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This is important, please read (Read 5107 times)
Kevin_M
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Re: This is important, please read
Reply #25 - Apr 18th, 2013 at 9:45pm
 
GREAT going Deej.    Been a very helpful, long and good time.   Smiley
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Ree
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Re: This is important, please read
Reply #26 - Apr 21st, 2013 at 10:37pm
 
Hey,
Some of you will remember me newer members won't.  My name is Ree.  I was a supporter for more than 20 years and coming to this site in 1999 was the best thing that happened to our family.  My x Dave is a cluster sufferer and doesn't type... I became his fingers here and found him a wealth of information that made his clusters more tolerable just knowing there were others in the world like him.  In the years I came to this site I made some of the best friends anyone could ever have.  I still keep in touch on FB.  But after my husband left us in Nov 2009 it broke my heart to come here. 
He is in one of his biggest more painful cycles than ever.  I can't help to believe that if I could help him it would be better... if he came here it would be better. He has moved on.  Is living with another woman on the other side of Massachusetts and barely even sees our kids... its taking me forever to move on. 
Thanks DJ for your dedication to Cluster Headache.  You have saved many lives.  Though I don't visit often I still know you are here.  Love to you my friend!

ree
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Single Proud Mom to US ARMY Kiowa OH58 PILOT~CWO3 Scott,  Police OFFICER Sean, FSU Freshman~ Breezy~ Nana to Matt, Mike & Aya, MIL To Shino,
Ree dungareespocket 1017695884 64720087 Reespirit Ree16Angel  
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Charlie
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Re: This is important, please read
Reply #27 - Apr 23rd, 2013 at 4:33pm
 
After coming on line, it quickly occurred to me that there might be others with CH experience. Yikes! Look what I found thanks to DJ.

The guy had the gumption to set it up!

Thanks DJ!
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Clusterman59
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Re: This is important, please read
Reply #28 - Apr 29th, 2013 at 11:52pm
 
Dj....
There is absolutely no doubt in my mind whatsoever that if it were not for this place that you created (Clusterville)
i would not be here to write this so in fact my friend you saved my life!!

All the great supporters and ALL that are here selflessly to help those in desperate need and all that suffer make this a truly life saving, altering, changing INCREDIBLE place and i will hold it in my heart for the rest of my life.

Thank you Dj and Mrs. Deej for your selfless contribution that will continue help those that suffer and those who suffer us and to save the lives of so many with this INSANE disorder that we call CH!!
God bless you....Johnny Smiley

P.S. I so look forward to our venture as donations are most definitely coming your way!.... Wink
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« Last Edit: Apr 29th, 2013 at 11:59pm by Clusterman59 »  

Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
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M.R.
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Re: This is important, please read
Reply #29 - May 3rd, 2013 at 7:59pm
 
    DJ and this site saved me from, best case, ending up jobless and living in the street. Worse case, we won't go there. You rule. Always have.

Mike
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"Charity is no part of the legislative duty of the government." --James Madison

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E-Double
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Re: This is important, please read
Reply #30 - May 10th, 2013 at 7:58pm
 
D.J.


This place saved my life and brought me so much.
It gave me a family and people to give back to.

I thank you for everything

You're the man!

E
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I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.
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Linda_Howell
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Re: This is important, please read
Reply #31 - May 11th, 2013 at 12:43pm
 
Thank you to everyone who posted their thanks and appreciation to DJ in this thread.

Besides this site, some of you newer folks might not know that DJ also started another site that has also saved lives.  A support and information site for another rare condition called MoyaMoya that DJ also has.

The man is a virtual life-saver for so many.
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Hurt people.....hurt people.   Think about it.
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Clusterman59
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Re: This is important, please read
Reply #32 - May 11th, 2013 at 2:50pm
 
This is Dj's other support site about MoyaMoya and again Dj shows that there are a few selfless people in this world that go out of there way to help others that suffer....Dj your THE MAN!!.... WinkMultimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
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Gaining knowledge and obtaining an education about cluster headaches is the key to success to shutting down the beast. The Vitamin D3 Anti inflammatory Regimen is one of the best treatments ever!
Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
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Re: This is important, please read
Reply #33 - May 11th, 2013 at 3:38pm
 
Thanks DJ..Its nice to not feel alone and tips/info is very helpful with care. Smiley
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LadyLuv
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Re: This is important, please read
Reply #34 - May 13th, 2013 at 3:12pm
 
You're right Linda... we owe a lot to Deej and Steph... I also realize that he has never once asked for one dime to keep the sight going...  But that matter I can't donate what I would like to, but I make sure that I donate a little something at least once each year (just as I did last month)...

Luv & Like U Much...
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Linda_Howell
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Re: This is important, please read
Reply #35 - May 13th, 2013 at 6:03pm
 
Nope.  He never has asked for a dime Lady Luv and most probably never will even though I have no idea what the cost of maintaining this site would be, many have donated as much as they could afford to it's upkeep over the years.  PayPal button on the bottom of every thread I believe, takes no time at all and takes very small increments.  Even 1.00 from each and every one of us goes a long way towards helping.

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Hurt people.....hurt people.   Think about it.
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LadyLuv
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Re: This is important, please read
Reply #36 - May 14th, 2013 at 6:10pm
 
You Got It Linda...  I really and truly believe with all my heart that had it not been for the people that I met through this sight, I might not be here today...  No matter how late or how early.. there has always been someone for me to talk with.

When Double E's first child was born, he was my midnight to 5am person... Many mornings he have talked me down off the hill top,, 

When I felt that I couldn't or didn't want to go on, you and Jackie, pulled, pushed and I think a couple times you two kicked me  Angry back in line.. And for that I thank you...  Many others have also been there for me in different ways over the years.. and it's all because of this site...
...  Yes Deej is one of my Hero's...
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