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Linda_Howell

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This is important, please read
Apr 14^th, 2013 at 1:07am

We are coming up on the anniversary of the day DJ(Darren Johnson) started this web site. It was in April of 1998. He started it because he could not find anything on the web about his rare condition called Cluster Headaches that he suffered from.

Since then people have come and gone.

New people are finding us here every single day and are helped by the information and support they have found here. Their numbers are more than 10,000 now.

Because of this very site, different countries have started their own site..England, Norway, Italy, etc. It has spawned many new treatments. (Clusterbusters)and helped to stop many many folks to take their life. I, personally have private knowledge of that due to my involvement with Family Services.

In all of these years DJ has never once asked for donations. (May people have donated anyway) In order to honor and thank him for these 15 years, I thought it might be nice for all of us to tell him here in this thread what this place has meant to us and how it's changed our lives.

Try to keep it short if you can. I know it won't be easy though.

DJ...from the bottom of my heart, I thank you.

Linda

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Hurt people.....hurt people. Think about it.

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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: This is important, please read Reply #1 - Apr 14^th, 2013 at 7:37am To me... well I'm here.. and I don't think I would be without this site. I was in BAD shape when I found it in 98. Thanks DJ and you know I love you.
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Not4Hire CH.com Alumnus Offline ...PF since Oct.'02, thanks to ClusterBusters... Posts: 1248 Austin\|USA\|Texas Gender:	Re: This is important, please read Reply #2 - Apr 14^th, 2013 at 11:03am Fuckeneh! Thanks, Deej...
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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: This is important, please read Reply #3 - Apr 14^th, 2013 at 2:55pm Fuckeneh!
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Kifissia CH.com Newbie Offline I Love CH.com! Posts: 3 Humble, TX Gender:	Re: This is important, please read Reply #4 - Apr 14^th, 2013 at 5:36pm I've just come back to this site after an absence of almost 14 years. I thought I had outlived this curse. Guess not. A few days ago, I posted "DJ is a hero of mine". I'm 74, and this is the only place I have ever met others who understand. I hope he understands how valuable his creation is.
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: This is important, please read Reply #5 - Apr 14^th, 2013 at 10:38pm As truly spoke by the immortal wot's-his-name: - I NEVER could have imagined (Aril 11, 1998 - present)
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LasVegas

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Re: This is important, please read
Reply #6 - Apr 15^th, 2013 at 12:53am

Fall 1999 I came here and self diagnosed myself, presented my findings to a headache specialist/neurologist and began my journey to reluctant acceptance instead of continuing being a guinea pig without a formal diagnosis.

This website has saved my life countless times thanks to DJ who created this site and all the wonderful supportive fellow CH'ers here in Clusterville who have contributed.

Thanks all Wink

-Gregg in Las Vegas

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Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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Mike NZ

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Re: This is important, please read
Reply #7 - Apr 15^th, 2013 at 1:54am

Just over 3 years ago I started with what was diagnosed as CH and I was trying to get by with just some codeine tablets to knock me out when I got a CH. I wasn't in a great place and life wasn't too good at all. I soon learnt just how I should be getting my CH treated from people who really understood just what I was going through. The results transformed my life and for my supporter too, all thanks to DJ and what he kick started, bringing together so many great people with such outstanding results.

Thank you....

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Re: This is important, please read
Reply #8 - Apr 15^th, 2013 at 7:12am

I don't believe there has been a day since March 28, 2003 at 12:46 am I have not blessed the name of Darren Johnson. I first found the site in 1999, but didn't have computer access. Would go to the library, but only had 30 mins to get on, and the computers were s l o w! I signed up in 2001 on a free internet trial, but didn't have the money to continue it and had to let it lapse. In 2003 I was in such a bad way I knew I had to have help, and paid the price to get online access, even though I had to let other things slide. I've not been sorry since!

I've told DJ "thanks" a number of times, and that this site saved my life, but I don't get tired of saying it again. Thank you, Deej, from the bottom of my heart. I'm so glad God blessed you with Steph, because that just rounded things out for you. I'm so grateful for both of you, and pray for you both regularly.

Jerry

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: This is important, please read Reply #9 - Apr 15^th, 2013 at 7:28am Thank you, DJ.
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: This is important, please read Reply #10 - Apr 15^th, 2013 at 9:55am Thank you, Deej. Jeannie
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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: This is important, please read Reply #11 - Apr 15^th, 2013 at 10:56am Hey DeeJ, thanks for letting me watch them pull the cath out of your carotid and measure your pee!
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: This is important, please read Reply #12 - Apr 15^th, 2013 at 11:14am BOB !!! lmao
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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: This is important, please read Reply #13 - Apr 15^th, 2013 at 12:14pm Whose DJ ?
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: This is important, please read Reply #14 - Apr 15^th, 2013 at 2:58pm Thank you from the bottom of my heart, DJ. I've know a lot of people over the years but never one who has touched so many lives and made such a huge difference. Love and best wishes....to you and your wonderful family!!
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Marc CH.com Old Timer Offline Posts: 429 TX Gender:	Re: This is important, please read Reply #15 - Apr 15^th, 2013 at 7:26pm Bob P wrote on Apr 15^th, 2013 at 10:56am: Hey DeeJ, thanks for letting me watch them pull the cath out of your carotid and measure your pee! That would have been young Zipper Head when he was chasing around the girls at Stanford with his hospital gown on backwards. Thank you Sir Johnson! Marc
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nani CH.com Alumnus Offline Clusterbusters Posts: 8356 Los Lunas NM USA Gender:	Re: This is important, please read Reply #16 - Apr 15^th, 2013 at 11:20pm Deej...the deejster... zippy... What can I say, bro...except thank you.
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The Mad Viking CH.com Sponsor Offline Always Look on The Bright Side of Life Posts: 3583 Oslo, Norway Gender:	Re: This is important, please read Reply #17 - Apr 16^th, 2013 at 4:52am Thanks DJ You have saved my life more that once With this site :):)
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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: This is important, please read Reply #18 - Apr 16^th, 2013 at 7:48am DJ - you have done so much more for all of us than you can ever imagine. From the bottom of my heart - thank you!
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Re: This is important, please read
Reply #19 - Apr 16^th, 2013 at 11:32am

I've met the most amazing people here who have become the most amazing friends.

If it weren't for DJ and his vision, our lives would be vastly different, and not in a good way.

We owe you our gratitude and respect for reaching out in your pain to engage a diverse community and making it real and good.

Love you and your family with all our hearts.

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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: This is important, please read Reply #20 - Apr 16^th, 2013 at 12:18pm He alright.
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Pfunk

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Re: This is important, please read
Reply #21 - Apr 16^th, 2013 at 11:52pm

Found this sit in early 1999, I hav deleted my profile one or two times because I was and still am a computer idiot. But DJ personally helped me get it sorted out. I can truly say that I probably wouldn't be here today had I not become a part of this family. I really do feel like this is my second family. For this DJ, I a eterenally greatful!

Patrick(Pfunk)

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chrisw

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Re: This is important, please read
Reply #22 - Apr 17^th, 2013 at 8:26am

I want to truly thank you DJ for having the vision to start this site. It has helped me personally more than I can state, and I am sure others feel the same way. It helps so much to have a community to talk to who can relate to what you are going through. Even with the most supportive of families, nobody knows except another CH'er what you are battleing, and that truly helps. Not to mention all of the advice on different treatments to be found here. THANK YOU!!!!

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Karla CH.com Alumnus Offline One of Many and Never Alone - Join OUCH Posts: 3837 x1\|Madison WI USA Gender:	Re: This is important, please read Reply #23 - Apr 17^th, 2013 at 2:24pm Thank you so very much for being so committed to the cause. You have impacted my life in such a great way! Im tearing up just thinking about all the memories over the last 15 years. God Bless You!
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Chuh CH.com Junior Offline I Love CH.com! Posts: 31	Re: This is important, please read Reply #24 - Apr 17^th, 2013 at 3:23pm New member here who will be forever grateful to DJ and all others who come here to be a part of, and to share. This place is a rock in the foundation that is allowing me to rebuild my life! Peace Of Mind
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