Welcome poochgal,

I've had clusters for 20 years. Mine comes at anytime of the year. My cycles would usually last between six and eight weeks. The peak would be at  three and five weeks lasting about two weeks of hell. The sinuses and the droopy eye lid is normal. My eye lid unfortunately droops all the time now. My sinuses get clogged when I get my attacks and my one eye will cry.

Stay on this site and you will get a lot information from a lot of very smart people. I started a vitamin D3 program and has worked very well for me. Please do read as much as you can and you can use this information to suit what works for you.

You are not alone and we wish you a short cycle

Ilndguy

Hi Poochgal,

40+ year clusterhead here, so I can't remember my first ones. Yes, the continuing eye discomfort, sagging, etc. is common. Don't let that scare you.

I am presuming they gave you an MRI and a CatScan.

Do some serious reading on here. You have SO much more hope now than when I was first diagnosed. Back then they had no idea what to do with me and I went with nothing until about '98. The improvements since then are phenominal.

Check out the Vit D3 regimen and get on it right away. It's over 84% effective and much safer than anything the doctors can give you. Also, look into 5 MeO DALT. There are otehr options, too, but those are probably your best starts.

Jerry

Poochgal,

Good idea to get the MRI to rule out anything sinister. This is the process we all go through. Diagnosis of CH is essentially a process of ruling out all the other possibilities.

It is advisable to get to a Primary Headache Specialist to consolidate the diagnosis. While your GP has done unusually well so far, most GP's and ER Doctors are not sufficiently trained in Primary Headaches to definitively diagnose

As to the wrong gender, well, don't get the innumerable ladies here started on that one!!!

There is evidence that CH can be hereditary. However, many sufferers, myself included, have no hereditary connection whatsoever.

I am a true believer in the D3 regimen. Read up on the latest paper form Batch (the creator of the regimen) at the following link. Concentrate on part 2, as part 1 relates to recent surveys on the regimen.

When you have read it, come back with questions.

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

With regard to the Oxygen, make sure the valve they provide gives at least 15 L/minute flow and you are provided with a non-rebreather mask. That's the one with the inflatable bag.

The mask on sale here (see the Oxygen info tab, above left) is designed specifically for CH and is significantly more effective than the standard issue mask.

Post anytime. There is support from all over the world here, so there is always someone to advise, listen and sometimes, just understand.

Peter.