuff.....review the oxygen link, make sure you're up to date on the newest and greatest tweaks.

Go to the medications thread and read the link "123 pain free days and i think I know why." A long thread started by one of our research oriented members, Batch. It's a simple daily vitamin/mineral supplement that's providing a lot of relief to people trying it. Not a cure but it's cheap, OTC stuff, good for you whether or not you have CH so certainly worth a try.

Sorry beasty came back, I had a cycle last year after an almost 2 year remission.....really sucks when you realize he's returned. Angry

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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wimsey1 CH.com Alumnus Offline I Love CH.com! Posts: 2457 MA Gender:	Re: Beast is back... joy Reply #2 - Dec 16^th, 2011 at 7:59am I count my remissions in days. But I'm certain I am as grateful for those pf days as is any episodic for longer periods, and just as disappointed when they come back. Hang in there. Blessings. lance
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LasVegas

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Episodic CH since 11 yrs
old, now 50.

Posts: 2020
north of the 60th parallel
Gender: male

Re: Beast is back... joy
Reply #3 - Dec 16^th, 2011 at 12:34pm

I was in a 6 yr remission and now the DRAGON returned and has been TORTURING me for 4 & 1/2 months Angry

Everybody has their own unique cycles and treatment that helped in the past, might not work this cycle. What didn't provide relief last cycle, might benefit this cycle.

Unfortunate trial and error with lots of patience required!

(1) Transitional, (2) Preventive and (3) Abortive treatments all required!

"Knowledge is Power" AKA you will still need to be a self-advocate!

As Joe mentioned, o2 revisions, anti-inflammatory are new. Also, you might want to look into energy drinks and melatonin that have been helpful for many.

Other than that, not too much new in the past 3 yrs except members on this site.

Be tough! Cool

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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Gundude

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Re: Beast is back... joy
Reply #4 - Dec 17^th, 2011 at 1:01am

I tried the infamous treatment-that-shall-not-be-named when I had my last "light" cycle... the quality was suspect to say the least, but it did turn out to be much easier than this. This is a mirror image of my first one.

Due to ongoing job requirements and extremely tight finances, as well as being out of touch with "Those kinds" of friends... it's just not possible this time around. I'll check the vitamins out!!

If this does mirror my last cycle... I'm hoping for an end before Feb.

At least this time I know what it is... I know there is hope and that it isn't a tumor or insanity. Those were some dark days.

Thank you.

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LasVegas

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Episodic CH since 11 yrs
old, now 50.

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north of the 60th parallel
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Re: Beast is back... joy
Reply #5 - Dec 17^th, 2011 at 1:07am

Gundude wrote on Dec 17^th, 2011 at 1:01am:

Are you writing in code? Huh

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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BobG CH.com Hall of Famer Offline Posts: 6422 St. George, UT Gender:	Re: Beast is back... joy Reply #6 - Dec 17^th, 2011 at 7:02am *Are you writing in code?* I think he's talking about ClusterBustin'.
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LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: Beast is back... joy Reply #7 - Dec 17^th, 2011 at 8:28am BobG wrote on Dec 17^th, 2011 at 7:02am: *Are you writing in code?* I think he's talking about ClusterBustin'. "Not my cup of tea"
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Beast is back... joy Reply #8 - Dec 17^th, 2011 at 9:45am If you haven't gone to the board for "the treatment that must not be named!" Do visit it. They have instructions on how to produce your own "Vitamin M". There are other legal versions of busting methods available thru mail order. clusterbusters.com Joe
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