Hi Visperas,

If nobody else is going to take this one... I'll put in 2 cents worth!

This happens to me from time to time too, so I know what you're going through. It's no fun to have placed bets on the regimen (Having a life outside of CH) and then fall out of remission.

I'm sure Batch will chime in and probably run through the usual suspects... The 25(OH)D serum level test result will be perhaps a good start toward seeing what is going on, but there will be things you can do in the meantime I presume others will chime in with.

The addition of the 90 day course of B-50 Vitamins may help, as would the Diphenhydramine if you're having an allergic reaction, either apparent or sub-clinical. Unfortunately, I can't tolerate Diphenhydramine, even though I know it is hay fever or pollen allergy that pulls D3 from my system and CH remission collapses, but I sit my 25(OH)D3 level around 200nmol/l and it leaves a little room to ramp up D3 dosing when such an allergic reaction comes along. I throw down a 50,000IU loading dose at the first sign of trouble, and follow up with about a week of 20,000IU D3, the fall back to my 10,000iU per day, it works for me.

There's substantial room there to up the fishoil, and the Magnesium, maybe even the Vitamin C, but I would not offer advice on that as I don't know what the benefits would be.

I did have a lot of issues with different D3 brands. One study I've seen a few years ago suggests D3 labelling can vary from what's actually in the bottle substantially from 8%-146% (from memory, sorry cannot locate the study now), in the same bottle in some instances. I took truckloads of "Now foods" 10,000IU D3 for a few years and could not get my 25(OH)D3 serum level about about 160nmol/l, nor could I achieve CH remission.

Switched to another brand "Healthy Origins" out of the UK, this one here: (not an ad)
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With this one I've had 2 years consistent 25(OH)D3 results, and I was able to stay on 10,000IU per day for CH remission, only upping the dose to 20,000IU when I either fell below 200nmol/l or allergy/colds/injury became an immune system consumer for me. That's not very scientific, but it took 4 or 5 brands for me, before I found one that was both affordable and able to offer consistent serum lab test results over 200 nmol/l in my case.

Depending on which part of the world you're in, it may be allergy season as it currently is in the Southern Hemisphere. That may be a consumer and the reason why you're seeing an up-tic in frequency.

I'm unsure how the D3 regimen interacts with verapamil, but Batch has directions on his D3 regimen and dosing schedule thread concerning Verapamil.

If there's pollen around, or it's Autumn/Fall where you are, it may be sub-clinical allergy. I'm sure Batch will be along to help when he sees the post.

The good news is, there's a lot of info here on the site that addresses what you can do next, hopefully achieving CH remission. For some of us, this regimen does take a lot of tweaking and vigilance in doing so, to get it just right!

Good luck with it.

Thanks CH Brain and Batch!

I don't have any obvious allergic reaction but I know that might still be an issue for the CH and D3. I'm gonna follow the steps in Batch's post and will keep you updated.

Besides going PF I would love to know what is going on so I can be more autonomous in treating the CH by myself. So, I'm gonna take loading doses for a couple days and I'm gonna go buy the Benadryl right away.

Since it just makes sense that more expensive brands are better, I'm gonna start buying proper vitamin brands instead of the cheapest ones aswell. Does that make sense, Batch?

Also, what's your take on the Verapamil?

Thank you again and will report back.

No, I'm not taking any other Rx medication.

I stopped taking the Benadryl on the 18th. The 20th I added the Super B Complex and was still taking the VitC course when I had 3 PF days. Unfortunately, yesterday it came back and tonight I was hit again.

I'm not sure what those PF days came from but they felt great. I haven't had 3 PF days in a while now. I'd say maybe it's the VitC but I've been taking 4 or 5k daily for around 8 days and I'm not sure if I should keep taking it like that or not.

Ok. I'm taking 2400 mg of Fish Oil, 1440 Omega3 Fatty Acids. Yesterday I took the 50k loading dose and 50mg Benadryl, which I will take again tonight.

I will also keep taking the Vit C every 2 hours for a while and see what happens. How long do you think that I should keep taking it?

So, far I've had a bit over around 40 hours PF. So far so good. I will report back soon.

Alright. I'm taking another 50k loading dose right now. I'll keep taking the Benadryl until the end of the week and will keep the current fish oil dose as is as part of the regimen.

Roger on taking the VitC until I'm 2 weeks PF. Also, should I make the 2k Vit C part of the regimen moving forward?

As far as D3 goes, I've been taking 20k as my maintenance dose and my D3 levels never went super high. The last one was 144. My height is 5'09'' and my weight is 154 lb. What do you think?

Thanks again Batch!

After a week with only a couple shadows, today I got hit again. Still, it's a very good improvement and hopefully it means that I'm in the path of full PF.

I'm gonna keep taking big amounts of VitC for a while longer but I wonder if I should do the same with the Benadryl. In theory I should be stoping it right about now since I've been taking it for 3 weeks more or less.

Hi!

The last few weeks I've taking the 50mg of Benadryl and the course of Vit C and I have only been hit 4 times and only when testing my limits and triggers. Today, I'm stopping the Bendaryl and the Vit C course but I'm gonna take 2000 Vit C with the regimen from now on. We'll see what happens. I'll report back. Thanks for your help!

Re: Verapamil, you might try the non extended release version. I used to take 80 mg twice a day and went up to 120 mg twice a day. It can be split in three doses as well. For some reason the extended release did not work for me.

Hi everybody,

Well, here we are again. After another period of having the Beast under control with the D3 Regimen I find myself again in the situation where it's not working right now. Let's go step by step.

For several months, pretty much since my last bad streak, this has been my daily regimen.

-20.000 IU D3.
-2.4g Fish Oil (720mg total Omega3)
-500mg Magnesium Citrate
-2.000 mg VitC
-200 mcg VitK2
-2.000 IU VitA
-1 tablet of Super B-Complex
-1 tablet of Complete Men 50+ Multi Suplement
-240 mg Verapamil ER

How's that looking? Has the regimen changed or improved in the last few months?

So, the story goes as follows. After several months with only 2 or three attacks per month, August had 7 attacks. By September 9th, I already had 4 attacks so I decided to follow the same instructions that I got from Batch during my last bad streak. I think this streak is worse though, it's every day, several of them and quite strong.

On September 9th:
-I started taking Benadryl 25mg morning and 25mg evening. I forgot taking some of those doses since and the last few days even more so than normal but I think I'm gonna give it another proper go starting today. Should I? How long with pain until we can discard as a source of relief?

-I started taking extra VitC. Not a lot, maybe an average of 3.000 mg extra per day. I wasn't very consisten with it either so, what's the dose that I should aim for?

-Finally, I started taking a probiotic with the regimen. One capsule a day. It's PB8 and the bottle says 14 billion bacteria.

So, that's it. I seriously need help guys, hopefuly you can give me a hand. Thanks and take care!