Beth E
CH.com Junior
Offline
Thanks for understanding CH.com!
Posts: 88
Union City (Erie) PA
Gender:
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Hello all. I have been popping in, but not logging on much. Things are going very slow, hard, and frustrating. I still have to drive him to his appointments, but I hate going, because I want to open my mouth and tell all. I have intervened a few times as I was getting worried. They increased his verapimil, but after few days, things began changing...an not necessarily for the headaches. Finally, I suggested he call the Dr. and let them know the symptoms he was having. They had him right in the next day. He BP was very low, so they did an EEG. It was not "normal". So then they did blood work to make sure he did not have a heart attack. Negative, so that was good news. Well, they figured his body could not handle the increased dose of the verapamil. So that came back down. They then started him on Depakote. He doesn't take any of his medications regularly, as he "forgets". He noticed his hands were drying, and peeling terribly with nothing helping, so he started taking some D3 again. (about 6000 that I see..again, not regularly) He is stll on the dalaudid, but they are getting serious about cutting him back now. He is not happy, as they "haven't given me anything to deal with the pain in it's place". He uses all 4 tablets for his morning (2-3am) dose. Then he uses Imitrex injection for the second hit. (about 2-3pm) That is way too much of that also. He has stocked piled it from before, but is just about out now. He made the comment to me the other day that "I will be needing some ER trips in the near future". UGH!!! He hasn't even tried to slow down his smoking (about 2 packs a day) They ask him, and have given him lozengers and such, but they don't get used.
And of course, like I have been reading with some of the other sufferers, the weather is NOT making things any easier. We live in the snow belt and really have had no winter to talk about. Two of our sons work for the state DOT on roads and have gotten only one night overtime this winter.
There are times I feel bad for him, there are times I am frustrated with him and really don't care....then I feel guilty again, cause I know his pain is real. But he probably has other problems on top of the CHs now. <sigh> He really believes there is a magic cure out there somewhere. That someone has missed something along the way. I try not to get his hopes up at all, and that many of you say that learning to live with CH makes for a more fulfilled life, instead of trying to fight it all the time. (Easy for me to say huh?)
Well, I have not forgotten about you all.Thanks for being there. Love reading some of your quirky jokes, daily thoughts, and just things that make your life just as crazy as mine! I have been entertaining lately, which helps to keep me sane. I sing classic country, bluegrass and gospel. If you like that sort of thing. We (my singing partner) just started a Youtube channel: earthangeltunez We have a facebook page also: Earth Angel. She plays the guitar, and I just picked up a fiddle last summer and am trying to learn. But NO public performances yet (with fiddle I mean)! Yikes...at this speed, don't know if there will be any. Ha ha Take care all, until next time. Beth
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