Back in the "old days" when this board was first up and getting going, those of us who were suffering would try about anything to stop the pain.

We didn't have the research on here that we do today. We just had a bunch of sufferers comparing notes and we were willing to try about anything that gave anyone some relief (and most of the time what worked for one "some of the time" didn't work for the rest of us - or just for once or twice). Lordy! I've even worn banana peels around my head all day (didn't help, but the fruit flies loved me).

What I'm getting at - today we've got years of research - the O2 research alone - my gosh - it's come a long long way from 17 years ago.. we were just shooting in the wind back then. Now it's just a standard treatment and still people are "skeptical" about it's use. My question is WHY? It's been proven to work in about 70% (or more) of us IF used properly.

And the D3 regimen - every day someone shouts it's praises - YET we still have people who come here and don't know if they want to try it..

My question is WHY? You're hurting (at least you say you are). Why not try something (that won't hurt you) that's working for so many?

One thing I will say - when Pete told me about it (and I'd been chronic since 97), I jumped on it and have been PF since (almost two years now). My neurologist is doing a happy dance (I've been his problem child for about 20 years). He's putting his CH patients on it and most of them are doing well on it.

So I guess I'm just remembering when us "old-timers" were grabbing at straws to find something that would ease up for just a little while and now that a lot of us (chronics) have found something that's working and want to share our happy time - we're getting all this "doubt" about how it might be bad for us. Heck Imitrex is BAD for us, but that never stopped anyone from overdoing it (me included).

Ok, vent over.. But some of you newbies, go back and read the archives and see how desperate we were back in the 90s and what lengths we were willing to go to get easy for just a little while.

And I do love everyone.. Not preaching - just questioning.. 

I second that

Mark

But we should not just poo poo someone else's "cure" because they are a newbie. If it is working for them great, more power to them and maybe it will help someone else...

I have heard about people poo pooing the D3 in the past and yet it is helping a bunch now.

I think there needs to be more open-mindness on the board and less trashing newbies.

Actually I use Atomic Fireballs under my tongue. It is one of the few things that work for me. I also use pepper spray in my nostril. Both ideas I got from the board and even though both have been laughed at, they help me.

I have been on the board for awhile now, I know "cure" isn't the right term, but if a newbie uses it, they get jumped all over about it. If we are here to help, it can be done in a friendly manner and the results will be better.

I have mixed feelings on this subject. Rude and obnoxious is frankly a two way street….poster and forum…it works BOTH ways.  While I try not to be…sometimes I am a “not very nice person”…and it’s usually when someone is rude and obnoxious enough to post what is either obvious spam, blatant advertising, dangerous advice/commentary, or the clueless equivalent of walking into an AA meeting and shouting: “I know how to fix your problem….stop drinking!”

This is a long running forum with CH patient experience equivalent to THOUSANDS of years.  “This aint our first rodeo”. While we aint docs, as has been said, we ARE expert patients ….we know more about CH than almost the entirety of the medical profession. The site has archives containing almost ALL of that acquired/collected/reported knowledge…BEST anywhere. A new poster who fails to research here…heck, even briefly or selectively…at least gauging the typical tenor of discussion…. does us a dishonor. I’ve said similar before and was surprised to hear back that I am a knucklehead. While THAT may be true…it remains that research on the internet is so vastly accessible and easy  that I regularly find items that originate from ch.com in search engines completely unrelated to the site. It is a VERY SMALL effort….and a VERY small world. (Small editorial digression: so it behooves one to watch what ya say here, or anywhere online).

I have said some (other?) stupid stuff here…and I heard about it…sometimes not so gently…the old playground was kinda rough and raucous. I even once went away in a huff, but upon reflection figured that would be MY loss...so for better or worse...here I am….so should any clusterhead. What I fear is that what we now have is Sister Mary Elephant’s school for “play nice” (Claaaa-ass, CLAAA-ASS…CLAAAA-ASS…SHUDDD-UP!!!!)…so verily, the pendulum has swung. That said, I’ve got no problem with DJ’s rules for playing nice…and love me some the salt of the earth mods.  It’s fine…I’m an old plucker and I will learn a new tune…what I ask for and am more than prepared to give…is respect for family dealing with a horrendous disorder. We KNOW what you feel…we BEEN there and haven’t finished “done that” yet…YOU are family too…we CARE…we WILL help…just do your homework…dip a toe before the cannonball...please?! Not to say you can’t disagree or opine different from the “crowd”…it is well documented that some exquisite options found here were once reviled or ridiculed…just don’t be disagreeable………………..

One more thought:
A question ASKING “have ya ever tried shoving sheep shit inta ya ears” is WAY more acceptable than  a statement like: “after a 20 minute career of what I think is something sorta like clusterwhatchamacallit, I DISCOVERED that sheep shit in the ears is the answer…cured me…. and I just wanted to share it with you 30 and 40 yr sufferers who are apparently too dumb to have discovered this yourselves…………….

Now…surely I jest, can’t help it…but I am a little frustrated…hate the sin and love this sinner? Ah well…this dude abides……….

Best

Jon

PS CDog...atomic fireballs are the best  ever   

Theirs more in New Zealand, ask any Kiwi, he'll confirm
this. 

Hoppy

  Oh boy, I'ma gonna get in trouble if I don't clarify, especially cause I am a bit of a redneck. The " clean end " was in reference to another member's quote at the bottom of each post that he makes about political correctness. I can't stand PC and loved the quote.
      I'm pretty sure we had sheep in Eastern Washington, but we have special interest groups in Seattle that think their business is to mind your business and they think reintroducing grey wolves is a great way to keep the sheep population from exploding. It worked last year. If the market for sheep dung takes off the Brits and Kiwis are going to have a corner on the market. On the other hand, if wolf scat works better I know where to look.
        When the topic turns to sheep, it's usually risky business! Or maybe Risque.

                          Sean

  Sorry BarbaraD,  we sure twisted that thread in a new direction, but it's Friday night, my head's not hurting and I couldn't resist. And if I could figure out how to add a smiley face I would.

                                  Sean

    Thanks Colin,  I'm just patiently waiting for my cycle to end so I can have a drink and enjoy it. Actually had two back to back hits two nights ago which surprised me but my O2 tank was at the ready so no problem. My allergies blew up during that day but I didn't add up 2 and 2 till later. Benadryl went back on the menu for a little while. Hope you're PF also.

         I've been trying what you advised but when I click on them all I get is the symbols you find on the number keys at the top of the keyboard. Like this....


                                     Sean


OK, never mind, I get it, they don't show up till you actually post.

Boys will be boys.. and I got a good laugh.. Sheep dung? Now that's one I NEVER tried and I thought I'd tried about everything..

But your point is taken .. we've had a lot of "trolls" on here with wonder CURES over the years and can usually spot them. "Ali" was one of our favorites.. he came on under different names, but was chased down under his IP address and finally banished from the site (we think for good - maybe). that was one of the reasons people got so "uptight" about the word "cure" on this board.. He was always coming up with something (and wanting money for it most of the time)...

The Old timers around here recognized him for what he was, but some of the newbies fell for his bull.. That was really not acceptable. Maybe that explains some of the harsh remarks.

I can't really say a whole lot about doing research before you jump in... when I first found this board (back in 98) I jumped on immediately (of course we didn't have any "research" back then - just a few clusterheads finding out we weren't alone any more) and started posting - Like "HELP! I hurt - what can I do???" I was just so happy to find that someone else was hurting too (not that I wished that on them, but I thought I was the only one that had this).

I'm sure I've offended people over the years (not intentionally) but sometimes when you're posting (and not talking face to face) things just don't come out the way (or not interrupted) you intended. I've made "jokes" at times that someone took as a personal affront... didn't mean it that way, but that's how "someone" took it and came back at me with both feet. I just laughed and didn't reply, but I don't take things personal - that's just me.

One "idiot" (and I can call him that cause I do love him) said, "Take what you need and leave the rest"... wise words.. 

Colin wrote, New Zealand is a place where Men are Men,
and sheep are scared!

Well you can't blame them for being scared!

Looks like the same thing applies here in OZ!

A tourist arrived in Australia hired a car and set off for the
outback. On his way he saw a bloke having sex with a sheep. Deeply horrified he pulled up at the nearest pub and ordered a straight scotch. As he was just about to throw it back, he saw a bloke with one leg masturbating furiously at the bar " What the hell ?!" the tourist cried "What the hell's going on here? I've been here one hour and I've seen a bloke shagging a sheep, and some bloke's wanking himself off in the bar!" Fair dinkum mate, the bartender told him, " You can't expect a man with only one leg to catch a sheep."

I agree Brian
When I joined CH.com I had never been part of any online forum before so I was pretty nervous putting up my first few posts. I was nervous I would say something stupid (and I probably did) and be put down for it. It wouldn't have taken much to scare me off from posting again and I would have missed out on being part of something pretty special.

Alan

AussieBrian wrote on Jun 27^th, 2015 at 7:55pm:


I didn't...and I don't...simply a feeble attempt to make a point re a personal peeve...now I'll shaddup...........