Posted by Cujo (18.104.22.168) on January 27, 2000 at 16:51:11:
Hey all , I try not to post too much here, but i just wanted everyone to know ....The beast is almost gone for this cycle. Im down to about 4 shadows a week and maybe one full fledged CH a week. I havent been above a 7 in 3 weeks.
My last 2 cycles i have spent a good deal of energy trying to fight them with Drs. and prescription drugs , to no avail.
Someone in the past posted a message , ( i think it was an oldtimer like Bob , or Drummer....not sure who) about learning to 1st accept the beast. Dont waste valuable energy over it. Do what works for you !!
I dont know what causes my clusters , after 25 years of them i havent found but 1 for sure "trigger" and thats alcohol. So i just dont drink alcohol during my cycles.
But i have found certain little things that help me deal with it. Oxygen is a new favorite of mine, my Dr. doesnt like it , he says over use will scar my lungs. Haha....gotta be better than putting my head in a visegrip.
I have also over the years used an Icepack , it doesnt beat it , it just helps me deal with it.
A really hot bath, and getting the affected nasal side cleared has helped me more than anything. I can almost abort it this way. I can prevent it from becoming a 10 if i get it started b4 it gets to a level 8. And that comes with experience of recognizing it while sleeping. I dont waste time to see if it is really gonna come, because if it awakes you , its coming.
Truth is CH's SUCK big time, and i dont have any answers. The only answer that i have is purely a xerox of somebody elses post. Learn to deal with it on ur own terms. Do whatever works for you. Dont wait for a Dr to cure you. Be prepared! I think i actually intimidated my Dr when i marched into his office and started telling him what drugs i wanted to try. He stammered a bit , and even hee'd and hawed about somethings , but i believe when it was all said and done ....he had more respect for me as his patient....WHY....because i came prepared with all of this wonderful information on this message board.
Soooo,,,Yes, i have come to accept the beast , He will not beat me. I will win everytime, and i have beaten him once again.
Thanks everyone for your support and for your wealth of information....I dont plan on coming back for a very long time.....BUT...I will be back....im sure of it.
G'day , Cujo
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