Click this link to read a post I like on the clusterheadaches.com message board...

Felicia CH.com Old Timer Offline You can never change me. Posts: 318 Daytona Beach, FL, USA Gender:	HARRY POTTER IS A CLUSTERHEAD!!!!!!! Jun 17^th, 2012 at 12:07am You have to scroll a bit but there it is in writing! Maybe now we will actually get some serious research done. Sorry about my excitement I just had to share. Luck and love. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or ~Felicia.
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Mike NZ

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Oxygen rocks! D3 too!

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Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!!
Reply #1 - Jun 17^th, 2012 at 3:41am

Interesting read. It is the actor who plays him, Daniel Radcliffe, who gets CHs.

Quote:

One of our interviews was cancelled due to ill health. "I was in the middle of these weird things called 'cluster headaches'," he explains. "It's very rare evidently, but it's exceptionally painful. It makes a migraine look quite tame. At the time I thought I was being a wuss. I was taking 12 [strong painkillers] a day and going, 'Why do I still have a headache?'"

In the end, a trip to the doctor and a series of injections eased his pain.

Hopefully he finds the forums here as the knowledge and support he could get here will exceed that from most neurologists.

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #2 - Jun 17^th, 2012 at 9:54am Hmmm...who has an in with his fan club??? He has a twitter account, anyone twitter?? Joe
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #3 - Jun 17^th, 2012 at 11:18am I keep going back to those scenes when the scar on his forehead would cause him pain, and the way he would grip it....
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #4 - Jun 17^th, 2012 at 3:32pm I told Christy the same thing Brew, the guy knew how to make a good headache face! Joe
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #5 - Jun 19^th, 2012 at 8:16pm Guiseppi wrote on Jun 17^th, 2012 at 3:32pm: I told Christy the same thing Brew, the guy knew how to make a good headache face! Joe We are all much too familiar with the three fingered forehead grab.
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Freddyz CH.com Newbie Offline Posts: 20 Alexandria, Va Gender:	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #6 - Jul 26^th, 2012 at 8:57am From the photo it looks like he suffers on the right side
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Kate in Oz CH.com Hall of Famer Offline Posts: 633 Australia Gender:	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #7 - Jul 30^th, 2012 at 8:12am I sent him a tweet. Advised him to try oxygen. Will let you know if he responds.
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Evan O CH.com Junior Offline Posts: 27 Brooklyn, New York Gender:	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #8 - Jul 30^th, 2012 at 11:35pm I saw it online- couldnt believe it! Hopefully he sheds some awareness to get us going on the therapies being used abroad.
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Carl D

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Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!!
Reply #9 - Aug 4^th, 2012 at 1:16pm

Evan O wrote on Jul 30^th, 2012 at 11:35pm:

I saw it online- couldnt believe it!

Hopefully he sheds some awareness to get us going on the therapies being used abroad.

I mentioned on Facebook when I first found this out, "Have we finally found our 'voice' through a famous spokesperson who will be an advocate for CH research and awareness?"
It would be great if he did make it a mission of his, just like Michael J Fox does for Parkinsons, Christopher Reeve did for stem cell research, and Westboro Baptists show the dangers of inbreeding!

Wink

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pubgirl

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The next person who calls
it a migraine eats teeth

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Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!!
Reply #10 - Sep 18^th, 2012 at 9:28pm

Who would have thought it? but, excuse me for questioning as you know I always do- he had a drink problem for years, admitted to daily large amounts and that doesn't necessarily stack up with CH, but may do with chronic migraine (perhaps exacerbated by irregular sleep and meals) You can drink with migraine, but almost no-one can drink with CH.

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LasVegas

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Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!!
Reply #11 - Oct 3^rd, 2012 at 2:34pm

Last weekend at the ClusterBusters conference here in Las Vegas, there was a keynote speaker

...*Mr. Carter Lee, Author, Writer, Radio Host, Motivation Speaker and Clusterhead...

...whom recently interviewed Donald Trump and has interviewed other famous Americans.

Carter told us he would try and schedule an interview this Harry Potter guy to hopefully create better awareness to our disease.

I wish him good luck achieving this interview. Wink

-Gregg in Las Vegas

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Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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Verbal Architect CH.com Newbie Offline Thy Beast I Will Slay! Posts: 11	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #12 - Nov 13^th, 2012 at 3:29am The side effects of memorizing too many spells
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thierry CH.com Alumnus Offline I Love CH.com! Posts: 406 Galway, Ireland Gender:	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #13 - Mar 16^th, 2013 at 7:24am I work in the film industry and have worked on a film he was acting in, If I had known he was a CH sufferer i would have had a chat with him about it.
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Bob P

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Shut up Bob!

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Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!!
Reply #14 - Mar 16^th, 2013 at 7:57am

Quote:

he had a drink problem for years, admitted to daily large amounts and that doesn't necessarily stack up with CH, but may do with chronic migraine (perhaps exacerbated by irregular sleep and meals) You can drink with migraine, but almost no-one can drink with CH.

But you can drink when not in an active cycle. Having been at a number of OUCH conventions I would hazard a guess that clusterheads drink much more than the rest of the public do (just speaking from personal observation).

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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron. "SHUT UP HUB!"

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catlind CH.com Moderator CH.com Alumnus Offline Surf's Up! Posts: 4536 Weaverville NC Gender:	Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!! Reply #15 - Mar 16^th, 2013 at 10:09am OMG!!!!!!!!! Felicia that is a FANTASTIC find!!! And I just happen to be good friends with someone who works at the film studio - after him telling me all about his lunch with Gandolf, I will contact him pronto and see if he can arrange to have lunch with 'Harry'! This could be just what we need!!!!
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BarbaraD

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Hugs to ya

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Re: HARRY POTTER IS A CLUSTERHEAD!!!!!!!
Reply #16 - Mar 16^th, 2013 at 10:21am

Pubgirl .. I'm with Bob P on this one. I'm chronic and I can drink (don't do it much but I can) without it triggering my CH.

And all the OUCH conventions .. well that really surprised some, but drinks were flowing at all I've attended.

But it goes back to -- we're all different and have different triggers. (let the barometer change and watch me grab my head..)

And hopefully with Harry.. we'll get some press on this.. Fingers crossed. Remember years ago - that football player.. we even sent him a t-shirt and a VERY nice letter.. but this is definitely worth a try... Everyone can relate to him if he would just speak out. Kiss

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