Posted by Elaine (24.88.1.67) on January 16, 2000 at 10:56:05:
In Reply to: Hey Ted - let's put it another way.................. posted by Jack Boyd on January 16, 2000 at 09:24:37:
Hi Jack! Good point you made. I am chronic and I have noticed that there does seem to be a difference between chronic and episodic pain from what I read from the post and when talking to others.
Here is how my clusters go. I hurt just about everyday, sometimes I might miss a day or two. If I am real lucky I get a week or two break. I have shadows that come and they stick with me for a wile sometime they turn into clusters and sometimes they don’t. If they do most of the time they are low pain I can deal with. They hurt enough I have to rock! I have to move, can not sleep. But they are not enough to make me want to scream! Now I get what I call a chronic cycle every six to nine months, They are always bad. I have more than one a day as many as eight a day all 10s now these are the screaming ones. No sleep, no rest, just tears, and crying.
A lot of people writes and tells me, they could never be chronic and live through it. I do not know if my body is just use to the pain and it does not seem so bad, and in those six months my body wears down or the medication stops working, then I get hit or what. I feel chronic have different pain levels as episodic at different times. I think we have a cycle as episodic do!
I am interested in others opinions too! I think this is a great topic for discussion and not a argument! We all hurt episodic and chronic! How will we learn if we don't discuss these things!