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crickets (Read 291 times)
CCHInRemission
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Posts: 16
Halifax NS
Gender: male
crickets
Jun 10th, 2023 at 10:06am
 
Its a ghost town here. Crickets what have you.

I assume its because there is alot of information now to treat these bastards. D3, Shrooms, Stem Cell, O2, Triptans etc.

Im glad its quiet. Means more are informed, less are suffering.

I posted how I was the 1st in the world to be in remission from stem cell.....crickets.

Pain Free Wishes to ANYONE surviving. Even in remission I never forgot where I came from. Some have
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Racer1_NC
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Posts: 4417
Lewisville, NC
Gender: male
Re: crickets
Reply #1 - Jun 10th, 2023 at 4:45pm
 
It means that Face Book managed to kill many of the once popular one topic oriented message boards.

Shame too....
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MDR
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Posts: 265
Elysburg Pa.
Gender: male
Re: crickets
Reply #2 - Jun 10th, 2023 at 5:47pm
 
I'm on here every night I work love this place this place saved my life.

Mark.

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pattik
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Wisconsin, USA
Gender: female
Re: crickets
Reply #3 - Jun 12th, 2023 at 10:00pm
 
I visit a couple of times a week. Occasionally someone will post a question I might help with. You never know when something you contribute can make a difference.
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CCHInRemission
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Posts: 16
Halifax NS
Gender: male
Re: crickets
Reply #4 - Jun 14th, 2023 at 6:43am
 
So I post about me being in remission 4 years. A new form of treatment.....barely nothing...I post about crickets and more replies.....SMH
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Eroc
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Posts: 91
Apple Valley, Minnesota
Gender: male
Re: crickets
Reply #5 - Jun 14th, 2023 at 10:42pm
 
Just started my 5th cycle with a typical 3 year remission, however this last remission was 4.5 years so back fighting the beast. It has been different this time with a slow start. Preparing for battle once again though.  Tried the D3 method last time with no success and that cycle went on for like 5 months, longest ever.  This time I am working to get Emgality and give that a whirl. What is this stem cell you speak of? Met with Neuro this morning (headache specialist PHD Dr. Michael Sethna with Noran) and we have tried alot over the years. Running out of options.  Was thinking of trying the D3 again with the Full Monty, however the links at Vitamin D Wiki arent working. I did DM Batch however havent hear back yet. 

To add, information is now scattered all over the place, it was nice to have this location that consolidated things for sure.

E
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« Last Edit: Jun 14th, 2023 at 10:45pm by Eroc »  
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