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New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › sansert (methysergide)

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sansert (methysergide) (Read 3060 times)

CeruleanBlue

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sansert (methysergide)
Jun 19^th, 2013 at 9:23am

I don't see many references to this drug here. I did have some moderate success in the past with this, though not 100% effective. Last neurologist I saw didn't favor using it, then it was discontinued by the manufacturer early part of last decade and unavailable in the USA. Last time I bought some was online from Canada, and I've been into that 8 year old stash this spring.

Just wondering ... is it still available outside USA? Any of you using it?

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TeeJ2379

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Re: sansert (methysergide)
Reply #1 - Jun 19^th, 2013 at 9:42am

CeruleanBlue wrote on Jun 19^th, 2013 at 9:23am:

Looks like it had some side affects:
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Like anything else - the side affects vary and everyone is different - it all depends on what you are willing to accept. No drug or treatment is risk free.

Also looks like it doesn't play nice with sumatriptan so I don't know that many would be willing to give up imitrex and only count their preventive (methysergide)
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Again, all personal choice and what works for you.

« Last Edit: Jun 19^th, 2013 at 9:48am by TeeJ2379 »

Pain is a wonderful teacher and motivator...

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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: sansert (methysergide) Reply #2 - Jun 19^th, 2013 at 10:25am Catch up on current treatments.... Print the PDF file, below, and use to discuss options with your doc.
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: sansert (methysergide) Reply #3 - Jun 19^th, 2013 at 3:45pm It can be very effective. I used it for about three years (always with a one-month holiday every six months). You can still get it by its generic name - methysergide maleate - but you will have to go to a compounding pharmacy for it, and stuff that has to be specially compounded ain't cheap.
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CeruleanBlue CH.com Newbie Offline I Love CH.com! Posts: 13	Re: sansert (methysergide) Reply #4 - Jun 19^th, 2013 at 5:18pm Bob Johnson wrote on Jun 19^th, 2013 at 10:25am: Catch up on current treatments.... Print the PDF file, below, and use to discuss options with your doc. Yes, thank you for the document.
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CeruleanBlue

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Re: sansert (methysergide)
Reply #5 - Jun 19^th, 2013 at 5:20pm

Brew wrote on Jun 19^th, 2013 at 3:45pm:

It can be very effective. I used it for about three years (always with a one-month holiday every six months).

You can still get it by its generic name - methysergide maleate - but you will have to go to a compounding pharmacy for it, and stuff that has to be specially compounded ain't cheap.

After 60 Minutes on the compounding pharmacy industry, I'm staying clear of those when I can.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: sansert (methysergide) Reply #6 - Jun 19^th, 2013 at 9:19pm When I was with Cigna as my insurance company, they had their own in-house compounding pharmacy. Never had a lick of trouble. I haven't taken the stuff in over 6 years, however, so I don't have a need for a compounding pharmacy anymore.
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LasVegas CH.com Sponsor Offline Episodic CH since 11 yrs old, now 50. Posts: 2020 north of the 60th parallel Gender:	Re: sansert (methysergide) Reply #7 - Jun 19^th, 2013 at 11:54pm I began using Sansert when I was 12 years old as my primary med for my CH's. Little pill that came in a foil pack that dissolved under my tongue. -Gregg in Las Vegas
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Imitrex4Breakfast

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Re: sansert (methysergide)
Reply #8 - Jun 20^th, 2013 at 12:27am

I'm pretty sure you CAN still order it from Canada, but I was told that the dangers of taking Sansert and Imitrex(or other Triptans) too closely together are extremely dangerous & possibly fatal ("...A cardiac event could occur"). Fibrosis of the heart valves are also likely caused by taking this drug too often.

Last time I tried it was around 1995.

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