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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › cluster documentary

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cluster documentary (Read 1880 times)

gabefreedman

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cluster documentary
Aug 25^th, 2013 at 7:06pm

Hi,

My name is Gabe Freedman. I am a 24 year old film student at the University of Toronto. Recently, I have been spending much time researching about cluster headaches and am stunned at the lack of awareness and understanding regarding this horrific condition. I am very interested in bringing much-needed exposure to this subject and have found this website and the opinions and insights of its many members incredibly admirable and informative. I would like to start interviewing sufferers of CH, with a view to filming either a short or feature documentary on the illness in the near future. I would be very grateful for the opportunity to speak to any of you about your experiences, and would appreciate any suggestions you have on how best to tackle this project. A documentary may be the most effective way of bringing public attention to this issue. I appreciate your time and assistance and hope to hear from you soon.

Take care and thank you so much.

Gabe

gabefreedman@rogers.com

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maz CH.com Hall of Famer Offline I Love CH.com! Posts: 1071 Hampshire, England Gender:	Re: cluster documentary Reply #1 - Aug 25^th, 2013 at 7:28pm Hi, I'm in England so don't suppose I can be much help, but willing to answer questions.
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Bobbyd CH.com Junior Offline I Love CH.com! Posts: 30 Boston, MA Gender:	Re: cluster documentary Reply #2 - Aug 25^th, 2013 at 7:42pm Good luck and thank you. I am in Boston if you are in the neighborhood watching the Leafs look me up!
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AussieBrian CH.com Hall of Famer Offline CH - It's all in your head! Posts: 3851 Cairns, Qld, Australia Gender:	Re: cluster documentary Reply #3 - Aug 25^th, 2013 at 8:39pm G'day Gabe, and a nice place to start might be on the CH Specific board with a thread called Dopiest Responses to CH. It'll give you some idea of what we (and you) have to put up with from doctors and the public. Sincere good wishes and sing out if I can help, Brian, who'll work for beer.
Back to top	My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com IP Logged

Karen Carrier CH.com Newbie Offline I Love CH.com! Posts: 8	Re: cluster documentary Reply #4 - Aug 25^th, 2013 at 8:41pm If I can be of any assistance, I have been suffering with CH for the past 30 years. I live in Michigan. We all suffer day in and day out awareness really needs to get out there Thanks, Karen
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: cluster documentary Reply #5 - Aug 26^th, 2013 at 3:56am You'll find people here from all over the world, so there may be some from Toronto for local knowledge. I'm over here in New Zealand and like Brian will work for beer too! Just ask away...
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LasVegas

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Episodic CH since 11 yrs
old, now 50.

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north of the 60th parallel
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Re: cluster documentary
Reply #6 - Aug 26^th, 2013 at 2:57pm

Hi Gabe,
If you look to the left side of your computer screen you will see a tab titled "where we live" which will lead you to a tab titled "Non United States" which will lead you to a link titled "Canada."

There are over three dozen CH'ers registered on this site from the Toronto area and a whole bunch more CH'ers listed from the province of Ontario.

You may consider clicking on each of their names which should provide you with a method to email them individually.

This simple targeted approach may be a quick direct way for you to organize your documentary among locals within Toronto and Ontario.

Good luck with your documentary Wink

-Gregg in Las Vegas

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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gabefreedman

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Re: cluster documentary
Reply #7 - Aug 27^th, 2013 at 2:01am

Hi,

Thank you all so much for your replies and insights. I believe our team will take Gregg's advice and start contacting sufferers who are based in Toronto. If anybody living in Toronto reads this and is interested in being featured in a documentary on CH, please contact us. Thank you so much for your time and we will be in touch if we require any assistance from those who volunteered it!

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LasVegas

CH.com Sponsor

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Episodic CH since 11 yrs
old, now 50.

Posts: 2020
north of the 60th parallel
Gender: male

Re: cluster documentary
Reply #8 - Aug 27^th, 2013 at 12:39pm

Hi Gabe,
Since you valued my first advice, here is more...

Contact some of the doctors in your local area that have been recommended by those afflicted by CH's. The following pdf file link will provide a list of Canadian doctors. Unfortunately this list has not been updated in 2 & 1/2 years.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

Good Luck

-Gregg in Las Vegas

Wishing everybody at CH.com less pain w/ more productivity in their lives in 2019

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