Good morning,

I'm new to this forum and actually new to any message board. I'm not very tech savvy. I have been getting clusters since 1997. They have been coming back every year and last for 6 to 8 weeks. Suicide has been considered many times over the years as I'm sure this sad thought has gone through most of you. I have studied myself before during and after my cluster session. I learned not to lay down, I learned that oxygen takes the edge off. I learned that having an orgasm helps but nothing takes the pain completely away.

Let's start with what I believe could be my cure but no doctor will take me seriously. I am a carpenter. I work in a shop where there is a lot of dust and I would sneeze 4 to 5 times every morning and I mean every morning. When my headaches would start I noticed over the years that my sneezing would stop until the headaches stopped. It was a relief to sneeze again. It wouldn't work if I smelled pepper and sneezed, it had to come naturally. I believe that histamine is at least my cure, but they don't make histamine only antihistamine. ive been retired for 5 years because of a back injury and don't sneeze in the mornings anymore, but my nose runs in the morning. Now that my cluster are back, my nose does not run in the morning.
When I get my headache my left side sinuses seem to dry up and seem plugged. So you try to blow you nose but nothing comes out.
So my question to everyone is, have you had the same experience with your nose and sinuses and sneezing?

The Diamond Headache Clinic, in Mich. I think, specialized in histamine desensitization for treatment of clusters.  Clusters have been called histamine headaches for a long time.

Very few clusterheads go from episodic to chronic so don't worry about that.  I was a very regular episodic for 20 years.  Then the timing of the attacks started to change, longer remission, longer episodes, more frequent attacks.  After about 15 years of that they quit and I haven't had a cluster in 10 years.  You're not becoming chronic, you're starting the transition to quitting!

Well, I'm one of the few that went from episodic to chronic and stayed that way for years and years and years...

O2 (high liters - then demand valve) was a lifesaver. After getting on the D3 regimen, I've been PF for almost 3 years. After almost 20 years of chronic - I'm still doing the happy dance.

Listen to Batch - you don't have a thing to lose and it's helped so many of us.

And some, like Bob P, just go into remission and stay there. There is NO cure, but remission is great.

Stay on this board and keep us up to date on how you're doing. One thing you'll find out here is that we've all been where you are and we DO understand..   

Good morning everyone

Blood drawn this morning. Taken my first day of Batch's pills. I was wondering since you can get vitamin D3 from the sun, is there anyone who works outside getting clusters. I worked outside till about 35 years old then started working in a shop and got my headaches 2 years later. Just a thought.

I hope everyone has a great day

Ilndguy

HOPE fer the best. Take what you need here ...and ignore the rest. My respite was shrooms.