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Headache on the Hill (Read 282 times)
Mike NZ
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Headache on the Hill
Feb 16th, 2019 at 2:04am
 
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Interesting to read up on the strong advocacy that this event results in.

Quote:
Early the next morning we had a headache policy forum breakfast and heard from Rep. Andy Harris, MD (R-Maryland), who lives with cluster headaches and is passionate about our cause.


Hopefully having a politician who knows first hand about CH will help progress things across research and treatment.
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Racer1_NC
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"Well, let's go see."


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Re: Headache on the Hill
Reply #1 - Feb 16th, 2019 at 10:55am
 
My oldest daughter and I attended HOH. I've been several times...this year was her first.

The numbers grow every year. The wheels of government often turn slowly but I'd like to think we make a difference each year.

Below are a couple of pages covering our "asks" this year. If you are in the US and feel like contacting your Representatives.....feel free.

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“We see what we believe, not the other way around." — Varga

“The more I know, the less I understand, All the things I thought I knew, I'm learning again."- Don Henley
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Racer1_NC
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Re: Headache on the Hill
Reply #2 - Feb 16th, 2019 at 10:56am
 
And the second one....
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“We see what we believe, not the other way around." — Varga

“The more I know, the less I understand, All the things I thought I knew, I'm learning again."- Don Henley
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Callico
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Re: Headache on the Hill
Reply #3 - Feb 20th, 2019 at 12:17am
 
Thanks, Mike for the find, and Bill thank you and your daughter for going. (Sorry, I forgot her name, already, though I saw pics of you two on FB). I've said for years I'd go the next year, but I just can't swing it. I'm profoundly grateful for those of you that give both your time and money to the effort.

jlc
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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)
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