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The lucky ones. (Read 400 times)
maz
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Hampshire, England
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The lucky ones.
May 30th, 2019 at 11:12am
 
Guess I'm one of the lucky ones - just been diagnosed with my 2nd "hedache" condition.
Ocular migraine.  Horrible.  Double vision and large blind spots.  I couldn't even drive myself to the doctors.
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pattik
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Wisconsin, USA
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Re: The lucky ones.
Reply #1 - May 30th, 2019 at 11:45am
 
Bummer! Welcome to the club.  Undecided My migraines came before CH, including the aura. A couple of years before the CH arrived, the headache part stopped, but the auras have never stopped. Very inconvenient! If you're out and about, you just have to stop for a while, and let it pass. Sorry to hear this.

Patti
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maz
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Hampshire, England
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Re: The lucky ones.
Reply #2 - May 30th, 2019 at 4:59pm
 
Thanks Patti
Had CH for 11 years now but in some ways this ocular migrsine is worse.  No where near as painful but more debilitating.  Constant dull headache and not being able to see properly is the worst experience I've ever had.

I hate not being able to go out by myself.  I often would get in my car and go off somewhere on my own.  Now, I need a babysitter in case I can't see where I'm going - and no driving for a while.
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« Last Edit: May 30th, 2019 at 5:01pm by maz »  
 
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MDR
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Elysburg Pa.
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Re: The lucky ones.
Reply #3 - May 30th, 2019 at 6:42pm
 
Welcome to the club crazy stuff have not had 1 in a while

Mark.
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Hoppy
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LAUGHTER IS THE BEST MEDICINE


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Perth WA
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Re: The lucky ones.
Reply #4 - May 30th, 2019 at 7:30pm
 
Maz wrote, Guess I'm one of the lucky ones. Shouldn't that have been unlucky one! Me thinks so.

Hoppy
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Mjedwards409
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Re: The lucky ones.
Reply #5 - May 30th, 2019 at 10:16pm
 
Hey Maz. Though I’m only a CH supporter I suffer from ocular migraine. Had one today for the first time in a year actually. While they are definitely awful, the longer I’ve had them I can actually start to tell earlier and earlier before my vision is completely blinded. Today I was able to detour to a coffee shop fairly easily and “wait out” the aura portion. I will say the pain that accompanies it isn’t as bad as it used to be. A combination of strong coffee, lots of water, and goodys headache powder actually helped me get through the second half of my workday. Sorry you were diagnosed and I hope they are rare for you!
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AussieBrian
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Cairns, Qld, Australia
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Re: The lucky ones.
Reply #6 - May 30th, 2019 at 10:34pm
 
Welcome to a rotten club, Maz.  Fair dinkum, I wouldn't wish this sort of thing on a politician!

I've long found it best always to attack these monsters as entirely separate entities rather than trying to combine methods to beat both.

As a little point of interest,  some of our best CH treatments like immigran and oxygen started life to help with migraines  (we simply hijacked them)  so at least you're off to a good start.

You also have Len and us to rely on as always.

Good luck and keep us up to date,

Your mates down under.

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My name is Brian. I'm a ClusterHead and I'm here to help. Email me anytime at briandinkum@yahoo.com
 
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Mike NZ
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Oxygen rocks! D3 too!


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Auckland, New Zealand
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Re: The lucky ones.
Reply #7 - May 30th, 2019 at 10:41pm
 
All the best people have CH and migraines.

A lot of what applies to CH will also work for migraine, but they can be different in what medications work, your triggers, etc. So treat them as being two distinct headache types.

Whilst D3 sorted my CH, it was only when I also started the keto diet that my migraines dropped significantly.
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