Posted by Bobby Gilliam on May 21, 1999 at 20:12:26:
I have just found this site. I am glad that someone created it. I have only skimmed the site but most of the treatments that are listed, I have been a Guinea Pig for them. I have moved from acute to chronic and have had on the average 2-3 (minimum) per day for the last three years. My chronic condition also has a cycle very much like those who suffer from acute attacks. I just finished or rather I am taking a "burst" of prednisone (100mg for 3 days, then reducing by 20 mg every three days) in an effort to break the cycle within the cycle. I also am back on verapimil. I would like to hear from anyone that wants a fresh perspective.
I started to log on to the chat room when a security message said that something was wrong with the website ( possible imposter site?) and to contact my administrator. Does anyone know about this?
Hope to hear from someone soon.
Bobby
Oh, and by the way, has anyone had any experience in applying to Social Security for disability benefits?