Posted by SteveK (129.193.96.1) on August 18, 1999 at 17:20:31:
This site, which includes all of you, is great. I found it a few months ago and I no longer feel so alone.
I was astonished at the number of people who described the same affliction as my own. I nearly cried when
I learned that if I was making this CH thing up then many people I never met came up with the same thing.
I had started to think I was crazy or at least couldn't take some pain. Doctors told be my headaches didn't
match type they knew of, now I find on this site, descriptions that are amazingly close to my experience.
Thank you to everyone, especially DJ.
My first post. I have had CHs for 12 years although I have not reached the level of many of you. Although
two years ago I did have my first multi-CH day.
My episodes last 4 to 8 months and imtrex works 80% of the time so I don't have it too bad. The real problem
is that money/insurance company thing. My wife is great but she suffers from the male sickness of 'I can
fix it' rather than just understanding. She thinks I deserve the CHs because I have tired of trying an endless
array of herbs, vitamins etc that she comes up with. She believes if I ate my peas and carrots I would not get
CHs (I like steak, she would be a happy vegetarian). Even in the episodes my CHs are sporadic so it is hard to
tell if something is working.
I want to try the full spectrum light thing. It seems that one can get bulbs that work in regular fixtures,
florescent tubes, and light boxes. Are they all the same? I live in southern CA and mine start in early winter
and taper off in the spring to early summer. This summer has been my best in years; it has also been some of the
sunniest weather. I also started my kids surfing so I'm out in the sun at the beach a lot. With the birth of
my third child 2 weeks ago I have not been outside much and I feel the shadow. Which of course scares the heck
out of me.
I know this all has probably been said many times and I apologize for creating a long post (I promise not to
do it again). But I feel so good saying this to people that can truly understand what it is like to spend weeks
or longer in either pain or in fear of the demon. I have never had the privilege of doing this, sorry if I abused
this forum.
Thank you, Steve