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Oxygen , please advise (Read 3559 times)
cch
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Oxygen , please advise
May 6th, 2016 at 4:46pm
 
Hi all,
I used to use Oxygen tubes when I have attacks but changing the tubes are very hard in my country Egypt so I googled around and find there is a device can generate oxygen so I went to medical supplier shops and I found it

They have 5 liter mad in China and cost 5000 Egyptian pounds another made in USA and cost 6000. I asked too for device that can give 10 liter so they told me it cost 16000 !!

Because this device is expensive I need to know does the 5 liter is enough to stop the attack or I need the 10 liter device ? please advise
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Peter510
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Re: Oxygen , please advise
Reply #1 - May 6th, 2016 at 4:53pm
 
Cch,

NO......5 litres or 10 litres is not sufficient.  The minimum you need is 15 litres/minute flow.

I have looked at these machines before and never found one with a high enough output.

Best,

Peter.
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Mike NZ
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Re: Oxygen , please advise
Reply #2 - May 6th, 2016 at 4:54pm
 
Hi

The oxygen generating device is an oxygen concentrator and for most people they do not work well for aborting cluster headaches. This is why people use the oxygen cylinders as they are 100% pure oxygen and you can get a higher flow rate.
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cch
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Re: Oxygen , please advise
Reply #3 - May 6th, 2016 at 5:12pm
 
many thanks guys I was puting alot of hope on these devices as O2 is really the only thing that work with me.
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« Last Edit: May 6th, 2016 at 5:13pm by cch »  
 
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Peter510
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Re: Oxygen , please advise
Reply #4 - May 6th, 2016 at 6:07pm
 
cch,

Have you read up on the D3 Regimen here. If not, read about it in the Medications and Treatments section under the thread: 123 days pain free...

It works for a lot of us.

Best,

Peter.
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Re: Oxygen , please advise
Reply #5 - May 6th, 2016 at 8:57pm
 
Yes I know about it Peter it did not work for me !!
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Mike NZ
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Re: Oxygen , please advise
Reply #6 - May 6th, 2016 at 11:59pm
 
cch wrote on May 6th, 2016 at 8:57pm:
Yes I know about it Peter it did not work for me !!


Did you get in touch with Batch? He might have some really good suggestions that might help.
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Re: Oxygen , please advise
Reply #7 - May 7th, 2016 at 8:48am
 
For many years I aborted attacks using 7 lpm.  Would abort an attack in 5 - 10 minutes.
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Re: Oxygen , please advise
Reply #8 - May 7th, 2016 at 10:19am
 
Hey CCH,

Here's the latest oxygen therapy procedure and breathing technique you should try to abort your CH.  It will work well with an oxygen concentrator.  You'll need one of DJ's ClusterO2 kits from the CH.com store tab at the left of this screen.

I call this method Oxygen Therapy with Hyperventilation.   It essentially involves hyperventilating with room air at forced vital capacity tidal volumes for 30 seconds followed by inhaling a lung full of 100% oxygen and holding it for another 30 seconds.

Remove the face mask from the ClusterO2 kit when you receive it as you'll be breathing directly from the 22 mm nipple on the green "T" manifold or mouthpiece as shown below.  You'll also need to adjust the oxygen regulator so it fills the 3 liter reservoir bag completely in one minute...  That may be near the maximum output from an oxygen concentrator.

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You'll also need to cup the T-manifold exhaust port in the palm of your hand and press the open breathing port to your cheek or chin when not inhaling from it to keep oxygen from escaping and let the reservoir bag fill while you're hyperventilating with room air.

Start by standing to give your diaphragm full range of movement... This is important as standing during this procedure helps ventilate the lungs more completely.  Lean against a wall if you get dizzy while using this method of oxygen therapy.  If you get too dizzy, sit erect in a chair.

The next step is exhale forcibly through your mouth until if feels like your lungs are empty...  they're not!  Do an abdominal crunch like doing sit-ups and hold the squeeze until your exhaled breath makes a wheezing sound for a couple seconds.

It sounds terrible but it's a very important part of this method of aborting a CH with oxygen...  This forced exhalation breathing technique will squeeze out another half to a full liter of exhaled breath.  This last volume or end tidal flow of exhaled breath has the highest CO2 concentration and blowing off CO2 is the key to the effectiveness of this procedure.

Then without delay, throw your head and shoulders back and inhale room air as rapidly and deeply as possible until you can't inhale any more.

Again without any delay, use the forced exhalation technique.  Keep repeating this sequence as fast as possible with room air for 30 seconds.  You should be able to complete 10 of these complete cycles in 30 seconds.

At the end of the 30 seconds breathing with this technique, exhale forcibly one more time and hold the squeeze for a good 5 seconds...  Then place the ClusterO2 kit "T" manifold breathing port to your lips and inhale a lung full of 100% oxygen as rapidly as possible and hold it for 30 seconds. 

I know it's difficult, but try to relax at this point.  While you're waiting, place the breathing port on the ClusterO2 kit to your cheek or chin with the palm of your hand over the exhalation port to form a gas tight seal in order to inflate the reservoir bag for the next breath of oxygen.

If you're doing this breathing technique properly, you'll start feeling the symptoms of transient paresthesia and a slight dizziness...  These temporary symptoms of paresthesia include a very slight tingling/prickling of the face, lips, and fingertips.  You'll also experience a slight rush when you start holding the lungful of oxygen...  Paresthesia is the best indication you've pushed your body into respiratory alkalosis... (Made your blood more alkaline).

At the end of the 30 seconds holding the lungful of oxygen, exhale into the room with a good chest squeeze... then repeat the above sequence until the pain is completely gone... 

Be sure to practice this procedure for a few cycles before the cluster beast attacks...

If you start this procedure at the first sign of an approaching CH attack, you should be able to abort the attack in four minutes or less...  and with as little as 16 to 20 liters of oxygen...

If the CH hits while sleeping and is well established or rising, start this procedure as fast as possible.  It will work effectively through pain level 9, (Kip 9), it will just take longer.

The following chart comes from the pilot study we conducted of the demand valve method of oxygen therapy for rapid CH aborts.  It illustrates the increase in abort times as the pain level increases.

I developed both of these methods of oxygen inhalation therapy as abortives for CH and have found that oxygen therapy combined with hyperventilating on room air is just as fast at aborting a CH and as effective as the demand valve method.  I'm a patent holder of the demand valve method of oxygen therapy so I've studied and used it extensively since 2007.  The new method also uses a lot less oxygen so it works very well with low flow rate oxygen regulators and oxygen concentrators.

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While you're waiting for the ClusterO2 kit to arrive and if you're handy with DIY projects, you can build a Redneck Oxygen Reservoir Bag Breathing System.  They work great...

All you need is a clean 40 gal trash bag, the oxygen tubing from your old disposable oxygen mask, an empty plastic Coke or Juice bottle (with cap), some Duck tape and some electricians tape.  The following graphics should help in this DIY effort.

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Fill the Redneck Reservoir Bag ahead of time and make sure the cap is tight on the plastic bottle.  If you've constructed it properly, it should hold oxygen for a few days.

When the next CH hits, turn on the oxygen supply and remove the bottle cap as you complete the first 30 seconds of hyperventilating with room air. 

Use the same breathing technique and procedures discussed above.  You'll be surprised at the lack of inhalation resistance sucking oxygen from the Redneck reservoir bag.

Regarding your experience with the anti-inflammatory regimen with 10,000 IU/day vitamin D3...  If it didn't work to prevent your CH there is usually a reason why.  We just need to find that reason and work around it. 

Take care and please keep me posted...

V/R, Batch
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« Last Edit: Nov 17th, 2016 at 3:15am by Batch »  

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cch
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Re: Oxygen , please advise
Reply #9 - May 7th, 2016 at 1:08pm
 
Many thanks Batch, the D3 causes me to have more attacks it increased from 2 to 6 per day

I want to ask you all also is it possible that 5 liter oxygen concentrator mean the size or something other than flow rate ? the seller does not know.
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Peter510
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Re: Oxygen , please advise
Reply #10 - May 7th, 2016 at 1:32pm
 
cch,

5 litres means flow rate. The concentrators produce 5 litres per minute of approx 90% Oxygen. Likewise with the more modern 10 litres machines. (90% Oxygen).

This means that the real Oxygen flow rate can only be 4.5 or less on a 5ltr machine. (Or 9 for a 10ltr).

This is sufficient for people suffering from advanced COPD and coronary conditions, for example, but not for Cluster Headaches.

To be frank, I'm surprised the vendor doesn't know this.

Peter.
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cch
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Re: Oxygen , please advise
Reply #11 - May 7th, 2016 at 2:16pm
 
Thanks a lot Peter, I am surprised to find oxgen conecntrator in my country !! I think the 10 liter device would work for me as I used to abort the attack with 10 liter from the cylinder but 10 liter concentrator is very expensive it cost 16000 pounds (about $1600) so I think I will just buy another cylinder.
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Peter510
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Re: Oxygen , please advise
Reply #12 - May 7th, 2016 at 3:30pm
 
cch,

Probably best to stick with the tank and follow Batch's ventilation method to get the best value from your tank.

Can I recommend the mask that is available here. Have a look at the yellow tab above left, entitled CH.COM Store.

The mask is superior to anything else I have ever tried.

Keep well,

Peter.
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Peter510
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Re: Oxygen , please advise
Reply #13 - May 7th, 2016 at 3:40pm
 
cch,

I also meant to say that you would be well advised to give the D3 Regimen another go. With Batch's guidance I feel sure that it would benefit you greatly.

Peter.
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