Posted by Linda B on May 16, 1999 at 13:20:07:
In Reply to: Re: Question Re-CH: good news, bad news posted by lc bob on May 15, 1999 at 16:04:48:
Being Cherokee I`m glad that was not my tribe.
I really cant think of anyone that has grown out of it. I think these myth`s about CH need to be exspelled. Just like the one no women get CH.
I`m here to tell you I`m a woman and I`m liveing with CH for 25 year`s now and I`m only 37.
This is just another reason I would like to see an org. set up for us CHer`s it`s time we knew the truth instead of these empty lie`s. It`s time to stop the suffering. It`s time to educate are selve`s and the field of all doctor`s. It`s time we could call or ask what, how,when,who,where, etc......,It`s time for all Cluster`s to band togeather and say NO MORE. Ok I just went way off track.
The sad point is we really dont know if it will ever stop. If we grow out or in to it. I wish I had the answer it would be so much simpler,But I dont.. So all I can tell you is hang in there. Hope`s down the road.
Hope you have PAIN FREE day`s an Night`s
Hug`s Linda B