the shadows of my headaches haunt me whenever I'm awake. Nothing helps.
I don't know what to do

a quick wiki shows that it's an opioid.
I thought the concenous was that they do'nt work for ch.
anyone have luck with it

idorko wrote on Jun 12^th, 2013 at 1:27pm:

I used it twice and the Sheriff came and rescued me.

              Potter

The same thing often happens to me.  Shadows that NEVER cease.  Sometimes 4 Way Nasal Spray combined with Excedrine Migraine will help.  Other times O2 and an energy drink will knock it back. 

Once, my husband bought me some of that "Head On" ( I don't even know if they make it anymore.... It had the WORST commercial)  I found that smearing it all over the right side of my face relieved some of the pain from strong shadows.  It was at least a diversion from it. 

I hope you find something that works. 

PF wishes,

Jeannie

I'm wondering if you have tried any of these simple remedy's.

Ice blocks wrapt in a piece of cloth applied to the temple, top of
your head, and the lower part of the back of your neck.

A very hot shower.

Melatonin at bedtime, Kudzu, known to help in CH's, OTC.

Avoid processed foods containing nitrates
they can cause havoc in CH's.

Alcohol a real no no.

I take the following meds:
300 MG of oxcarbazepine at breakfast, 150 at lunch and bedtime
300 of Gabapentin 3x day
30 mg of Celexa Morning
2 Capsulses of B12 and D3 at breakfast
10 mg of Melatonin at night time.
300 mg of Magnesium at night time.

Sorry the O2 isn't working for you. About 70% of us swear by it.

You don't have imitrex on your list. That's the abortative of most on here.

Gabapentin has NOT worked for many on here (and remember we're all different).

I've used Topamax for years and recently my neuro switched me to Zonagran (Topamax without the side effects) and it's working well for a prevent.

Now I DO have a Staydol script (I suffer from Chronic miagraines as well as CH and sometimes get hit with BOTH at the same time.. the staydol keeps me out of the ER, but I've only used in ONE time and I was begging the man upstairs to kill me at the time, so yes, it is a NO NO for CH).

All we can tell you is what has worked for US (and others). But I will tell you - it's hit and miss until you come upon what works for YOU. We all react different to different things.

I'm chronic so a Kip 3 is about pain free for me. When it gets above that I hit the O2 and Red Bull if it's going upward.

If it comes upon me (and it sometimes does) at an 8 or 9 - I hit the imitrex and start doing housework or some other manual labor to try to get my mind off the pain and keep myself from doing harm to something (like knocking my head against the walls or screaming at the dogs - they don't like that).

If I'm out somewhere and feel one coming on I down a can of Red Bull really quickly - and if that doesn't do it .. I do an imitrex spray and try to stay away from people (for their benefit) until the CH subsides.

Another thing .. I have a rice bag that I heat up in the microwave and use it on my CH side of head and neck while I'm huffing O2 - it helps.

These are just some things to try.. Keep us up on what's going on with you. 

idorko,
After you abort with o2, reduce to 15 lpm and breathe normally for an additional 10 to 15 minutes, this method is helpful for many of us to avoid a re-attack and lingering shadows.

Utilizing the Imitrex Tip, yellow tab left side of your screen, will save you $ by injecting only 1/3rd or 1/2 dose and avoid the issue you are mentioning.

PF Wishes
-Gregg in Las Vegas

idorko wrote on Jun 15^th, 2013 at 4:44am:



idorko,
I would recommend the Hyperventilation method to abort attacks with o2 and flow rates need to be 25 lpm to 40 lpm to hyperventilate.  To achieve hyperventilating, you will need to get a high flow regulator.

A company called FloTec out of Indianapolis will custom manufacture a 0--60 lpm high flow regulator for you, costs around $150; excellent quality.

Harbor Freight Tools is open TODAY and sells welder regulators (same thing) for about $35 bucks.

Do you have a NON-rebreather mask?
What size tank do you have?

-Gregg in Las Vegas

idorko wrote on Jun 15^th, 2013 at 12:20pm:



idorko,
Keep in mind when you get your high flow regulator for your M tank you will need a CGA540 connector to ensure proper attachment to your M tank.

The welders regulators at Harbor Freight and the 0--60 lpm high flow regulator from FloTec are both CGA540.

As you already know, you can abort at 15 lpm with the regulator that you have.  But the hyperventilation method with a high flow regulator offering at least 25 lpm will produce MUCH FASTER aborts.

Good of you to stay on for 10 to 15 min after abort, no need to waste the o2, just reduce to 15 lpm or lower and breathe normally in an upright position.

Hang in there

-Gregg in Las Vegas

Quote:


What dosage?

There are many trade offs when choosing meds. to battle CH .

Brew wrote on Jun 16^th, 2013 at 11:55am:



Brew, the election is over!

-Gregg in Las Vegas