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New member, old problem (Read 1711 times)

Cornishman

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New member, old problem
May 17^th, 2016 at 5:50am

Hi from Kernow, UK. This is my fifth year suffering Cluster Headaches and I thought I'd research a little more and stumbled upon this site.
Great group and source.
I design php websites and run a small hosting company, but during the "season" (normally eight to ten weeks) I find my work throughput is reduced drastically!
The headaches always occur between 24:06 and 24:08 and then 02:36 and 02:44.... clockwork. But the artifacts/spurious leftovers are aggravated by using my eyes and seem to intensify the headaches when they occur.
Two years ago I gave up the smoking habit when I read that this may help reduce or even stop the headaches, not so, but I can now taste my food and my home is less like an ash tray.
Oxygen is the only medium that resolves the symptoms, I thank my Doctor for being well informed for that one, bless her.

« Last Edit: May 17^th, 2016 at 5:59am by Cornishman »

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Peter510

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Don't give out... But
don't give in.

Posts: 966
Wexford. Ireland
Gender: male

Re: New member, old problem
Reply #1 - May 17^th, 2016 at 6:23am

Hello Cornishman,

Welcome to CH.com. Sorry you had to find us, but glad you did.

Have you looked into the D3 Regimen to manage your CH ?

It was devised by our good friend Batch and has been a life changer for me and 80% of the Clusterheads who have started it.

You can read about it in the Medications & Treatments section, under the thread "123 days pain free....". There's a lot of reading, but well worth the effort.

Post here anytime, even if it's only to vent. There's always someone here and experience, advice and understanding are abundant.

Peter.

You don't stop laughing because you grow old....You grow old because you stop laughing.

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Bob Johnson CH.com Alumnus Offline "Only the educated are free." -Epictetus Posts: 5965 Kennett Square, PA (USA) Gender:	Re: New member, old problem Reply #2 - May 17^th, 2016 at 10:59am You have a very good support group which is worth exploring. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: New member, old problem Reply #3 - May 18^th, 2016 at 7:23pm Hi and welcome Are you using any preventives to cut down on how many CHs you get? Something like verapamil, lithium or topamax?
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Cornishman

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I Love CH.com!

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Re: New member, old problem
Reply #4 - May 19^th, 2016 at 4:00pm

Bob Johnson wrote on May 17^th, 2016 at 10:59am:

You have a very good support group which is worth exploring.
ouchuk dot org

That's great, another one I had never stumbled upon, but will definitely pay attention to.

Quote:

Are you using any preventives to cut down on how many CHs you get? Something like verapamil, lithium or topamax?

No, my Doctor has discussed this with me, but there are a couple of other complications preventing the use of most of the 'preventatives'.

Thank you all for the welcome and advice.

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Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: New member, old problem Reply #5 - May 20^th, 2016 at 4:19am If the "conventional" preventives have been ruled out, how about trying the vitamin D3 route that a lot of us have found to work well (85%+)?
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Cons Law

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Re: New member, old problem
Reply #6 - May 22^nd, 2016 at 3:19am

Hi Cornishman,

I gave up on the 'preventatives' as the side effects were worst that than any benefit. I have been on the Batch's D3 regime for almost 4 months now at I am convinced it is helping. Headaches are not completely gone but intensity has reduced for the most part and exhaustion after attacks is substantially reduced.

Stay Positive

Con

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RichardN CH.com Hall of Famer Offline Posts: 963 x1\|Crossville\|USA,Tn Gender:	Re: New member, old problem Reply #7 - May 25^th, 2016 at 11:58pm Greetings & Welcome to Clusterville Do visit the OUCHUK site Bob posted above. They can help you get 02 to abort the atttacks. And, after 11 years chronic, I've been pain free for the past 2 1/2 years . . . . using the D2 regimen. Be Safe, PFDANs, Richard
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